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A professional, competent, PATIENT-oriented oxygen supply service will NOT make a new patient's life even more miserable (just because they used the "wrong" terminology) by throwing out ridiculous comments like a rebreather mask will "kill you". A rebreather simply gives you a mix of O2 and room air....which won't work for CH....but lots of other valid uses for folks WITH a prescription for same. And which, BTW, will not kill THEM either! Sounds like something a person or company in the wrong business would say.....instead of RESEARCHING what CH PATIENT requirements are...then providing THAT....and explaining away any confusion. Seems like you need to educate them...just like many a clusterhead has had to educate their treating Doc. We have to be our own best advocates...…………... Best Jon PS If all ya got is the mask pictured above...tape over the holes so you are not getting any room air (slightly lift mask to exhale)....or just breath directly from the hose sans mask...

I was kind of lucky because I was correctly diagnosed when I was 20 in the 1970s when I was living in England and the stuff they gave me when I lived there worked magic until the episode ended in January. Then 40 years later here I am again at 62 and they're back. I guess I can see maybe why there's no need for a separate forum since we get treated the same. But .. you're both kind of wrong because the symptoms are not "exactly" the same. There are a number of differences that studies have found: 1) Women tend to develop them at an earlier age and more likely to develop a 2nd peak after age 50 2) Women are more likely to have some family history of CH and migraine and can also have increased risk of Parkinsons 3) Women are more likely to experience sensory, language or brainstem auras 4) Women are significantly more likely to experience pain in the jaw, cheek and ear than men 5) Women tend to develop more "migrainous" symptoms than men, are much less likely to have the alcohol trigger and significantly less likely to start an episodic cluster in the October-December timeframe (although that doesn't apply to me because both of mine happened in October-December.) I've noticed that my headache frequency goes up when there's a large barometric pressure change and when I alter my sleep schedule. Thanks for the reply -- I'll just soldier on in the general forums. Best, Cheryl