Leaderboard

I think that there are too few of us to have a regular support meeting like AA. However, many have formed groups who live in the same general area and meet a few times a year to visit and exchange war stories. The big group is the Annual Clusterbuster Conference. In 2020 it will be held in Chicago in September. It is truly an amazing experience to meet a big group of people who have CH!!! Well worth the money and trip. You will learn a lot and be surrounded by people who 'get it'. ATB!

I am allergic to Imitrex. I took the shots for years and had no idea that the resulting eyelid swelling/pins-and-needles feeling, throat swelling, and skin/scalp burning sensations (esp touching water, for some reason) were a concern. (The last one is apparently not an anaphylaxis thing, but a mild reaction.) I just hadn't mentioned this to my migraine doctors, figuring that was normal. I had the reactions to a slightly lesser extent with the imitrex pills. Eventually, someone asked and I was told to never take it again. I just got lucky, I'm told, that I never had a full-blown reaction. After that, I took maxalt for 10+ years with only the burning thing and now frova (for the last 5 with the same) and Zomig (tbd). So long story short, while purely anecdotal, not all triptans are the same. You can be allergic to one, but not necessarily to all.