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Showing content with the highest reputation on 02/13/2020 in Posts

  1. So, I am finally going to get the oxygen this weekend!!!!! I need the tank and what else?? Can somebody help me with the things that I need please.
    2 points
  2. New study for the Zolmitriptan microneedle system is now available for us lucky clusterheads. I do not see it on clinicaltrials.gov but I am enrolled in the Philadelphia area. Same old drug just a new way to administer. This is a small patch about the size of a quarter with a bunch of small needles on it that are coated with the medicine. Kind of feels like a cat tongue or shark skin. They give you one patch treatment to use at the first feeling of a cluster coming one and you have a few days to report back to the office. seems like a low risk trial if you have used any triptans in the past. Might just give someone another option when the injection triptans cost is out of reach. Something you may want to ask your PCP or headache specialist about.
    2 points
  3. This regulator will work on E tanks https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1 This one will work on the M and M60 tanks https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-protector/dp/B00BXRBJG8/ref=sr_1_fkmrnull_3_sspa?keywords=540+CGA+oxygen+regulator+0-25lpm&qid=1554376819&s=gateway&sr=8-3-fkmrnull-spons&psc=1 The mask can be found here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit
    2 points
  4. 15 LPM wasn't cutting it for me so I bought this regulator, very much recommended.
    1 point
  5. Very interesting. So, you have just one of the new patches? I wonder how much is actually in the dose? Thanks for enrolling and furthering study on this!!!! We all benefit when anyone volunteers to further knowledge!
    1 point
  6. Thank you all for the info. A little update, I am now on day 10 and still have not taken anything other then oxygen and a few 5hr drinks. I still feel better overall and the hits are just about the same. I am going to try a bust this weekend thinking that most of my system should be clean. I am due to take Emgality tomorrow but this I will hold off and see how the bust goes this weekend. If I were not keeping notes on every cluster I get I would think that they were a little worse then they really are but looking over the times kip level and duration everything seems to be just about the same now as it was 2 weeks ago.
    1 point
  7. Yes you should if you have not had a scan done yet! Usually a patient gets one with their diagnosis in the US. For CH, it should come back as 'Nothing found' basically. It is to rule out 'other' stuff being the issue and causing the CH like symptoms. Have you looked into the D3 Regimen yet Vipul?
    1 point
  8. https://www.msn.com/en-ca/money/topstories/move-over-pot-psychedelic-companies-are-about-to-go-public/ar-BBZUBn2?ocid=spartanntp Looks like companies employing psychedelics for medical study are going to go publicly on the stock exchange in Canada. Quite a bit of good news in there, getting granted breakthrough status for depression, long term investment opportunities for US companies that want nothing to do with things like Cannabis because of the legal murk in the US, psychedelics on the other hand are approved.
    1 point
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