Leaderboard

Drs. Are like carsalesmen and lawyers. Keep looking till you find one you trust and like. Remind em they work for you. They're people to and if you find one that will listen you got it made. I think alot of patients automatically bow down to a dr just because their a dr. Don't most want to help just be firm remind em you have this shitty disease and you need o2. It's not addictive and has no side effects. It just doesn't make big pharma rich. If that dr won't listen find one that will.

I have had my clusters under controll for a while but the migraines are kicking my butt. I got caught up in the Triptan rabbit hole 36 Zomig in 6 weeks, followed by 36 in 30 days. The migraines were consuming my life again. I stopped the D3 program and I decided that I needed to stop taking Zomig! This set my migraines into over drive until one day when I hade Cluster events during the migraines for 2 days, the following day I was headache free. I started up the D3 program again. Its been a week and so far its been way better. I am getting short migraines that start about 3 pm and last until about 11 pm. I am able to get rid of them without taking anything. I hope that by me posting this I can stop someone from going down this path.

Dehabel, Off hand it appears you're starting to respond to the anti-inflammatory regimen. Steroids tend to slow the response to vitamin D3 and all the cofactors. That said when push comes to shove, steroids do work... it's a tradeoff. Oxygen and a week to 10 day course of Benadryl (Diphenhydramine HCL) at 25 mg every 4 hours during the day and at bedtime will help. Just be careful and not drive as this much Diphenhydramine will make you drowsy. Many CHers who need to drive during the day have found it's best to wait until you've home for the day then take 50 mg as you walk through the door and another 50 mg at bedtime. Take care and please keep us posted. V/R, Batch

Me too! .....and we won't stop "nagging" you until you find a doc who will prescribe... or you "take up" welding.... It cannot be emphasized enough...it is a LIFE CHANGER...those meds you hate taking are likely to dust in a drawer...I KNOW it saved my sanity and perhaps my life.... and countless others. I can STILL tear up recalling the first time 35 years ago when OXYGEN caused a hit to drain away like water down a tube...and I KNEW I had my life back..........................

People often start at about 9mg of melatonin, and then work up as needed/tolerated. Some people here take amounts in the high 20mgs or even higher. Melatonin plus Benadryl is a strong dose of sleep-inducing medications, though, so take care if you are doing both. Yes, GET THAT O2, ASAP!!!!!!! You're putting yourself through a lot right now that you won't need once you have the O2.

Colette (and maybe Monica), you really should read this file. You're missing a whole lot of treatment options. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/