Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 04/29/2021 in Posts

  1. Hi all - longtime CH sufferer (11 years), first time posting. My cycles have progressively gotten longer and had more headaches during each cycle over the years. I’m currently 3 months into a cycle and still getting 3-13 headaches per day. Historically, oxygen has worked great and I’ve managed by always keeping oxygen close by wherever I go. Now I have 1-2 headaches per day that oxygen isn’t helping, though luckily sumatriptan injections are still doing the trick. I have never tried MM or the D3 regimen but now seems like a good time to start. Also, I take 75 mg nortriptyline a day and have taken this drug for a few years and seems to be a bit better than verapamil for me The supplement instructions aren’t totally clear to me (I found the wiki but the length of the file and posts since then have me a bit confused) and I was hoping someone could check my understanding below so I am taking each step correctly. 1. Go to a lab and ask them to test serum D3 levels 2. if they are above 45 then no need for the regimen? If they are lower, then start regimen 3. Take bio tech d3-50 every day for 2 weeks. Also during these 2 weeks take 1 mature multi a day, 1000-2400mg fish oil a day, 400-800g magnesium a day, mk-4 vitamin k 1000 a day, mk-7 vitamin k 200 a day, 1 vitamin b 50 a day 4. after 2 weeks do all of the above except bio tech d3-50 is just once a week 5. after 3 months drop the vitamin b 50 does that all sound right? Also, if I can only find some of the above supplements today, should I go ahead and start with some of them or wait until I get all of them? Also, how often do I need lab work done after this? I haven’t taken supplements in the past
    1 point
  2. Tmac, Seeing your doctor to obtain lab assays for your serum 25(OH)D3 calcium and PTH is prudent. As long as your serum calcium remains within its normal reference range and your PTH is in the mid to low normal range, there's no problem no matter how high your serum 25(OH)D3 assay. I get the same blurb from Quest on my 25(OH)D3 assays. I think it's computer generated. It's obvious something is interfering with the vitamin D3 enabled genetic expression that helps prevent your CH. If it's allergy driven as I suspect, it could be there's so much histamine in your system, Quercetin is ineffective and even Benadryl (Diphenhydramine HCL) isn't all that effective either. Other sources of interference include anything that causes an immune system response like infections, (bacterial, viral or fungal), some Rx medications, trauma and surgery. When are your CH occurring? If they're all at night while sleeping, try sleeping in a leather recliner in your family room. The rationale... it could be dust mite poo. These little beasties have inhabited human bedding for thousands of years. They don't bite but their poo can be a potent allergen. Even if your wife wins the Good Housekeeping Seal of Approval, keeping sheets and bedding washed every other day may not be good enough, dust mite poo still gets into pillow and mattress stuffing. Accordingly, to reduce exposure, try sleeping in a leather recliner for a couple nights. A recliner also has the advantage of keeping your head 8 inches above your heart. Even while sleeping, this will cause your heart to beat slightly faster to pump blood up to your brain. The extra work requires a little extra oxygen so your respiration rate will elevate slightly. This increases the arterial oxygen partial pressure and reduces your arterial CO2 partial pressure. Both these conditions help prevent CH. If your recliner has fabric upholstery, cover it with a plastic sheet. Dust mites colonize anywhere there are dried skin flakes. If there's a reduction in CH frequency while sleeping in the recliner, it's time to invest in a Hypoallergenic and dust mite proof mattress cover and new pillows. Changing filters in the air handler of your heating and cooling system frequently can help cut down on airborne allergens in your home's interior. If there's no joy with the recliner, your PCP/GP has several lab tests that should indicate weather or not you have an allergy. If the tests are positive, he should be able to get you a consult with an allergist. Another way to find out if you're dealing with an allergic reaction is to ask your PCP for a short prednisone taper. If the pred taper is sufficient to drop your CH frequency, start looking for the cause. Hope this helps. Take care and please keep us posted. V/R, Batch
    1 point
  3. Stephen, by bet is on the D3 Regimen. It has done so much for so many!!! My last cycle was 8 months long, all night, every night. That was over 3 years ago now.. First I noticed the ramp up was slowed and the hits were lower on the pain scale. Then they stopped. Yes, I do still get the occasional hit. But no cycle!!!! If you ever want to 'test' the regimen, then stop for two days. That is all that it takes for me to get hit again. Then back on the vitamins and the hits vanish again. Congratulations on your new life!
    1 point
×
×
  • Create New...