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i have had lyme a couple of times in my life. covid reactivated the dormant borreliae in my body. i suggest you find a doc who specializes in lyme disease since it can develop into neuro-lyme and that is no bueno. as for mushrooms: can't hurt but the headaches caused by the bacterium won't be touched by the shrooms. please got to a doctor.

Boston Doc Rocks! Tony, Gonna pepper you with a few questions: Can he do a prednisone taper? It won't fix him, but might get him some temporary relief till you guys find something that works for him. Was he sticking strictly to the 5 day dose schedule when using mm? Did he trip? Or was the experience muted? What does he eat? Anything with Tyramine can and will cause his attacks to be more frequent and more intense. Eliminate anything that's high calorie (no cake, pie etc) Eliminate anything that's fermented (no real cheese (the cheese whiz stuff in the can isn't really cheese at all, and is ok). Tons of stuff we eat on a daily basis are fermented or aged and are high in Tyramine. (soy sauce, any meat that isn't SUPER fresh, vegetables more than a few days old (high in tyramine). Anything preserved, also high in Tyramine. J

Tony, please be sure that he is doing his 'post' breathing for five minutes after the pain has stopped! If not, it comes right back for most and we all want to abandon ship when the pain is gone. DON'T!!! It will return with a vengeance! And that ups the number of hits per day! His D levels are quite low! 85nmol/L is about 34 ng/ml. We want it to be above 80ng/ml or 85ng/ml. So, more loading is needed to get there. Yes, I agree that he needs a new D3 test! He also likely needs more D3. On the Melatonin, he can go up to 25mg. I used to go up to 30mg personally. I did not take it all at once, but in two or three doses as I was up with a hit at night. For me, Benadryl is more effective, but I used the heck out of Melatonin for years too. Is he eating 'clean' as they say? No MSG, booze, other stuff that kicks off the CH, right? Some give up chocolate and a lot of foods with a cycle and benefit from it according to them. I can't do booze or MSG. Bacon is still on the menu here. But others delete it during a cycle. Doc has a point too. Hopefully you can check into that bit as well. ATB and thank you for your tireless work for CHers over there!

Hi Tony, sorry to hear of this. To clarify- he is getting a good (but sometimes temp) response to O2? The attacks come on quickly to severe like CH? Night attacks mostly? Does alcohol trigger an attack? He has had verapamil? Tried high dose melatonin? Does he have sleep apnea? One could review the imaging as newer onset side locked headache in an older person should always mean reviewing imaging in detail- for instance masses outside the brain may compress the trigeminal nerve.