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Showing content with the highest reputation on 12/07/2021 in Posts

  1. Just wanted to come back to this forum after 5 years of being pain free from clusters. I have taken 5-10,000 IU of D3 daily and have not suffered from a single Cluster. It may not work for everyone but if you have yet to try this you might be missing out on something wonderful. Thanks an best of luck!
    3 points
  2. My portable tanks last 20mins .I've got 5 of them
    2 points
  3. ....now that's a good "problem" to have! similar success here with O2, which made the decision about when to use the last resort triptan harder. in my case had to use a combo of factors to know when. kinda depends on your cycles...mine 5-8 weeks on/off for yrs so knew just about where i was in most cycles (much harder when turned chronic, but cycles within that too). the worst hits (except for very last) were midcycle, always on high alert then. i knew only O2 needed for start and end of cycle hits. other factors: the faster a hit came on the more alert to a last resort screamer i had to be....and last but totally unexplainable, sometimes i could just tell...there was a certain "exquisiteness" of pain that was missing from most other hits. got pretty good at it and rarely missed....but always rueful since it meant being an "experienced" clusterhead.....which noone aspires to. may you continue to rapidly abort and not have to worry about "how bad" this one is gonna be ...thank you for your reports....somebody somewhere is sure to be helped reading your experiences....
    2 points
  4. Vipul so glad you have found that the 02 works for you buddy . It defiantly makes life more bearable. It took me years for my Neuro to priscibe it for me . It will become your best friend for life my friend. . I told my missus the other day that if any1 tried to take it off me know I'd probably comit murder .
    2 points
  5. So happy for your positive results Vipul! So very nice not to know how bad it would be, no?
    2 points
  6. This was brought to me by my youngest. The video is cool and I have enjoyed this band ever since. Yes, an extinct style today I suppose, but they were so amazing in their ability to do some many different sounds from one group. Very talented group in my book
    2 points
  7. I will do just that. Will find myself a portable one. They are made of aluminium, or steel if I'm not wrong and are supposed to be lighter as well. How much O2 does the e tank hold? Found something similar here. Attaching a pic.
    1 point
  8. ...ok, i get it...but that's only part way to a "normal" life. sounds like you have something like an m-60 tank (my home stash) which is way more portable than most welding O2 tanks, but still pretty cumbersome. i went to work every day for over 30 yrs with an e-tank on wheels for the office and one in the car for ANYWHERE else. i know you may not have ready access to one and the refilling... but you really should look into getting one or more... or similar. is life changing!
    1 point
  9. Hello, Started using O2, 3 weeks back and it's great to be able to abort an attack before the pain becomes intense. What I now notice is that because I abort the attacks immediately, I don't know if the attack was mild or severe. In other words I will not know if the cycle is tapering down till the attacks actually stop. Usually for me the pain level lowers as the cycle is coming to an end. Now when my wife asks me if it was a bad one or mild one, I don't know what to say I've been kicking myself for not having tried the O2 before. I didn't need to endure all that crazy pain that I did for the last 3 years. It was so severe that I planned to exit life on more than a few occasions. Really grateful to all the wonderful people in this forum for being angels guiding people like me all the time. love and pain free wishes to all. Har Har Mahadev
    1 point
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