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Showing content with the highest reputation on 01/31/2022 in Posts

  1. Yeah, I’m episodic and mine always start off sort of low key. They usually ramp up in frequency and amplitude until I’m going full tilt, 4-6 hits a night at peak. Although I’m not as clockwork regular as some. I’ve even had a few low level hits and then not gone into cycle. Like a miss or something. But usually when I start feeling pain on my right side, I get my stuff ready to rock. Better safe than sorry. I got caught out of oxygen once when a cycle started going, thinking maybe I’d miss, and I paid the Piper. One time of that was enough, I’m not doing a repeat of that debacle. So I concur with the seasoned veterans above. Time to get your stuff sorted. Better safe than sorry, and all that.
    3 points
  2. I must agree with the esteemed previous responders. My cycles do ramp up starting with more shadow level "warning shots across the brow" (a term I believe I am guilty of coining, although it doesn't exactly fit in my particular case, since I feel it behind the eye). So yeah I'd be moving right now on getting all those ducks in a row, and even backup ducks in a row. The stuff @BoscoPiko and @jon019 mentioned. Plus you've probably noticed a whole lotta headbangers have successfully prevented cycles with busting, as seen at the blue "New Users - Please Read Here First" banner/link at the top of this page.
    3 points
  3. I have a pair of rose/orange tinted FL41 glasses, it helps a lot with my light sensitivity which gets much worse during clusters (or hangovers, bright overhead lights, overcast days). It hasn't (and I didn't expect it to) stopped the cluster coming, just makes it easier to not live like a vampire or pirate with an eye patch. But as most of you on here, I'd give anything a go if it might help!
    2 points
  4. I wouldn't be surprised it were to end up being the if anything, like just a timing the beast has seemingly arbitrarily chosen this time around, as opposed to a dietary trigger, but heck, seems like no harm in tracking the diet and experimenting with it, in case there's actually something there that has become a genuine trigger.
    2 points
  5. Yeah seems like that’s what I’ll have to do. I’m also taking creatine but haven’t had a problem with that so far and can’t find much about ch and creatine. Going to quit the whey for a week and see what happens.
    2 points
  6. Hey Sue, Roughly 3% of CHers experience a spike in CH frequency and intensity shortly after starting vitamin D3 therapy. What appears to be happening is a shortage of vitamin D3 cofactors at the cellular level is causing this problem. These cofactors are needed to support the enzymatic processes that metabolize or more correctly Hydroxylate vitamin D3 to its genetically active metablolite 1,25(OH)2D3. There are a lot of moving parts to the hydroxylation process and other supporting enzymatic processes along the vitamin D3 metabolic pathway that are needed to support vitamin D3 enabled genetic expression. The following chart illustrates all the enzymes involved. A lack of vitamin D3 cofactors at any part of this process can cause problems. The best course of action should a spike in CH frequency and intensity occur after starting this treatment protocol is to stop taking vitamin D3 for a few days, but continue taking ALL the cofactors. This problem usually cures itself anyway, but following the above suggested process makes it happen much faster. Take care and please keep us posted. V/R, Batch
    1 point
  7. ....for me when episodic they all started that way...i suppose it's better than BAM... and you are in a cycle. ...get yur ducks in a row. ...OXYGEN? energy drinks? if used: prevent scripts updated? triptan scripts? busting supplies? headache specialist appt/call in? D3 regimen?
    1 point
  8. Hi Mr. Jaques, A lot of people with CH get what is referred to on here as shadows (mild but bothersome pain/headache) prior to an onset and some like myself shadow on a daily basis. Also is the headache on the same side that you had your last CH? It's hard to say if your remission is ending or if you just have some odd headache. Just incase you are going back in you might want to consider loading up on the D3 and co-factors if you do not take them on a normal basis you can find the loading instructions and list of supplements by poking around this forum. When you were diagnosed, did your PCP put you on any preventative meds or have you just been lucky and had the CH take a hike for four years? I hope you just have a strange headache!
    1 point
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