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Showing content with the highest reputation on 01/27/2023 in Posts

  1. I so understand how this could be a favorite as I have a hard time believing that there is a Cluster Head out there that hasn't had this awful thought plague there mind. Sometimes it's hard (especially in the beginning) to imagine living forever this way. As for tracking meds and attacks, I initially used my outlook email calendar. I still shake my head when looking back and seeing my loggings of migraine. I no longer track the attacks as they have continued to morph, making tracking somewhat silly. There is something to be said about a diligent documenter and has proven helpful for some in the past. I now focus on things like supplement packaging, dosing levels and odd happenstances like warning signs as well as the last time I ingested something outside of pharma. Excel is a great tool as you can easily auto sum or create neat formulas like (cell such and such equals this or that). Now days I try and pre-package everything from morning intake, evening intake and for fuc8ks sake intake. It just makes my life a bit easier being able to grab a baggie although I do get the odd looks at Michael's craft store when buying out the small sized drug looking baggies...
    3 points
  2. ...same here....but that was because every cycle/triggers/pattern was same for 23 yrs when ECH. for me pointless, but still believe can be a valuable tool to detect subtleties of importance... ....seems we have discussed this a few times and i thought there was a newer version of journaling, but the search function fails me....perhaps someone recalls that thread(s)? ....one of my favorite diagnostic stories...and i believe from National Migraine (now Headache) Foundation newsletter... was the physician who noted, and used in diagnosis: "boy, you folks (clusterheads) sure do seem to all journal, i see it consistently". it was kinda implied as an OCD component of CH that i really don't know is valid or not ¯\_(ツ)_/¯. but i agree, we do seem to have the need.... ....the other favorite was the physician who asked, and considered a definitive diagnostic indicator of CH, a positive response to the question: " have you thought/considered/contemplated suicide?" is called suicide HA for a reason, and i firmly believe an absolutely essential question for any diagnostician....sorry for the thread divert...am easily distracted... "
    2 points
  3. 2 points
  4. Anyone else catch this last nite? Seems that the nat geo film crew made a visit to the clusterbusters conference this past year and included that video footage in this documentary titled "LSD.. the psychedelic revolution"...season 1 episode 3......many familiar faces including our fearless leader Bob W!! DD
    1 point
  5. Nothing wrong with doing as such and in fact it can be therapeutically beneficial. Seriously, it's high time for a cluster head to develop something usable by us thunder bunnies! Keep on keeping on!
    1 point
  6. Wha?! Did not know, gotta check this out - thanks for the hedzup DD.
    1 point
  7. hi Sam...welcome ...yes on RC... ....see the blue banner at top to start: "new users-please read here first" lotsa good stuff...feel free to ask any questions best jon
    1 point
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