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Showing content with the highest reputation on 02/04/2023 in Posts

  1. ....the only thing i can add here is how CRITICAL it is to start oxygen at the FIRST sign of a hit. for me there was a very small window.... and if i missed it NO amount of O2 was gonna work. if you've ever had a cat that would suddenly and seemingly for no reason go tearing out of a room...that was me. it amused my colleagues.... ...there are various breathing techniques and different ones work for different folks. most successful reported to be hyperventilation...can/should be started on way to tank. slow,deep breathing in/out worked best for me, added benefit of being calming, breathe and hold another. try them all, try a combo...all the motivation i needed to find the "right" one was provided by CH itself........
    2 points
  2. a red bull has about the same caffeine as an 8-ounce cup of coffee. some people think that other ingredients in red bull make it more effective than coffee alone. it could be that if you get the oxygen working properly you can get a satisfactory end to an attack without caffeine. if you use the bag method that i linked you to, flow rate is not an issue. but 95% O2 is generally not as good as 100% from a tank.
    2 points
  3. [Note: I was writing this as Bejeeber posted his reply.] Many people use Red Bull. The differences between Red Bull and the smaller energy shots like 5-Hour Energy are (1) It's harder to quickly drink down an 8 ounce Red Bull than a 2-ounce 5-Hour Energy, and (2) even though it is smaller, the 5-Hour Energy actually has twice as much caffeine as the Red Bull. But as I say, many people do fine with the Red Bull. Many people like whatever drink they use to be very cold. As I mentioned, you could also try brewing some strong coffee and keeping it on hand for when an attack comes. A concentrator is not a good idea. It does not make pure oxygen like what you get from a tank, and usually the flow rate is very low. In the previous posts in this thread, there is discussion about the kind of mask you have. It is kind of shocking to me that you can't get a non-rebreather mask. It is important when using oxygen that you get as much "old air" out of your lungs as possible, by deeply exhaling, and then fill your lungs with oxygen by deeply inhaling. In a system with a bag, the oxygen is held in the bag until the next time you inhale. With the mask you have, the O2 keeps flowing. That just wastes a lot of oxygen, and I think it might encourage a kind of "normal" breathing instead of the deep inhales and exhales you need to stop an attack. Maybe you could make your own bag, as described here: https://clusterbusters.org/forums/topic/4919-batchs-hyperventilation-red-neck-bag/. It's not the same as a nonrebreather mask, but it would serve the same purpose for you. (Some people think it's not a good idea to keep a bag full of O2 sitting around in your home.)
    2 points
  4. @Racer1_NC Help, please! I asked Racer for help because I don't recognize this system. Most people find that some form of caffeine ingested just as you are starting the O2 will significantly speed up the abort. Often, that's in the form of an "energy shot," such as 5-Hour Energy, but for some it can be just a strong cup of coffee, and some favor other energy beverages, such as V-8 Energy. I can't tell from this what your mask is, but a nonrebreather is the best way to get O2 for CH (or a demand valve, or the mask that is made for people with CH (the ClusterO2 Kit), but those all work on the same principle, that you get pure O2 when you're ready to inhale).
    2 points
  5. Cluster Mask from clusterheadaches.com. HERE I'm sure DJ will ship anywhere but the cost will be increased to cover it. This is the best mask out there that I know of.
    1 point
  6. The regulators I've seen like that haven't been high flow. I could be wrong, I certainly have not seen everything. CCH....what country do you reside in? Yes, tanks can be heavy. There are different sizes available in the US. Perhaps an inquiry to your supplier could give you a better idea of what they carry. The chart below will help you with the different sizes. As CH father has stated, better masks are available and provided a link. I urge you to check them out. I'm sure shipping out of the US can be arranged. Better regulators are also available from various sources. A Amazon example that would fit your tank. The concentrator you mentioned wouldn't be a good fit for you trying to abort a CH. Not enough flow rate and not pure O2. Bill
    1 point
  7. Red Bull is known to work well, yes - many, many have used it, and at least at first it was the most widely used for helping to abort CH attacks.
    1 point
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