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Follow your instincts & wisdom & knowledge of your own body, Jimmy. Adaptation for survival. On Verapimil you wrote on November 21st: "...it makes me feel very "off" and like I'm going to have a heart attack or seizure. And I feel very nervous exercising or exerting myself while (I) take it. " Being active & outdoors on average 2+ hours/day is the game changer that shifted my "new normal" for my Chronic CH. We are all unique physiologically & changing too. Exercise sounded insane to me 16 years ago when I had Episodic CH. When you are able to go 5 days without meds that are blockers (& cause rebounds) it may be possible to try busting again with better results. Have your O2 ready & cold caffeine if a CH hits. Ginger soft gels & CBD/THC help me with nausea. Still busting every 7 days since starting out with every 5 in September after getting hit at the CB Conference & getting rescue O2 & compassionate support & encouragement from our CB family. Grateful. Best wishes.

Not sure what a "Normal" life is anymore. My new normal is to deal with things one day at a time and adjust. I know I am going to get beat down with a massive cluster at any time of any day so I am always ready to fight back with whatever I can. I keep oxygen in the car at all times, I have it in my office at work keep a triptan injection near by as much as I can and a 5hr energy drink in my pocket. I can no longer drink alcohol so my new norm in a social aspect is water and coffee. I am not shy or hiding my clusters so when someone who does not know what I deal with and comments about not drinking or avoiding some sort of smell I tell them how it is. I can no longer burn a candle, my wife can no longer ware perfumes and depending on how my clusters are on any given day I need to avoid other scented things like cooking dinner. This is my normal life, not great but it is what I have so I embrace it and know things could always be worse. The new normal and I still love it.

Hi everyone. Some of you may know me from a few posts in the closed section of this Forum earlier this year, and remember that I’ve been doing some amateur research into the circadian and circannual rhythms of clusterheadaches. After months of research, I was able to identify what I think triggers migraine and CH cycles. Considering how to make this information generally available, I decided to write a story about it. (But don’t get it twisted: the story may be fictional, but the science comes from actual research.) Anyway, here it is: THE CYCLES OF THE BEAST Description: During a chance encounter in Lisbon, Will and Laura come to learn of a disease that has been described as “the worst physical pain known to man” - like being stabbed through the eye with an icepick. Patients call it “The Beast” and it attacks its victims in cycles that can last for months, to then mysteriously vanish as sudden as it appeared. When they spot a pattern in the daily and seasonal peaks of the Beast, Will and Laura know there’s a job waiting for them. You can get it through amazon here https://a.co/d/enpEemE