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Hi everyone, I’m new here and just wanted to say how grateful I am to have found this forum. Like so many of you, I’ve been navigating the challenges of cluster headaches and all the confusion, frustration, and pain that comes with them. I’ve tried a few things, some that helped a little, some that didn’t—but I know I have a lot to learn. More than anything, I’m here to connect with others who get it. Sometimes it’s just good to know you’re not alone in this fight. Looking forward to reading through your stories, learning from your experiences, and hopefully finding some new ideas or inspiration along the way. Wishing relief and strength to everyone out there.

I had the pleasure of meeting Sammie during Headache on the Hill in March as she was part of our Texas delegation. https://www.theguardian.com/science/ng-interactive/2025/apr/23/cluster-headaches-magic-mushrooms-psilocybin?CMP=oth_b-aplnews_d-5

Wow! Outstanding article. Thank you.

Hi everyone, just wanted to say hello. I've been reading this forum for a long time, as has my sister, and figured I'd pop in. CH has unfortunately been a staple in my family. My mother had them, my two older sisters, and myself, I just turned 40. One sister has gotten past the CH after her 2nd child, and my other sister had success with Botox. These things have flat out ruined life for me up to this point. Between dr hopping and multiple scans and medical bills, it has been tough. Nasal sprays and injections were the only way out for years. Oxygen helped a little. I've seen every neurologist around me and never had much success. A few years ago, I started using prednisone to get breaks when I was at my breaking point. But that stuff rips you apart after a while. I've lost friends, hopeful relationships, and countless years of my life because of these things. I was also diagnosed with trigeminal neuralgia which just added more confusion. I've always poked into this page for a little bit of hope when I thought I couldn't take it anymore, and it always helped me out seeing success stories. I'm now dating someone who understands what we go through and has been an absolute rock for me. I'm fortunate. Last week the dr prescribed verapamil at 240MG day, which I tried years ago, and it didn't work, and finally, I got some relief. I didn't expect it to work, but it worked immediately which I thought was odd. But I'll take it.. I've looked over this page for years, tried every medicine there is, and was really losing hope, but I just wanted to say thank you. There are a lot of people out there who read but don't chime in but benefit greatly from the topics discussed here. Sometimes I think just reading about other people in the same boat as you can be tremendously helpful. but currently I'm on day 4 without a headache, which is INCREDIBLE for me. I feel like this page is full of unsung heroes. Thank you so much everyone.