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Showing content with the highest reputation on 01/26/2021 in Posts

  1. To be blunt, the couple of 'absolutes' I have seen in this thread are a bit disheartening. With just a quick search 02 is effective at total or partial aborts for 70-80% of patients, there are still patients, such as me, who get little to no relief from any flow rate of 100% o2. As for imitrex, it was 100% effective for me, for about 6 months, then I began getting 1 in 4 times that it failed to do anything, up to a point when it was about 2-3 in 4 that failed to work, so with the associated cost, other considerations I stopped using them. I am a refractory chronic ch sufferer with 5+ attacks daily, from all the other reading here I have seen many many variation in efficacy to treatments, to suggest if one thing does not work then you do not have this hellish thing, is a bit of a slap to those who do have this and are getting fucked because shit is never 100% with ch. Other than it 100% sucks.
    2 points
  2. ...point taken devonrex..... your situation breaks my heart and i mean no disrespect.....there are no absolutes for clusterheads.... ....sometimes the decades of frustration with the medical community and insurance companies that have failed us through indifference and ignorance gets to me.... i find it especially hurtful when some of the tools that help so many are unknown, misused.... or thrown at us in a useless manner.....and an opportunity to save so much anguish is lost...
    1 point
  3. Thank you, devonrex. I appreciate your caution about this, and will be more careful. I could quibble with some of your points, but what you say is wise and appreciated, and I will remember it.
    1 point
  4. Jesus Shot. A 2021 update! Dr. Rick is now in charge of the Program. Absolute success. I took it on the 15th January 21; and the chronic pains i have struggled with for years are gone i should have done this sooner and it would have saved 10s of thousands of dollar and many painful stays in the hospitals. Last time i could not bend my legs and feared a wheelchair for life. The pain is gone and the condition went away almost instantly. No gimmick and no trick. End your suffering. BOB- Texas
    1 point
  5. You are so right about it having a habit of changing.. I got my first CH when I was 23 (I am now 62), and it has changed and morphed over the years. I just started the vitamin regimen in 2016, had no cycle at all in 2017-2018, had a light cycle of "shadows" in 2019, I am now at "what I hope" is the end of a cycle that started early December 2020... Even though this has felt like a full cycle in frequency, it is much lower on the pain scale, and they are not lasting as long. I really hoped when I went the 2 years PF, I was going to be one of the lucky ones that would never have one again, but I keep telling myself they are not a fraction of the pain level I am used to, and they really shorter, The first thing I do when it starts is look at the clock, have been for years.. and I watch A LOT less of the clock these days Good Luck!!!!!
    1 point
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