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Everything posted by cluster

  1. LSD - Acid tests Research into hallucinogenic drugs begins to shake off decades of taboo http://www.economist.com/node/18864332?story_id=18864332&fsrc=rss
  2. And here is the original version, free full text for a limited time, no registration needed: HTML: http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4610.2011.01856.x/full PDF: http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4610.2011.01856.x/pdf
  3. The full story about Dr. Hakim's Warfarin study, free full text at MedScape, free registration required: http://www.medscape.com/viewarticle/742009
  4. http://www.youtube.com/watch?v=adBC2wIEB7g Happy Birthday Bob!
  5. Just in case this hasn't been posted before: Podcasts for Patients: Cluster Headache - Acute and Prophylactic Therapy http://www.headachejournal.org/view/0/podcastsForPatients.html#cluster Avi Ashkenazi's paper is here, free full text + free PDF download until the end of May 2011: http://dx.doi.org/10.1111/j.1526-4610.2010.01830.x Ashkenazi A, Schwedt T (February 2011). "Cluster headache-acute and prophylactic therapy". Headache 51 (2): 272–86.
  6. Summary in plain English: 67 chronic CH sufferers (attacks n = 3-6/day, duration 35-67 min) previously unsuccessfully treated with lithium, verapamil, corticosteroids, topiramate and gabapentin became completely pain free after 2 – 3 injections with Leuprorelin 11,75 mg. 49 of these 67 chronic CH sufferers have been completely pain free for more than 4 years. 18 of these 67 sufferers had a relapse 10-15 months after the treatment with 2-4 attacks/day which disappeared in a week following 1 injection of leuprorelin. Please see http://en.wikipedia.org/wiki/Leuprorelin for more information about the substance. There was a successful RCT with a single injection of 3.75 mg leuprorelin = leuprolide acetate published in 1993: Nicolodi M, Sicuteri F, Poggioni M (August 1993). "Hypothalamic modulation of nociception and reproduction in cluster headache. I. Therapeutic trials of leuprolide". Cephalalgia 13 (4): 253–7. Abstract here: http://dx.doi.org/10.1046%2Fj.1468-2982.1993.1304253.x Some of the results of this RCT from the full text: Does anybody here have some personal (good or bad) experience with the Leuprorelin treatment?
  7. Have a look at this abstract: http://www.abstracts2view.com/aan2009seattle/view.php?nu=AAN09L_P02.168 John Claude Krusz "lives" here: http://www.anodyneheadachepain.com
  8. http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1269814078
  9. EHMTIC (October 2010). "Abstracts of the 2nd European Headache and Migraine Trust International Congress (EHMTIC). October 28-31, 2010. Nice, France". J Headache Pain. 11 (Suppl 1): S2–150. The free full text here: http://dx.doi.org/10.1007%2Fs10194-010-0259-3 … includes the following abstracts: 88 Sustained efficacy of occipital nerve stimulation in drug-resistant chronic cluster headache after up to 5 years treatment. 115 Treatment of cluster headache using peripheral nerve stimulation; a case report 142 Age at onset and gender ratio in cluster headache: clinical observations over 15 years 166 Involvement of latent Herpes Zoster Virus in the development of forehead allodynia and aggravation of cluster headache (2nd report) 178 Chronic headache in paediatric age (incl. CH) n.b.: "( chronic cluster headache is more frequent in young females than in males …" 180 Leuprorelin as therapy of chronic cluster headache refractory to conventional prophylactic therapies and deep brain stimulation: open label observation 182 Propofol narcosis in refractory chronic cluster headache 183 Features of cluster headache refractory to conventional therapies and deep brain stimulation 216 Two cases of cluster headache relieved by pregabalin 219 Low prevalence of chronic cluster headache and aura, and uncoupling of sense and behavior of restlessness in Japanese 223 Markers of endothelial activation in primary headache disorders (incl. CH) 226 Levels of nitric oxide metabolites in cerebrospinal fluid in active cluster headache 237 Orbital myositis posing as cluster headache 262 Is subcutaneous stimulation of the greater occipital nerve the invasive treatment of choice in patients with chronic headache syndromes? 274 Memantine for prevention of cluster headache: a possible new treatment? 292 Two cases of cluster-like headache secondary to surgical intervention 293 Prophylaxis therapy of the episodic and chronic cluster headache with zonisamide: an open study 312 Illicit drug use in males with cluster headache compared with that in the general population: a cross sectional survey 332 Central facilitation of trigeminal nociceptive processing in episodic and chronic cluster headache 334 Greater occipital nerve infiltration with cortivazol for cluster headache (CHCI): a double blind randomized controlled trial 371 Unilateral and bilateral trigeminal autonomic symptoms in cluster headache 389 Headache and BOTOX®: a case report of hemicrania continua responsive to botulinum toxin type-A 428 Successful treatment of cluster headache with the antihistamine terfenadine 438 Hemicrania continua-like syndrome after ipsilateral lateral medulla infarction with significant painrelief on occipital nerve stimulation 481 Diagnostic delay and misdiagnosis of cluster headache 483 Secondary headache in periodontitis (incl. CH) 500 Use of cannabis among cluster headache sufferers: frequency and effect on attacks 502 Twenty years of mid-face cluster headache diagnosed as ‘‘TMJ’’ 538 Injections of the greater occipital nerve in episodic and chronic cluster headache - efficacy and safety of 113 injections 546 Evaluation of habituation patterns in cluster headache 549 Burden of disease in cluster headache 559 Cluster headache-like headache in an eight-year-old girl: case report 585 Subcutaneous occipital nerve neurostimulation; treatment for refractory headaches ... and some more!
  10. Best wishes for a successfull treatment! Some stuff to read: http://www.acta-clinica.kbsm.hr/arhiva/Acta2009/Acta3/15.pdf (PDF) http://www.blackwell-synergy.com/doi/abs/10.1111/j.1468-1331.2007.01738.x http://www.ncbi.nlm.nih.gov/pubmed/11595003?dopt=Abstract http://www.ncbi.nlm.nih.gov/pubmed/11464360?dopt=Abstract http://dx.doi.org/10.1046/j.1468-2982.2000.00046.x
  11. Springer publications for free! No registration required. No strings attached. Simply click on the links below to view or download all content from the top journals on SpringerLink, now through November 30th. * Neurological Sciences. Volume 21 / 2000 - Volume 31 / 2010 * Journal of Neurology. Volume 1 / 1891 - Volume 257 / 2010 * Virchows Archiv. Volume 1 / 1847 - Volume 457 / 2010 * More ...
  12. Yes, me too. CH since 1999, sleep apnea diagnosed 2001, CH diagnosed 2005. The CPAP machine did not change CH but improved my wife's and my life a lot. In any case sleep apnea has to be treated, otherwise heart problems may develop. Wikipedia has tons of information: http://en.wikipedia.org/wiki/Sleep_apnea
  13. Jes Olesen: 5-Hydroxyptryptamine 1F (5-HT1F) receptor agonism. A possible new treatment principle for acute migraine attacks http://cep.sagepub.com/cgi/content/long/30/10/1157
  14. More: http://pubs.ama-assn.org/media/2010a/0906.dtl#2 http://archpsyc.ama-assn.org/cgi/content/short/archgenpsychiatry.2010.116
  15. Two examples: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1278639620 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1221233650
  16. Please see http://www.petitiononline.com/headache/
  17. Health On the Net Foundation survey about the evolution of Internet use for health purposes: http://services.hon.ch/cgi-bin/Survey/Survey2010/quest.pl Wikipedia about the Health On the Net Foundation: http://en.wikipedia.org/wiki/Health_On_the_Net_Foundation
  18. There was also some research in Munich, Germany, please see: http://dx.doi.org/10.1007/s10194-007-0400-0
  19. http://clusterattack.com A must read! I just missed a => Table of contents of Dr. Andrew SewellÂ’s weblog
  20. Quite a while ago maalstroom translated this text: http://www.ck-wissen.de/ckwiki/index.php?title=Cluster_Headache_Triggers from our German website into English.
  21. cluster


    If you can, visit Pamukkale, gorgeous place: http://en.wikipedia.org/wiki/Pamukkale We enjoyed a couple of great days at the http://en.wikipedia.org/wiki/Turkish_Riviera Have a good time!
  22. Published online today: Matthias Karst, John H Halpern, Michael Bernateck, and Torsten Passie The non-hallucinogen 2-bromo-lysergic acid diethylamide as preventative treatment for cluster headache: An open, non-randomized case series Cephalalgia first published on March 26, 2010 as doi:10.1177/0333102410363490 [OnlineFirst PDF]Â Free full text until March 31st, 2010 http://cep.sagepub.com/cgi/rapidpdf/0333102410363490v1 Found here: http://cep.sagepub.com/pap.dtl
  23. Thanks Tommy! If the link in Tommy's message doesn't work, try this one: http://www.ft.com/cms/s/b396de10-180a-11df-91d2-00144feab49a,dwp_uuid=34c8a8a6-2f7b-11da-8b51-00000e2511c8,print=yes.html
  24. Hello Bob, thanks for checking. Here is some more (and newer) information about lisuride: Abstract: http://www.ncbi.nlm.nih.gov/pubmed/19937319 Free full text here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2797624/ Lisuride is still available in the pharmacies in Germany and in some other countries.
  25. Has anybody had (or ever heard about) experience with Lisuride (sold as Dopergin, Proclacam, Revanil) for cluster headaches? Please see here for more details: http://www3.interscience.wiley.com/journal/119540278/abstract http://en.wikipedia.org/wiki/Lisuride
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