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Dallas Denny

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Posts posted by Dallas Denny

  1. Anyone else catch this last nite?  Seems that the nat geo film crew made a visit to the clusterbusters conference this past year and included that video footage in this documentary titled "LSD.. the psychedelic revolution"...season 1 episode 3......many familiar faces including our fearless leader Bob W!!

    DD

    • Like 4
  2. On 10/28/2022 at 3:38 PM, Shaun brearley said:

    as for conference thanks I didn't know anything about it . It's only 2 hour drive away 

    So happy to see you're going to attend this inaugural event @Shaun brearley!!

    I'll never forget my first patient conference in Portland in 2010! 

    Be sure and give my good friend and our vice president of clusterbusters.org, Lady Ainslie, a big hug from me!

    And BTW, I second the jeebsters notion of your sharing your story if they have openings for speakers dude!!  If you'd be up for it I can definitely put Ainslie in touch with ya bud!

    DD

    • Like 3
  3. I'll chime in with a ditto on the need for a neurologist (preferably one who's also a headache specialist) and an MRI!!

    The thing that stood out to me in your last comment is the length of your 3.5 hour attack last night!!  Ima go out on a limb here and assume that you're not using high flow O2 to abort your attacks???  I've experienced those long assed hits before I found out about O2 so I would urge you to push for a script when you get in to see a neuro doc!!  

    Dallas Denny 

    • Like 4
  4. Hey ya'll!!

    Been a minute since I've posted!!  It's been a hectic few months since my Dad's passing but things are finally starting to slow down so hope to have a little more time for the forum!!

    Had hoped to be in Chi Town today, (hung over from last nites presidents reception and shenanigans that inevitably follow), but couldn't get the stars to align so just want to wish everyone safe travels and a great conference experience!!  DO NOT, I repeat, DO NOT participate in the chip challenge if invited!!  Lmao!!

    DD

    • Like 3
  5. Thought this might interest those of ya that incorporate energy shots with O2 to abort.....a good clusterhead buddy came for a visit this weekend and told me about these.....called Pure Kick and available here in okieland at Dollar General, 6 pkts for a buck!!!  Charles just mixes one in a bathroom sized Dixie cup and keeps it in the fridge....tosses it, hits the O2, aborts, and mixes another shot before he goes back to bed and sez they work just as well as the 99 cent shots that DG carries!

    DD

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    • Like 2
  6. Happy New Year ya'll!  Hope everyone enjoyed the celebration......meh, I turned off the tube, put on my jammies, and went to bed at 8:30!

    So , I ran across this poem by our very own @Fast Eddie ....I'm fairly certain it's posted here but it's been a long time.....I first heard it at either the Portland conference in 2010 or Las Vegas in 2012 when Eddie recited it....great poem by a great guy!

     

    ‘We call each other clusterheads"
     by Eddie Langford

     

    There are many types of headaches
     I'm sure you've had your share
     From stress and strains and migraines
     To a sinus one here and there

    But let me tell you about one friend
     That puts them all to shame
     This headache is a demon
     And a cluster is it's name

    To see a full blown cluster
     Is a very scary sight
     It can happen in a moments time
     No matter day or night

    It is the worst pain known to man
     It will put us on our knees
     We pray someone will knock us out
     And give us some relief

    We call the start a shadow
     A sensation in the brain
     That says "the demons coming back"
     To taunt us once again

    The brain turns into cornmeal mush
     The eyeball starts exploding
     We moan and cry and rock our heads
     There’s no doubt how bad we're hurting

    We call each other clusterheads
     Our tiny little crew
     Of others who are just like us
     Who know what we go through
     So please don't say you understand
     Just what we're going through
     Unless you are a clusterhead
     You haven't got a clue

     

    DD

    • Like 8
  7. Appreciate all the good wishes ya'll!

    Got the MRI and follow up visit with the doc....left feeling pretty damned confused!!

    Said MRI indicated surgery was needed but because my pain level has reduced significantly and that since I'm in fairly good physical shape otherwise, along with the risks involved by surgery his advice was to take it easy and come back in if the pain becomes unbearable again....

    Feeling kinda anxious about the whole deal but really can't afford to go see another doc for a 2nd opinion right now so I reckon I'll just keep on keeping on!

    DD

  8. Welcome to the community @Kprice, sorry you needed to join us!

    I've been around these online cluster support communities for 15+ years and I can't recall ever seeing the symptoms you've described!

    There has been evidence of triptans causing rebound headaches and many folks subscribe to the school of thought that the can extend cycles.

    Since you're new here I would urge you to look into the vitamin D3 anti inflammatory regimen in our clusterbusters files section!  It works very well for many folks and should lessen the number and severity of individual hits at the very least!

    Dallas Denny 

    • Like 2
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