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Dallas Denny

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Posts posted by Dallas Denny

  1. Lmao!  I caught that as well @Brain on fire......let's see now....I learned about welding oxygen from Marc from down in Bastrop Texas in 2007 on DJ's site.....this site went live in Oct of 2009.....this guy came along in his previous incarnation in 2015.....AND I can assure you we was spreading the message far and wide and loud and proud when he got here so I'm really not sure what he thinks he's taking credit for.......BUT THAT AIN'T IT.....and in the eternal words of Potter,  I call BULLSHIT!!!

    DD

     

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  2. G'mornin Cast Iron and welcome to the community....sorry you need to be here!

    Excellent first post...you left nothing out for us to question you about that I can see!

    I do find it sad and ironic that you live in one of the few countries where "busting" supplies are legal and readily available but your personal convictions eliminate that option!  However, that being said, I'm afraid your dependence on rather high doses of verapamil to manage your clusters would make it extremely hard for you to titrate down to a level that would  be conducive to busting anyway...

    From the various reports on Emgality both here and on Facebook it seems to me that efficacy thus far is hit or miss....much like most options we have available to us as clusterheads!

    Sending positive thoughts and painfree wishes from this side of the pond!

    Dallas Denny 

  3. Agree with the minimalist approach @MRUPE!

    Although I highly recommend the D3 regimen solely bbased on the "anecdotal evidence" that I've witnessed as it was being documented over the years, I don't personally use it.....when I got here 10 years ago I committed to "busting" as a treatment and didn't want to "muddy the water" by adding the D3 and then not knowing for sure which strategy worked!!  When I got here I viewed clusters as a curse but thanks to this place it's become an annoying inconvenience!

    DD

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  4. 21 minutes ago, MRUPE said:

    Hi CHfather, 

    Without control groups how can someone suggest the other assorted vitamins and minerals are important?  I understand there is research to suggest Vitamin D deficiency in headache conditions (migraine and cluster) but little to draw a causal link, let alone justify supplementing numerous pills? 

    G'evenin MRUPE!

    Batch, who came up with the vitamin D3 regimen, is an old Vietnam era Navy fighter pilot, and a fellow clusterhead with a chemistry degree!!  You're correct in that there are no double blind trials, however, Batch has been collecting survey data from the many clusterheads who've had tremendous success with the protocol since he came up with the it almost 10 years ago.....that data shows a efficacy of around 75%!

    I couldn't begin to tell you how it works but I've listened to Batch speak at our yearly patient conference and I can tell you that there's a sound reason for each of the co factors and that they all work in correlation with each other.

    Dallas Denny 

  5. mail?url=http%3A%2F%2Fr20.rs6.net%2Fon.j
    mail?url=https%3A%2F%2Ffiles.constantcon
    mail?url=https%3A%2F%2Ffiles.constantcon
     
    Clusterbusters Has Exciting News for 2020
    mail?url=https%3A%2F%2Fimgssl.constantco
     
    Dear friends,
     
    For nearly 20 years, Bob Wold has managed Clusterbusters as a volunteer. He takes our desperate calls in the middle of the night, answers emails, travels, organizes, and sacrifices time with his family in order to ensure that every person living with cluster headache has the best life possible. His efforts in education, driving research, and support are unprecedented and unparalleled. In addition, Bob has held a regular job to help support his family. He does all of this, likely working 80 or more hours a week in total, with so much kindness and without complaint. He also lives with the same crippling disease that we are fighting to eradicate.
     
    We are living in a special time in the headache community. More attention is being given to research and to our disease. We have received tremendous support from the research community and even more amazing support from our own patient community. It is time for Clusterbusters to make a change. We have a growth opportunity, but we need to focus.
     
    Consequently, Clusterbusters is proud to announce that we have asked for and received Bob's resignation from our board of directors. He is no longer our president. Instead, we have hired him as our Executive Director. He will now work under the direction of the Board of Directors full time to carry out the mission and vision of Clusterbusters that he developed in the early part of the 2000s.
     
    As the position of President of the Board has been vacated, I have been asked to serve as the President and I have accepted this position. I am so proud to be able to continue to serve this community that has given me so much. Thank you all for your support.
     
    As you may know, we have added Ainslie Course to our Board of Directors. We are excited to include her as this will help us to grow and expand our reach. Thank you, Ainslie, for adding your talents and light to our community.
     
    We will be continuing to grow our amazing organization. We are so proud of Bob Wold, those who came before us, and all of the accomplishments of Clusterbusters, and we are looking forward to helping to shape a better future for everyone living with cluster headache.
     
    Sincerely,
     
    Eileen Brewer
    President
    Clusterbusters
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    Connect with us
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    Clusterbusters | P.O. Box 574, Lombard, IL 60148
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    Update Profile | About Constant Contact
    Sent by eileen@clusterbusters.org in collaboration with
     
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  6. Sorry to report that we have lost yet another clusterhead sister who opted for suicide as a solution to escape the pain!!  Marie is from France and leaves behind two young children and her husband!  We have lost soooo many to this hideous affliction in the past few months!!

    DD

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  7. Good that you have a firm diagnosis Bass!  Even better that you're getting an O2 rig together....high flow oxygen be it medical or welding is a clusterheads lifesaver!!

    The Clustero2kit that you have on order is the Cadillac!!  But, to be completely honest, I'm not sure how you'd go about sourcing a standard non rebreather mask from a local supplier without a script for O2.....you might inquire at a durable medical goods supplier.  Hopefully someone else with experience will be able to direct you on this matter! Good luck!

    Dallas Denny 

  8. Congratulations on your long "REMISSION"!!  

    But, I have to agree with Chf and BOF....there is no "CURE" for ch to date and your post is highly suspect by saying you're cured and then not elaborating.....but then again, it would be hard for you to elaborate since a "cure" doesn't exist!!

    DD

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  9. @CHfather. I found the old clustercluster.com site in 2007 by clicking  the "clusterbusters" in the old ch dot com navigation bar.....it was strictly a website then with all of the info that's in Tommy D's files and there was one of those password protected "Yahoo groups" for discussion......I know the vast majority of us who joined this forum when it went live came from DJ's board because the launch was announced there so have no idea how we would have found this place thru a search back then!!

    Bless you DJ!

     

    Dallas Denny 

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  10. I'm going to go ahead and post this a few days early as I may not have the time this weekend!

    This board went live on October 27th in 2009! I joined that day so it will also mark 10 years of active membership here for me as well!!

    We all owe a deep debt of gratitude to DJ for helping with getting the original yabb powered board up and running!!

    I can honestly say that being a part of clusterbusters this past 10 years has been by far the most rewarding experience of my life!!

    DD

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  11. Hot damn Brian!!

    That is some OUTSTANDING FECKING NEWS dude!!

    When do you arrive in Big D?

    I'm leaving okieland early Weds morning for my 88 mile journey to Grapevine....all but the first 5 miles of gravel county road is major freeway and tollway driving and I don't even have to go thru the Metromess to get there!!  Wooo Hoooo!

    Almost (but not quite) makes me feel guilty for saying that...lol.....I have two longtime clusterhead friends coming.....Lady A left Scotland for Germany this morning to hook up with Hans and fly on to Dallas.....she's already in the air and they won't get to Big D til early tomorrow!!  Yeah, maybe I do feel a little guity!!

    Stopping along the way to pick up a case of Colorado Koolaid longnecks to go with that pizza!!

    Safe travels my friend and see ya soon!!

    DD

  12. G'mornin Clovis!

    The regulator you have is insufficient for most clusterheads!!  When I tried O2 for the 1st time it was with an 8 lpm reg and it wasn't effective!  Most of us need a minimum of 15 lpm and many folks use 25 lpm regs.

    DD

  13. Hey 8!

    I know several chronics that are having very good results with ketamine nasal spray. From my experiences with the VA that would probably be a hard sell with any of their docs though!  When I still relied on the VA for medical treatment they let me have 9 imitrex dose packs per month....are they only giving you the imitrex pills?

    DD

  14. Welcome to the community Willy!!  Sorry you had the need to join us!

    Good to see that you have O2!!

    I'd suggest that you clue your doc in on the sumatriptin (imitrex).......for the vast majority of clusterheads the pills just don't work fast enough.....the imitrex nasal sprays work a bit better, but if you have to resort to the use of trex, the best option by far is injections.

    The best thing you can do in my opinion is read up on the anti inflammatory vitamin D3 regimen in our files section......you can start on it immediately once you have acquired all of the co factors but you will need to have some bloodwork done to establish your baseline levels.......we've watched this regimen work in folks life with ch for closing in on 10 years.....works well for about 75 to 80% of folks to either reduce the frequency and intensity of their hits or become painfree!!  The originator of the regimen, Batch, is active on the forum so ask any questions you might have and someone will have an answer!

    The last option is busting and you'll also find extensive info on that in the clusterbusters files or the share your busting stories section of the forum.

    Dallas Denny 

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  15. @Freud

    Yup, will touch on important points of PF Tek, coir/verm substrate Tek, substrate pasteurization process, dub tub Tek using BRF cakes spawned to coir substrate, growing LC in karo/water via MS inoculation, and drying and storage procedures without using a dehydrator......a lot to try and cover in an hour and a half so I'll probably have to do a separate question and answer session sometime on Saturday if it can be worked in.....I'll be getting to Dallas mid morning on Weds so I can get everything prepped and set up

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  16. I'm honored to have the opportunity to share my knowledge and experience during 2 "grow demos" as part of this years conference agenda!

    I've been working on a PDF file documenting all of the Teks and processes that I'll be presenting for several months now and will be putting the finishing touches on it this next week!

    I've done it all on my Samsung Note and am too technically challenged to figure out how to transfer it to my laptop in PDF format....but our conference chairwoman has assured me that she'll "git r done" for me when I get to Dallas the day before the conference begins.

    All that to say this.....if you're planning to attend the conference and want to get the PDF, be sure to bring a thumb drive with you......the doc contains a lot of pics and is extremely large so I feel like that will be the easiest, fastest way to distribute it!

    See ya'll soon!!

    Dallas Denny 

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  17. @BKP

    Exactly why I never use the term "headache" outside the confines of these online support forums or in the company of another clusterhead!

    I have a neurological disorder called Trigeminal autonomic cephalalgia which causes extremely painful head and facial pain.

    And, I also use the brain freeze analogy when describing the pain to a non clusterhead!

    DD

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  18. Yes, unfortunately I did Jerry!  TBH, my take from the whole deal was it was more about "bruised egos" than anything else!  Having met him, I was really quite fond of John and have the utmost respect for doc Sewell so I didn't take sides but was incredibly sorry to see dedicated cluster advocates at such odds with one another!

    Dallas Denny

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