kate

Hello again. Is there any particular Benadryl recommended? Shall i get the Benadryl plus capsules? Also any particular ginger capsules? There are a lot on Amazon. TIA.

Thank you! I haven’t touched coffee, tea or milk since i was three years old. Coffee being the worst smell for me. I never thought of ginger capsules though. Will order some now. Also will request a vitamin D test. Pretty tough getting to even speak to a GP atm but will give it a go. Meanwhile will get some Benadryl tomorrow. Really appreciate the help.

Thanks so much for this information. Unfortunately I gag at ginger. I haven’t tried Benadryl but have taken 2 Ibuprofen together with paracetamol earlier today. No effect. I tried RC seeds years ago for quite a while but had no improvement. I tried D3 regimen for 8-9 months. I didn’t notice any difference whatsoever so eventually stopped as it was very expensive too. I also took 2 taurine tablets this afternoon. Made me shaky but didn’t lift the shadowing.

Help needed please. Does HRT affect Cluster? Just started on a low dose. Not on any other medication. I normally can get 6 months after dosing twice with LSD. After only two months its back again! Shadows are bad. I ‘necked’ two cans of Red Bull but had a bad turn. Drained of colour and shook all over. Used to help in my forties but now in my sixties. It was quite scary so was wondering how everyone else deals with shadowing? Im unable to get shrooms at the moment and when i can they are very expensive. Tried growing my own but was a disaster. Suggestions please.

Hello all, I started the D3 course two weeks ago. I have seen no improvements to my heavy shadowing. Should I now reduce as have been taking the loading doses? It got so bad that I had to dose with MM which I did twice as usual. Still no relief from shadowing. Any advice welcome, thanks

Thanks Dave. All still looks complicated. I’ll order what is in the photo in the link and go from there.

Good afternoon all. I have been reading about the D3 regime. Simply put, what do I buy and how much do I take? How often and for how long please? Im in England. TIA, Kate

So far so good. Thanks for all help and advice.

Hello again. Thanks for your advice. Im not suffering like others. Hopefully thats a thing of the padt when life was not worth living. As i said i have not suffered a full on attack in years thanks to fellow clusterheads. The shadows are scarey enough. Where are you from? Im in Kent.

Hello, when first starting using alternatives I used the seeds regularly but didn't have any success with them. Shall I wait five days and use shrooms again? Hello. I always used to use RC seeds and it was a long time ago so can't remember how many. About 60 I think. They made me tired and felt like i had a hangover but can't remember them helping at all.

Hello Filacibin. I always knew about the rule but I was told many years ago that it was 3-5 days. I always did the third day but must admit that my second dose hasn't worked well for a while now. At the moment i'm left with heavy shadows so will try again Monday which will be my fifth day. Or will it?.......I dosed Saturday with about 2.5 g of shrooms and then again last night (Wednesday) with 3g with no effect. When should i try again? Monday? Thanks

Hello, when first starting using alternatives I used the seeds regularly but didn't have any success with them. Shall I wait five days and use shrooms again?

Hello, I have had an excellent response to shrooms, so much so that i have staved off any full on attacks for about ten years. When i get warning signs I dose with 2-3 grams of shrooms. This has increased from 1g over the years. I was going six months to a year but since December have had to dose six times. I have always dosed twice each time with the second dose on day three. I am on day three now and took about 3 grams earlier. Apart from my gums hurting, eye drooping I am not affected. I dont know how to get hold of any LSD or would try that. Getting really worried that my good luck is finally running out. Any advice would be appreciated. Thanks, Kate

Hello. I remember that feeling so well! Where do you live?

I don't think the LSD is good as apart from a restless night nothing happened. It's usually an unpleasant experience which is why i stick to shrooms when I can. I'll just have to see how I go and meanwhile get a grow kit. Thanks again.

Okay. Thanks. Will take your advice. Difficult choice as I don't know how it will affect me this time and my daughter is two days overdue with her second child. I intend to be at the birth.... Will keep you posted. Thanjs again.

Thanks so much. I will take your advice and try LSD again. Over the years I have always dosed on the third day but I believe you are right. The trouble is I'm not sure if I should dose again tonight or see if the shadows disappear on their own as its normally a week before it settles down but taking mixed drugs Im not dure if Ive done enough to stop my cycle starting......

Hello all, this is my first time in years that I have needed advice. I have had such a success story with shrooms over the years that I don't suffer full on attacks but finding myself without any shrooms or powder I panicked when my usual warning signs came on recently much quicker and stronger than normal. I managed to get hold of LSD but it took about three hours to kick in by which time I was asleep and just saw colours and slept fitfully. On the third day I took another cube but absolutely nothing happened. I was shadowing heavily and then managed to take 2g of shrooms. They were strong and stirred things up as I normally would expect. That was a week ago. I am still getting shadowing and need advice as to whether I take another cube or the 1g of shrooms that I have left? I am working on getting a grow kit. My story was on the old site. If anyone remembers me from then my name is Kate Greenfield.

Same here, always started off an attack so much so Ihad to avoid big stores with perfume counters....

Hello all. i'm in need of advice. I'm off to Crete on holiday tomorrow for two weeks. Just my luck that Cluster has decided to come back. I last dosed in November with shroom powder which was all i could get at the time. It took three doses to break my cycle. My question is this: will I get away with taking 1.5 grams through customs? One dose today will not enough to abort the cycle. Help please.

Hello everyone, I've not been on for a while but thought I'd share a story with you. I'm English and moved to Holland nearly nine months ago. I've had a really hard time getting work so was happy to hear that a coupe wanted an English speaking person to childmind their two children twice a week. I met with the mother of the children and we were both happy to go ahead. She wanted me to go to her house the very next day so that the children could start getting used to me. I was completely honest with her and after hearing that her husband had worked at Queen's Square (and was a neurologist) told her about my Cluster. The next day I received a call from her saying that as much as she liked me her husband wouldn't feel comfortable leaving his children with a person who has cluster. I had explained to her about my 'treatment' and that I had not suffered an actual full attack for years due to maintenance dosing but according to her husband I am in remission which could last 5-10 years but come back any time. So.....sacked before I started LOL How ironic that it was a neurologist who knew Professor Goadsby. :

Calling, Ben, Peter Carl and Phil. There is a newbie on site who needs your help. Her name is Laura and she's Dutch. She is getting desperate and suffering up to eight attacks a day. I've promised her your help....and if you don't, you will be receiving threatening phone calls from me! :-) x

Hello All, does anyone know of any English speaking Dutch Cluster sites (or people). It would be handy to know as I am moving from the U.K to Nijmegen in April. Thanks, Kate

Do you remember Carl, me saying to you.....you try it and if it works, I'll hav a go. God, I'm sooo glad that I did! I remember the hell of detoxing like it was yesterday. To think that I once thought Sumatriptan was my life saver! :-)

Thanks so much for that. I'm going to have everyone I know watch it now. :-)