nolaNancy

Will there be any hands- on sessions on how-to grow mycelia medicine at this years conference?

I've never understood why the discriptions of CH don't mention a postdrome phase when so many of us experience pain "shadows", anxiety, foggy thinking, slowed movement, etc. Postrome is an accepted part of migraines.

hi- sorry I took so long to reply- bad habit of mine to not reply to emails, which just increases the isolation. I've had the HA for 15-+ years. In remission, but I can feel it creeping up on me- usually get a cluster in April. Funny you mention a woman MD in Chalmette, I've been to her too, some years back. Tried to tell her about cluster busters, headache on the hill. Not interested. I just read some of your posts from Nov. Please call- I wonder if you ever got your grow together? I could use some support, encouragement w/ the mycology. I agree busting is the way to go. Just getting a little anxious about the coming season. Almost tempted to try the Pred. taper the MD offered, but in general, I'm not a fan of conventional meds. At least not for Cluster Headache! Best, Nancy

Hello- are you still looking for people in S LA? I live in NOLA- I'd like to contact others here who have/understand the condition. I found this site 4 or so years ago, but haven't been here for a long while, unable to access the "new" forum, and then browsing the Facebook page for support and information. I've busted in years past, it worked, but I got complacent, and now stuck in a very bad 6 week cycle. (ECH) Sometimes I'd like to actually talk to someone, not type.

Hi; yes there is a website, also Facebook page. Sorry I'm not technically able to supply links. This will be the 33rd annual Fest; it's a big deal in mushroom circles. Really, it's just alot of mushroom fun! Also, it is ALL about mushrooms, and I understand very medicinal mushroom friendly. I've never been, always wanted to.But of course, I don't travel so well because, for one thing, i'm scared of the Beast hitting on me. Ain't that stupid? There must be at least one Clusterhead who's attended.:-)

Anyone here attending the 2014 Telluride Mushroom Fest? Ever been? They will have a track about the medicinal properties of 'shrooms. Someone from John Hopkins will be speaking about the clinical trials with MMs. for cancer patients with depression, etc.

the company Philips makes a product called "goLiteBlu", Light Therapy. You can Google, take a look at their website. I got one of these years back, used it until I "blu" it by trying to plug it in using the wrong transformer; now THAT was some SAD because I bought it myself. I was told, then, that it was covered a medical device in Canada, EU. It seemed it regulated melatonin, they have specific prodicols, lots of info. on the website. At the time did not know I was ECH .Hey, Ricardo,I always appreciate your posts,' cause you seem like a smart guy,make interesting connections, but this stuff w/ the sunlamp, NOT!( Y'all be careful about your eyes, no fun to be 57yrs, maculardegeneration, cataracts, my experience. Also, I think CH predisposes us to these eye issues because of the contriction/dialation in the smallest blood vessels in the eyes when experiencing an attack. But that's another topic.

Hi: I just read your method. Do you trip at the dose you recommend?

CLUSTERHEADACHE: It's not science fiction. It's not science fiction: People walk among us, silently, fearing at any moment the Monster that attacks their head with savage pain, and leaves without a trace. Until tommorrow. Just like yesterday. Cluster: the attack of the Monster.

me too, first Conference. I'm tearing up again reading your post! However I can't see the pix for some reason, didn't load.

sorry, that face-y thing didn't work. :-(

sorry I missed it! I was visiting Chi-town at the time.http://www.clusterheadaches.com/cb/yabbfiles/Templates/Forum/default/cheesy.gif

thank you for the replies. The company I mentioned,Oxygen2Go, is the only company accepted by Delta on it's flights, and there is a 48hr notification rule: that is they need to have a note from yr. MD.  Brew? is the cpap machine you have high flow enough to abort an attack? My usual fly ritual is slam a couple liters of H2O (that's alot) before security, and keep water loading the whole trip. Must of missed a sip last week. And brush my hair,and walk the plane when I feel it coming on.(and how weird is that?) This has worked pretty well for a couple years! good advice re: laminated scrips. It's not so easy passing security w/ the regulator! And I hope to get a note from my MD, because 1) I can't talk very well during an attack, and 2) I can get a mite belligerent when someone asks me what the heck is going on. (I guess some of y'all may be familiar w/the above symptoms:it sucks, and it's part of the THING : the cluster of Cluster I call it.) Â

Hey there: has anyone used Oxygen2Go services for airplane travel? I just tryed to speak to someone there, and she wasn't very helpful; or pleasant. I had an awful attack last week on a plane:I mean writhing around and pounding my head into the seat(K8+) I'm traveling by myself. I can't imagine what it looked like to other passengers, very dramatic.( Dosed last night. Shadowy and fatigued today. I hope it WORKS!) thanks.