ob1kanobee

I'm beginning to feel a little nervous myself. I'm going on 3 months now myself of these darn headaches. I was huffing oxygen last night a few times for about 20 minutes each time. Well lets say I was up to 20 minutes the third time. I was having a hard time staying awake once a little relief came while on the O2. I'm taking D3 regimine and I've upped my D3 to 20,000 IUs per day for the last week or so. Seems to have helped but this cycle should have ended by now. The most I've ever gone before was maybe 10 weeks in cycle. I'm now around 12 weeks. Last cycle last year the D3 regimine knocked it out in no time flat. This time not so much and O2 is taking forever. It almost feels like I've got tension headaches combined with Clusters at times too. I've been under a great deal of stress so I can't imagine that helping the situation. Being that I'm super stressed I'm afraid to dose to high with RC seeds as my setting isn't really desirable. I checked my blood pressure the other night after work and it was 134 over 95. My blood pressure is usually 115 over 80 or less. I'm also guilty of not drinking enough water. Red Bull seems to help tremendously where in the past, not so much. I'm going to ask my doctor for Imitrex pills for when I don't have access to O2. A Red Bull along with that and even a little O2 if I can get it would only make me have say 20 minutes of moderate pain I'm guessing. I feel the Imitrex pills are needed as a standby. I've never tried them though. Anyone have experience with Imitrex pills? One other thing, last cycle and every one before that, I had quit smoking. I'm wondering if that is one of the culprits perhaps. Maybe if I quit smoking it will help end this cycle?

I get my O2 from a welders supply house. A few weeks ago after I had been coming in like every 10 days, the guy remarked, "what a ya doin, huffin this stuff"? I replied "well I knew one day you'd ask and as a matter of fact........". He's cool with it and said it works wonders for hangovers. My brother suggested I look into a career as a welder this way I could get all the 02 I wanted even at work lol. Don't recall what I'm paying per month for my 3 tanks but I'll look and see. I'd drain my bank account if I had to for O2. Thankfully my cycle seems to be coming to an end. I'm dying to have a couple of beers. I wouldn't suggest telling the welder people what your using the 02 for. This guy was just curious after the last few years and especially since he never saw a fella supposed to be welding wearing a shirt and tie at times lol.

That sucks. My O2 doesn't seem to work as fast as it used to either. I'm in Orlando area (Sanford/Lake Mary). Hope you find comfort soon. Are you incorporating D3 regimen as well?

Thank you Renee for that detailed information and also the others who responded including how the light effects LSA. Great information by all! In regards to my first LSA dose of 15 seeds, I was just testing the waters. This cycle is lasting longer than I expected. Last year the D3 regimine seemed to have worked better though this year it no doubt has helped limit the number and intensity of the attacks. As of right now, I'm mainly getting hit at night before I go to bed. I also get hit anytime I take a nap. As soon as I wake from a nap I feel like I have a really really bad hangover. Extremely foggy thinking/head with the headache coming but O2 stops it. My head also feels like it is asleep at the same time because it tingles big time like a leg or an arm that has fallen asleep (best I can describe). Wonder if others feel these same effects? I prefer night time attacks over daytime because during the day I'm on appointments with clients. I was in a one on one training last week being trained on a health product and damm if I didn't start to get an attack. I could feel my left eye drooping and neck starting to hurt. The trainer was looking at me funny I swear. He had to go search another part of the office for something I would need so I told him I had to get something out of my car. I went out to the car to breathe O2 and came back. Real PITA these cluster headaches!Â

I don't recall reading anything about floating the seeds first. This is news to me. Now I'm wondering how many of my 15 were floaters. Errrrrrrr What's this floating process? Can someone elaborate on it? I can't believe I don't recall reading about floating. >

Well I did only 15 seeds last night. Slept really good but don't know if the seeds had any play in that. Had a headache this morning while driving to a meeting so I had to BWD (breathe while driving). In 5 days I will double the dose to 30 if I'm still getting hits. There is some powder that doesn't get used from crushing on my motar and pestil so I'm not getting a true 15 or whatever amount if seeds.

I crushed up 25 RC seeds to a fine powder last night around 10:00 pm and added to water (soak) with the intentions of drinking it but fell asleep. Can I drink this same cocktail tonight or do I need to start all over again which would mean I have to throw out what I made? I don't want to waste it. How long is it good for? I'm sure I'm not the only one who has done this. It was 25 seeds BTW

How many seeds do you take and exactly what side effects do you dislike? I ask because I need to do this myself but I'm nervous about wigging out and I'm not sure how many to take. Numbers range across the board depending who you ask. Sorry to hear they are back.

In the meantime are you not able to get a Clustermask, regulator and use welders oxygen? I would give that a try and not even mention it to my doctor and right now it sounds like your doctor is MIA. My doctor who is just a general doctor wouldn't prescribe me oxygen either. He doesn't understand CH. So I had to take the bull by the horns and go get my own oxygen. I looked on the Internet in Canada for welders supply and there were all sorts of places. I would think you could rent or buy a tank. You just can't tell them why you want it. Luckily my oxygen guy doesn't ask and I don't tell and after a few years of business I don't think he would care.

I've just prepared some RC seeds and they are in water (only 10 but I have 200). However, I just read where Kudzu may interfere with busting and I've been taking like 3 of those per day. Should I drink it later anyway or should I wait for 5 days of no kudzu? I mean if I have to wait maybe I should just try the 10 seeds anyway since I'm such a chicken and see if 10 cause any undesirable effects? Advice?

I'd get on the D3 regimine right away. It's helped me reduce the severity and number of headaches however as I post this I'm sitting here hooked up to my Clustermask and O2 tank. I'm hoping I have enough oxygen to get me through the morning then I'm off for refills.

I'm in Florida but I'm sort of confused about this study. Are they doing anything if Testosterone levels are normal? Is the study over? I'm in Orlando / Central Florida area.

Just an update. Last night I slept all through the night. The night before I was awakened by another headache but it was mild and aborted with o2. I had taken the normal 12mg of Melatonin and was having a tuff time going back to sleep due to anxiety unrelated to CH (well sort of) because just knowing you have CH brings on a certain amount of anxiety on top of everything else going on in life I guess. Anyway I took a nap today and that brought on HUGE shadows like I was feeling like I had a really bad hangover. Took some o2 for that and felt better. I'm starting to wonder if I'm low on Testosterone. Seems I have all the symptoms for that. Interesting reading on that and the link with CH. I'm also getting a bit more interested in trying the busting with the seeds. I'll have to look and see how that's done again. If someone has link with the instructions please post it. I have the seeds in the freezer from last year when I ordered them. I was really hoping my D3 regimen alone would stop the CH but I'm getting impatient. I will say it has definitely made the headaches much less in frequency and severity and I mean much much less (so far......ya never know with the Beast). The seeds I have are RC seeds and I have 100 of them. They have been in the Freezer in a freezer bag for a year. Are they still good? I'm wanting to possibly do a low dose. I don't want to experience any (if possible) psychedelic effects. I would like to keep those effects at a minimum if possible. The thought alone makes me anxious.

As if these headaches didn't exist before the telephone. Idiots! I'll agree there is merit to sticking to a schedule, proper sleep environment and learning to shut down but cure? Give me a break man!

Just an update. 3 days 3 nights straight no headaches no shadows after starting D3 regimen on the 13th. So since last night and 2 previous nights and 3 days I've been pain free. Did not do the seeds, yet. I've also been taking Kudzu 3 to 4 pills per day. Keeping my fingers crossed.

I went into Harbor Freight tools and purchased my O2 regulator just as an FYI. It works on all of my welders tanks for oxygen. The guy at the oxygen place told me that welders tanks for oxygen are all the same threading (size, ect.) for the regulators. So far I have found that to be true. Medical tanks are different. As an asside, on eBay you can buy an apparatus with which you can transfer welders oxygen from a welder tank to a medical o2 tank. It's a special hose with special connectors. The deal is there must be more pressure coming from the tank with which you are transferring into the medical tank. Now I haven't had much success with this as I have tried but I either have a faulty transfer setup from eBay (think it may have a leak) or I'm doing something wrong. You have to me extremely careful if you ever do this and consider you environment. Don't need an explosion or something if ya know what I mean. I wanted to be able to do this so I could bring my oxygen more places where I would have easy access to it as opposed to being at say the mall or a conference recently where my car was a mile away from the convention center. I purchased the medical tanks of Craigslist usually where someone was selling them where the tanks had belonged to a deceased love one or family member. I would like to be able to go on a cruise one day and I have no idea how I'll be able to bring my oxygen with me. There's a lot of things I miss out on because I can't have oxygen ready. I'll have to start a thread on that to see what others are doing. Bear in mind I have no script for oxygen from my doctor. Also sometimes there is just no place to put it. PITA

Welders oxygen = no doctor needed. Run up and down stairs or do lots of push-ups or both when attack comes. Start D3 regimine. I don't have benefits either but don't know that I would use them if I did. I hear horror stories about people with CH taking these synthetic drugs and their condition getting worse along with the likelihood or possibility that they may start getting the headaches daily with no breaks (chronic). So far I've manged to take care of this without a doctor but couldn't have done it without my good friends here.

Don't procrastinate on the O2. For many it is a lifesaver but you have to follow the directions explicitly in my opinion. I think that is why O2 doesn't work for some people because they aren't doing it exactly right and then again for some it just doesn't work. Also, if you get an attack and you don't have O2, try running up and down a flight of stairs several times or push-ups. We don't have too many stairs here in Florida so I run around in circles and do push-ups. I call it the cluster dance. Also I have a thread I started here and a little about me. Well if you read it you will see I have tried that D3 treatment that you can do yourself with over the counter stuff like vitamin D3, kudzu, calcium pills, Omega-3, Melatonin and juice with a high concentrate of Citric Acid. This took me out of cycle last time. I just started it again after almost exactly one year ago today coming here (even though I've had these headaches for years). Good luck! I'm off to bed after I take my special 12mg of Melatonin and hope the beast doesn't wake me.

Well they are back and it is exactly one year ago today I was here. This really stinks because today is my first day starting with a new company and I have training all day and tomorrow. As soon as I fall asleep at night I get a mild hit. So far the days have been headache free. Today I will start the D3 routine again since it seemed to work last time. I'm going to buy another welders tank today. I have my seeds in the freezer that I ordered and never took. Gonna go now and I'll report back when I can. My eyes are sore as hell and I have to go look at computer screens all day and tomorrow. errrr

Just wanted to check in. I have been headache free pretty much since starting the D3 regimen. I'm also taking melatonin at night. I'm convinced the D3 regimen. followed exactly as the directions indicate have ended my cycle. I haven't taken the RC seeds yet.

After hearing all this, the last place I want to be is in this hospital. We can treat ourselves better than these doctors can apparently.

My seeds came! Can I take less than 50 RC seeds? What is the least I could take to reap some benefits? I'm a woosie when it comes to this kind of stuff not to mention I have anxiety. I have anxiety medicine from doctor (Colonzepam) and sometimes I even freak a little when I take one of those. I want to ease into this. :-[ I stopped taking Kudzu. I'm on the D3 regimen but getting some bad shadows. Haven't had a bad headache in a few days since starting D3.

Well I started the D3 regimen last night and took 9mg of Melatonin. I woke up 2x after I went to sleep but the hits weren't as bad as usual. Then this morning I had two small hits around 10 a.m. to 11 a.m. Drank a Red Bull and more O2. Now as I write this I'm having shadows. I shot some Sinus Busters for some slight relief but it doesn't last long. So tonight will be my second night of Melatonin and 2nd day of D3. I also went to Harbor Freight and purchased an o2 regulator so I have 2 now and just have to tote a mask around with me. I also stopped by welder's supply house and refilled my BIG tank. I think the guy was surprised to see me so soon but I have been breathing o2 like crazy. I don't know how long it lasts a welder but in this economy I don't think he cares what I'm doing with it. I have made friends with the guy anyway. My biggest fear is running out of o2 or being some place where I can't get it and have an attack. Has anyone tried probiotics in the mix for CH? I read where Dr. Ohira's probiotics are supposed to help with clusters. I'll try and post a link. " 5. L clostridium, that results in morning sickness, migraine and cluster headaches." FROM THE LINK http://www.crohns.net/page/C/PROD/OMX1030 MORE ARTICLES: http://headacheandmigrainenews.com/probiotics-for-ibs-study-review/

I have just got back from getting everything for the D3 regimen and will start this evening. I ended up going with Mr. & Mrs. T Margarita Mix for the beverage. I'll also order my seeds tonight. Something interesting, at least I think is that lately I have been craving citrus flavors. Instead of my usual fruit yogurt, I bought all lime flavor at the store. Also, I have been eating/craving those Sour Patch Kids candies. When I get Gatorade, I have been buying the lemon lime flavor. I was just telling my girlfriend this and I thought it was interesting since this just started about 2 weeks ago with the headaches hitting.

How many seeds should I order? 50, 100, 500 ???? THANKS!