Fabalicious

Hey Yall! OMG I read all your messages and you guys make me cry! i love you all so much! Thank you for your well wishes. and update on my condition, I had been feeling some chest pain and tightness for a while, it was starting to get a lot worse along with shortness of breath etc etc. Mentioned it to my doc (yes the hot one lol) He promptly sent me for the echo, which led to a stress echo , which i failed miserably. Then had a heart cath. Has anyone had one of these? the word SUCK does not even begin to cover it. But long story short....my long term over use of Imitrex (REALLY long term and taking about5 times the allowed dosage) weakened my heart...a lot. It also did some damage to the vascular structures. My own fault. I should h ave stayed within the recommended dosage...but when you having such frequent visits from the beast you tend to just want the pain to stop without worry for the consequences. So the doc talked with my wonderful family and said I need at LEAST 3 months of TOTAL rest. The heart cath showed a really weakened muscle that is not beating efficiently ( in the beginning I was passing out just walking around in the backyard) but after all the rest and BOREDOM I am slowly getting a little better day by day. The ban from the computer was a decision made by my youngest daughter ( whose new nickname is Griselda, she- beast of the Gulag) because she said that I get too excited about things I read or hear while online. They did let me get on my phone to check FB. ANYway, I am recovering...and I have been told that although I will never get back to normal, and will have to take things easy, I will be able to get off lockdown after my next doc appt in May. I cant wait! i miss you guys SO much! OK gotta log out now...I hear Griselda stirring upstairs and if she catches me ...lol...HUGS HUGS HUGS! and ALL my love! see you soon! ;D

Bob...you ROCK!!! 8-)

That is INCREDIBLE! Thank you for getting the word out!...and your puppy is SO cute! :

Nice! I am going to speak to my doc about this on my next appt! Wishing you continued success and HUGS and most of all pain free wishes!

I am having the same problem.....I think what I saw was maybe a picture of the article? But its on my FB page...and on the FB page of "the other guys"...if yall wanted to see it. It doesn't give a LOT of info just a general description of the condition and that there is no cure...I just thought it was awesome that we are even mentioned...much less #1...That is a good thing as far as getting the word out. HUGS! PFW for everyone! 8-)

It is an article in the Sun newspaper (UK) by Dr. Keith Hopcroft that is titled "10 Illnesses so Bad They Terrify Even Me". Cluster headaches are #1, ebola is #2...lol I deleted the link....am going to look for it elsewhere and see if my NON computer literate self can get it posted... :

I agree with Tangerine and J...I was pretty casual about CH too ...until I went chronic....puts a WHOLE new light on things.

Maybe we should move this to the another board? I don't know if anyone is seeing it......or maybe they just aren't as excited as I am about the prospect? :'(

it IS an awesome article! This site also has several other videos and articles about psylo and its many medical benifets, to a lot of things including CH. So nice to see people getting over their preconceived notions and waking up to natures way.

BAM 8-)

I wish I could help but I don't even speak english properly

C for me as well....do you have a 3am time slot? ;D

That IS a great article Mox! I am putting it on my FB account if you don't mind. Thinking such as this is much more productive than the ways we have been dealing with things in the past. Thank you! HUGS!!!!!! hoping you are PF!

http://shar.es/1bRijI I found this article on Vitamin D. Its pretty interesting all of the things that a deficiency can cause.

It also does not say if he is episodic or chronic, my money is going with episodic.. at least they DID talk to a doc and got a little of the word out ...even though its barely touched on...maybe SOME people reading it will do further research and learn about them a little more.