Alx

My ramp up in intensity and frequency was from the 11 th of May, so I peaked a little early .

Same here. No real changes in frequency or intensity. Stijn ,Can you tell us what you expected to happen?

I’m in the fifth week of this cluster and last weeks have been hell. if it gets even worse today or tomorrow I will report.(I hope not

Over here as well. 6 attacks per day but I am just two weeks in this cluster usually the buildup is much slower. O2 isn’t helping much. Maybe once in 4 tries o2 worked als most every time until this cycle. I have to sit them out.in the hot shower again. and the L I took last Saturday was too old ? Friday is. My next busterday. I hope for the best. For all of us

having the O2 tank next to my bed and the portable tank. this takes away a lot of fear for me, I still don’t go out much when in cluster . I stopped drinking alcohol in and outside of the cluster. Regular time for waking up and going to bed. Avoid gas stations ,parfums stores. I try not to make big jumps in temperature.(warm weather //airco shop) Once 1 or 2 month a MM or L dose don’t get to relaxed and when I wake up(no matter what time) I have to get out of bed. It seems to work a little. I have been painfree for the last 2 years. but yesterday a few hours after MM. It is back… but on the wrong side,this only happend to me once.

+1 on I am on fluoxetine(Prozac) and mushrooms worked like they should. i only did the combi while out of a cluster , for maintenance.

+1 for hot shower. Before the diagnose and. Before O2 it was the only relief.

Ah at last the cure..;)

Thanks for the info, unfortunately I live in Holland and I do not have the means to come to Glasgow . i will look at the pictures and read the stories . Keep up the good work and thanks again!

I would love to see other clusterheads. Is there any chance for a conference in Europe in the future?

Took it a few weeks ago. Do it!

Thanks for the photos. I hope to join someday on a european convention.