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Alx

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Everything posted by Alx

  1. Over here as well. 6 attacks per day but I am just two weeks in this cluster usually the buildup is much slower. O2 isn’t helping much. Maybe once in 4 tries o2 worked als most every time until this cycle. I have to sit them out.in the hot shower again. and the L I took last Saturday was too old ? Friday is. My next busterday. I hope for the best. For all of us
  2. having the O2 tank next to my bed and the portable tank. this takes away a lot of fear for me, I still don’t go out much when in cluster . I stopped drinking alcohol in and outside of the cluster. Regular time for waking up and going to bed. Avoid gas stations ,parfums stores. I try not to make big jumps in temperature.(warm weather //airco shop) Once 1 or 2 month a MM or L dose don’t get to relaxed and when I wake up(no matter what time) I have to get out of bed. It seems to work a little. I have been painfree for the last 2 years. but yesterday a few hours after MM. It is back… but on the wrong side,this only happend to me once.
  3. +1 on I am on fluoxetine(Prozac) and mushrooms worked like they should. i only did the combi while out of a cluster , for maintenance.
  4. +1 for hot shower. Before the diagnose and. Before O2 it was the only relief.
  5. Thanks for the info, unfortunately I live in Holland and I do not have the means to come to Glasgow . i will look at the pictures and read the stories . Keep up the good work and thanks again!
  6. I would love to see other clusterheads. Is there any chance for a conference in Europe in the future?
  7. Thanks for the photos. I hope to join someday on a european convention.
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