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Chronic2017

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Everything posted by Chronic2017

  1. A family member just mentioned they heard Oregon Health & Science University (OHSU) is doing a study with Psilocybin and Cluster Headaches. I haven't found anything yet, but I'm still digging. Has anyone heard anything about this?
  2. Chronic2017

    Becoming unmanagable

    Welcome and sorry you have to be here. Hopefully we can help you out. Do you have Oxygen to abort attacks? The next thing I'd suggest is looking up Batch's Vitamin D3 regimen and start that asap. It's most helpful if you follow all of it, not just the Vitamin D. This helps a lot of us as a preventative. And finally, are you familiar with busting (if in cycle) or dosing with magic mushrooms as a preventative? I find there isn't one specific thing that reigns in the beast, but when using especially the Vit D and MM in combination, I can usually keep them under control and completely manageable. Hope this helps C17
  3. Chronic2017

    Out lying pain

    I busted this past weekend and about an hour in got hit with an attack. Weird thing about this attack is that it felt as if the entire right side (same as my clusters) of my body was "locked up". It's the only time I've felt such intense pain in my arm (or any other part of my body) that even comes close to a cluster. There was a wood stove going where I was at and it was all I could do not to walk over and lay my arm inside of it. The time dilation effects of the busting made this 3 hour attack feel like an eternity. I've used capsaicin in my nostril on the side I get attacks and it usually does a pretty good job of ending an attack within a few minutes. It stings, I'd say maybe a 7. I used it right at the beginning of this attack and literally couldn't even feel the burning sensation from the capsaicin because the attack was so bad. I was thinking about posting another thread because I was wondering if others have ever had the "full body" attack before, but then saw this one. Glad I'm not crazy. Any ideas on why this can happen?
  4. Chronic2017

    Does this sound familiar

    Moxie, have you ever tried the vodka for aborting a cluster?
  5. Chronic2017

    Avoid attacks for a short time

    I just realized this was posted a while back - Milelli where you able to give the talks?
  6. Chronic2017

    Avoid attacks for a short time

    Hopefully with the stress of giving a talk, it'll keep the beast away. Relaxing is a trigger for many, so maybe being a little nervous will have the opposite effect.
  7. Chronic2017

    Liver and busting

    You may want to repost this to the Busting board for privacy. I think you'll get more responses there.
  8. Chronic2017

    Cluster rules

    My understanding is that a person can go unconscious from a rapid increase in pain as it drops blood pressure. I have a sister in law who passed out slamming her finger in a drawer, but I don't think she got anywhere near a 10. A slower increase avoids this effect, so you remain conscious. During a 10 I remember thinking a primitive version of "how is this much pain even possible?!" I say primitive because even that short of a thought isn't really possible during a 10
  9. Chronic2017

    Doctor vs Patient

    Usually busting is using mushrooms, LSD, or seeds.
  10. Chronic2017

    Memantine / Namenda??

    I know this is an old thread but figured I'd share in the hopes that it helps someone. I've had CCH since July of 2017, went through the whole routine verapamil, O2 nothing worked well. In Spring 2018 was put on Memantine and it has noticeably helped. Side effects for me are actually positive as it greatly reduced anxiety at work, other than that no side effects. Currently 20mg a day.
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