Jump to content
ClusterBusters

81007

Advanced Members
  • Content count

    26
  • Joined

  • Last visited

About 81007

  • Rank
    Member

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. 81007

    Ketamine test on Dr.John Lilly

    There is a theory that ketamine can cause "neuroplastic repair". I had one session of ketamine IV therapy. I experienced a CH as soon as the ketamine wore off. I was hoping for at least a slight remission. My search goes on.
  2. 81007

    What if there WAS a CURE?

    I think dragon is right about a parasitical cause. I will post the results when the lab tests come back. I just pray that is not an unknown virus. Just remember the first airplane flew in 1903. Penicillin did not come about until 1929. Disclaimer: I maybe wrong about the hypothetical causative agent. I am not a doctor of medicine.
  3. 81007

    My chronic CH are the result of a virus

    I ask because I never had cluster headaches until I was around some barn cats. Particulary a feral cat. These cats are well known for harboring the parasite "toxoplasmo gondii" and this parasite is known for causing headaches. This parasite is also found in soil, cows, sheep,etc. Forutunately most patients infected with T. Gondii are asymptomatic. Links below are to the suspected pathogen and various research efforts. https://en.wikipedia.org/wiki/Toxoplasma_gondii https://www.researchgate.net/publication/263441459_Idiopathic_intracranial_hypertension_may_be_caused_by_reactivation_of_latent_cerebral_toxoplasmosis_Effect_of_various_diseases_and_clinical_states
  4. 81007

    My chronic CH are the result of a virus

    I am just curious Rainmaker, but were you ever around cats?
  5. 81007

    They’re back...

    A viral infection usually ends up as a bacterial infection. A bacterial infection can result in meningitis. Meningitis can result in death.
  6. 81007

    They’re back...

    Intense ear pain sounds like an infection. You need to see a doctor. I would go to an ER immediately. If left untreated, you could lose hearing in that ear.
  7. 81007

    Verapamil and stomach upset

    I have used Emetrol from Walmart with some success. It is basically a sugar mixture. https://emetrol.com/
  8. 81007

    anyone else entering fall cycle?

    It snowed last night. I woke up with the worst CH ever. I tried treating it with Indomethacin.No results from that medication. I tried 50mg sumatriptan and a 6mg injector. No results from that either. I ended up in the ER. Seems the weather changes are an EXTREME trigger.
  9. 81007

    Chronic Cluster a Year OR Longer?

    I had a remission of two months. I overdosed on folinic acid. I took ten capsules of 400 micrograms with 6 micrograms of B 12. I took them at 8PM and woke at 2AM to vomit. It got me two months of no CH's. Folinic acid is one medication of a toxoplasmosis treatment protocol. Folinic acid is the primary ingredient of Leucovorin. Toxoplasmosis treatment link below https://www.hopkinsguides.com/hopkins/view/Johns_Hopkins_ABX_Guide/540558/all/Toxoplasma_gondii
  10. 81007

    Risk / Dangers of Oxygen?

    Just get an oximeter. It will tell you if get too much oxygen. https://www.walmart.com/ip/Zacurate-Fingertip-Pulse-Oximeter-Blood-Oxygen-Saturation-Monitor-with-batteries-and-lanyard-included-Navy-Blue/757187983?wmlspartner=wlpa&selectedSellerId=0&adid=22222222227096424698&wl0=&wl1=g&wl2=c&wl3=212822171008&wl4=pla-408475254437&wl5=9029047&wl6=&wl7=&wl8=&wl9=pla&wl10=8175035&wl11=online&wl12=757187983&veh=sem&gclid=EAIaIQobChMIvqao4vyf5QIVRr7ACh1bzw70EAQYASABEgLrc_D_BwE
  11. 81007

    Chronic Cluster a Year OR Longer?

    I tested below 3 Igm Ige. Active infection is considered above 7+. My hypothesis is I am simply hypersensitive. I will post results if I am successful or not.
  12. You join the military. Become injured. They will help you.
  13. 81007

    Chronic Cluster a Year OR Longer?

    I have been chronic for over a year. I am now doing a trial of pyrimethamine, since I believe I am simply having arterial inflammation due a protozoan call toxoplasma gondii. Toxoplasma gondii is parasite transmitted mainly household cats. My hypothesis is that some CCH sufferers are having an inflammatory reaction to this parasite. Most humans are asymptomatic. This parasite can infect most mammals including farm animals such as sheep, cows, etc.
  14. 81007

    Ketamine Infusion

    I had a ketamine infusion for chronic cluster headache. The experience was quite pleasant. I had no real side effects. About 2 hours after the IV I had a pretty bad CH. I was under the impression a treatment would stop the headaches. The infusion lasted about an hour. Now I am finding out that for a remission to occur the treatment needs to last 4 days. Anybody on this forum receive this treatment?
  15. I'm getting O2 on a federal program. They are charging the government $36 per M tank. I use a M tank every 10-14 days as I am chronic. I usually hyperventilate O2 for 15 minutes per cluster.
×