Stevil Posted March 24, 2011 Share Posted March 24, 2011 Great News All....I GOT MY OXYGEN TODAY!! ;D After being turned down by Tricare to go see either of the HA specialists in my area, (because they were not on Tricares approved doctor list) I had one more place to try before paying out of pocket to go see one of the specialists, my Pain Management Doctor. Thanks to this site, CH.com and ALL OF YOU, I was prepared this time to do battle with yet another doctor. I had my regular appointment with my pain management doctor today.This time I came armed with a printout of every artical on Clusters and oxygen use I could find on ClusterBusters and CH.com's site. When the time came I asked how much he knew about Cluster headaches and treatment, he replied, he knew some about it but not much about treatment. So I pulled out all my printouts and we talked about them in great detail. He was amazed that he had never heard of oxygen as a treatment, and he even went and grabbed the other doctor on duty and asked him the same thing, again, new very little about CH's and nothing about oxygen. After reading the printouts both of the doctors were very receptive to prescribing me the oxygen stating that because I have been dealing with this for some time and because I had obviously done my homework, they were willing to do it. I had also printed out the instructions on the proper wording of the prescription, and he wrote it out verbatim. The doctor even asked if he could make copies of all the printouts that I had brought so he could do more research, I just gave him everything that I had brought. Before I left I stated that hopefully they would do the research about CH's and learn about treatment options, but more importantly they would prescribe oxygen first and foremost to anyone else suffering from this beast. They replied that I am the first patient they have seen that has CH's and that they would indeed learn more about it. I think its safe to say "WE" taught a couple of doctors something new today that might benefit more people in the future. Another good thing that happened today was when I went to the medical supply store to get the oxygen, the gentlemen who was helping me with all the paperwork told me that he knew someone who suffers from CH's and then asked me what "I Wanted" as far as what and how many tanks, masks and regulators I needed. He hooked me up with 2 "E" tanks for the car and work and a "H" tank for home, as well as high flow regulators and 3 non-rebreather masks. What was really cool was when he told me that they are normally in my area of where I live only on Wednesdays, but he said that I "NEED" the "H" tank right away and he would deliver it today. And he did! He showed up at my house not even an hour after I got home. (I am 50 miles away from where they are located) Now that is someone who cares and wants to take care of their customers needs. Also found out that Tricare will cover all of the oxygen costs. So THANK YOU Clusterbusters and all you incredible people for your support and information. I would not have found out about oxygen or how to go about getting it without all of you. THANK YOU from the bottom of my heart, you have given me what I really needed....HOPE and STRENGTH for a better outlook on life. Finally there is a glimmer of light at the end of the tunnel of despair. And I know that I am not going through this alone. THANK YOU THANK YOU THANK YOU! Stevil Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted March 24, 2011 Share Posted March 24, 2011 Your results at the doctors and at Tricare are nothing short of incredible - that has to be the most successful medical O2 procurement story I've ever seen. Good work and congrats!! Quote Link to comment Share on other sites More sharing options...
Hipshot Posted March 24, 2011 Share Posted March 24, 2011 Yippee Quote Link to comment Share on other sites More sharing options...
Stevil Posted March 24, 2011 Author Share Posted March 24, 2011 Also forgot to mention that I already received 2 O2ptimasks and recently ordered high flow (25+ lpm) regulators for both styles of tanks. Yes, I had faith that I would get a prescription for oxygen, one way or another. Stevil Quote Link to comment Share on other sites More sharing options...
CHfather Posted March 24, 2011 Share Posted March 24, 2011 This is GREAT news -- thanks for the heartwarming story. Nice going. Quote Link to comment Share on other sites More sharing options...
Bonkers Posted March 25, 2011 Share Posted March 25, 2011 Hi Stevil, Wow! I wonder how many people will benefit from your perseverance today? Not only did you get the primo oxygen set-up for yourself but the 2 Dr's you educated will inform their colleagues who will inform theirs, and so on. By sticking it out till you got what you needed, many other CHers will be able to avoid the hassle you went through and many Dr's will know how to better treat their patients. Thank you! Ron Quote Link to comment Share on other sites More sharing options...
alleyoop Posted March 25, 2011 Share Posted March 25, 2011 Way to advocate for yourself Stevil! [smiley=thumbsup.gif] Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted March 26, 2011 Share Posted March 26, 2011 Simply Outstanding! Jeff Quote Link to comment Share on other sites More sharing options...
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