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Posted

Have any of you tried Botox for episodic clusters?

I'm having a bitch of a time getting through my most recent bout and was thinking of trying it. Would love to hear any stories you may have.

Posted

I'm sorry, I've seen it discussed for years now, but haven't seen anyone report success with it for CH.  :(

I coulda missed something, I hope I'm wrong about it mainly being for migraines.

Posted

i am chronic and I tried Botox along with everything else.  The first night after the injections I slept pf the whole night.  The beast came back the next night and the botox seemed to have no effect whatsoever.

Posted

Botox helped with my shadows and migraines but does nothing for a CH.   I may try it again someday for the migraines but at $1,100 for a vial of botox not including the doctor visit someday may never come.

If you have very good insurance give it a try,  if you are like me you will try anything once for CH and who knows what doesn't work for some may work for you.

CH

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