trytosurvive Posted March 13, 2014 Share Posted March 13, 2014 IÂ’m curious, just sprung the clocks ahead 1hour for daylight savings time this past Sunday. I got hit last night hard enough to run for the o2 tank, felt like my teeth were getting ripped out thru my left eye. I havenÂ’t had to do that since October. Seems like playing with the clocks impacts my head. Does anyone else see this pattern? Going to MM bust ASAP I guess before it sets in. Quote Link to comment Share on other sites More sharing options...
DrTy2 Posted March 13, 2014 Share Posted March 13, 2014 Yes, Daylight saving time (DST) or summer time, and law time, or whatever you call it (when you change your time 1 hour ahead or forward), always messes with my CH, or can even trigger it to start. CH is all about circadian rhythms, so that's quite predictable. Quote Link to comment Share on other sites More sharing options...
trytosurvive Posted March 13, 2014 Author Share Posted March 13, 2014 Thanks for the info. Nice to have you on the board by the way. I have family in Perugia, supposed to go visit but havent been able to get away yet. Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted March 14, 2014 Share Posted March 14, 2014 DST is basically the stupidest idea ever, even if it didn't unleash the beast on the CH'ers of the world. WHY are we still doing this daylight savings time utter BS??!! Arizona and Hawaii [and POTTER] have abolished it, so what are the rest of us waiting for? Can I get an amen?! Quote Link to comment Share on other sites More sharing options...
weatherman Posted March 14, 2014 Share Posted March 14, 2014 Yup, the Beast is lurking around ....... Last weeks time change and the coming Equinox has rattled around the hypothalamus again. Time to start busting again. weatherman Quote Link to comment Share on other sites More sharing options...
trytosurvive Posted March 14, 2014 Author Share Posted March 14, 2014 Jeebs said Can I get an amen? Yep two of em!! AMEN,AMEN BUST AWAY!! Quote Link to comment Share on other sites More sharing options...
Potter Posted March 14, 2014 Share Posted March 14, 2014   So when I open up the face of my grandfather clock and push that big hand around one time my hypothalamus immediately goes wonky and I go into cycle? Edited to add: Bullshit.   That ain't circadian nothin that's simply mechanics.               Potter Quote Link to comment Share on other sites More sharing options...
DrTy2 Posted March 14, 2014 Share Posted March 14, 2014 You change all your daily rhytms. You eat, go to sleep, wake up, and even flush your toilet one hour later or earlier. So no, it's not bullshit. It's just a kick in your omeostasis metaphoric nuts, and when all circadian rhytms are screwed up, the one who's called out first to share all your body faults it's the hypothalamus itself. Quote Link to comment Share on other sites More sharing options...
Atlas Posted March 14, 2014 Share Posted March 14, 2014 For those of you in the U.S., there's a petition on whitehouse.gov to end DST: Â Â Â Â http://1.usa.gov/Pti2dj If the petition gets 100,000 signatures the White House will respond with a statement. Quote Link to comment Share on other sites More sharing options...
Potter Posted March 14, 2014 Share Posted March 14, 2014 You change all your daily rhytms. You eat, go to sleep, wake up, and even flush your toilet one hour later or earlier. So no, it's not bullshit. It's just a kick in your omeostasis metaphoric nuts, and when all circadian rhytms are screwed up, the one who's called out first to share all your body faults it's the hypothalamus itself. I change nothing at all not even my clocks as John and Joan Beebe can attest to. How do we explain circadian rhythm to the chronics or folks that are completely random? Potter Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted March 14, 2014 Share Posted March 14, 2014 I change nothing at all not even my clocks.. Oh....looks like I need to go back and edit my post above to include you with Arizona and Hawaii! Hmmm if enough of us personally rebelled like that it could force a universal abolishment of the evil and insane "spring forward". 8-) Quote Link to comment Share on other sites More sharing options...
DrTy2 Posted March 14, 2014 Share Posted March 14, 2014 In fact, the original poster educately asked if other CHers got their clusters triggered and/or worsened by DST, to see how many people do suffer because of that, that's it. It's still very interesting to see all kind of repetitive patterns among the patients, as they're always hindsights for additional etiology explanations. And, on top of that, it totally makes sense that there are many clusters triggered by that, as circadian rhytm is involved in CH, even if not for all of us (at least on a measurable level). That's the reason why most CH fire at the same time every day/night, start in the same season, etc etc. Your's different? Random and chronics are different? Well, there's nothing strange in that. Maybe there are additional malformations/genetic variations/underlining diseases that modify CH, or some of them jsut degenerate, or change with age. Or they're just worsened by climate, world region, race (are we all male white caucasians here?), temperature, weather conditions, lifestyle, nutrition. Believe me, except than for maybe infections, most genetic diseases vary quite a lot from patient to patient: there's no absolute or universal "epyleptic" or "schizophrenic" patient for example, and I've seen a lot of different patterns for celiac disease, to the point that many researchers are starting to think to furtherly differentiate them in more categories. Any information is useful, being it positive (yes, DST crappity smack me up), or negative (no, DST don't crappity smack me up), or just partially positive/negative (yes, DST crappity smacked me up in the past, but it doesn' crappity smack me up since 10 years). Quote Link to comment Share on other sites More sharing options...
San Isidro Posted March 15, 2014 Share Posted March 15, 2014 Before I knew anything about busting, I had a theory that anthing I could do to break up the rythm of the clusters would help. It seemed like the more regular the clusters were, the longer they would stick around. So I used to try radical disruptions to my sleep paterns. Like I would stay up for two days straight, or only sleep for two hours at a time. It never killed the cycle but it did seem to affect the pattern, and it did seem to end the cycle faster than doing nothing at all. It wasn't scientific, but I'm sure you all know how it feels to be desperate enough to try anything. And that's my 2 cents worth. Quote Link to comment Share on other sites More sharing options...
DrTy2 Posted March 15, 2014 Share Posted March 15, 2014 My experience is just the opposite instead. The more I force myself on living a regular lifestyle, with fixed hours to eat, sleep, wake up, have sex etc, the more it helps with clusters. With some clusters I had back in the past, even just going to bed 1 hour later, or skipping a meal, could trigger devastating backfire K9 CH strikes, with shadows that could keep lingering for days. Sometimes a DST time change midway-through a subsiding cluster, worsened it to the point it got back to starting point again, increasing its overall lenght. About overall cycle durations... well, they do the fuck they want, no matter what. And many times, expecially in the last 6-7 years, when the cycle seem to be gone, they just go dormant for a few days, up to a week or two, just to come back with a vengeance. Quote Link to comment Share on other sites More sharing options...
spiny Posted March 15, 2014 Share Posted March 15, 2014 Equinox is my trigger. With Potter on this, I don't change when I get up or anything!!!!! Of course, I never had a Ch wake me from a nap till this year, so, who knows anymore. > Quote Link to comment Share on other sites More sharing options...
kika Posted March 16, 2014 Share Posted March 16, 2014 Mine start a few weeks BEFORE the seasonal daylight patterns change. Quote Link to comment Share on other sites More sharing options...
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