Daveengland Posted February 20, 2015 Share Posted February 20, 2015 hi there, i havn't been on for a while,have been adjusting to life post DBS. life was great for about six months,then unfortunately the beast came back. had DBS adjusted,am currently 3.9v across two electrodes. spent 6weeks in london hospital feb 2014,repeated 10 day infusions of lidocaine-proved to be totally ineffective now,i've developed Tachyphlaxis,-body had stopped responding to medication. prior to DBS an injection would give me 5 hours guaranteed PF time,now i' m lucky if i get 30 mins PF time. whilst in hospital last february i got talking to a Doctor,who offered me a trial of IV KETAMINE. hell,i'll try anything-i'd even eat my own s**t if i thought id would help me. i can only describe that initial IV as amazing. the only thing that has ever taken the pain away like that was mushrooms i've had repeated IV every 6 weeks,since Sept 2014 ive had ketamine on prescription at home. take 1ml at a time under my tongue,keep it there for 10mins and spit out. does anybody know anyone else who's had this? as far as i know i'm the first UK patient to have this. all the best daveengland Quote Link to comment Share on other sites More sharing options...
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