Oxygen for preventing CH?

[mit12]

Has anyone had any success with using oxygen a few times a day as a preventave measure?

[Bbev673]

We use it on my little boy to relieve the pain. Sadly though after 6 months it has started being ineffective. I have not used it as a preventative for him though.

[spiny]

Interesting question Mit! I have not used it as a preventative, but I have used the same breathing techniques with plain air when caught out and actually found it helpful in pushing back a hit. Then I hit the caffeine as soon as possible. One of those panicked 'Lets' try try this!!!' that actually worked.

[spiny]

Welcome Bbev!

 

Glad that you found us but very sorry that you have to be here.

 

How old is your little boy? Did his doctor show you any breathing techniques for his O2? It is such life saver for most of us when used correctly. When I read about kids with this condition it really hurts. It is good to read of your support for him. Is he on any preventative medication as well?

 

spiny

[Bejeeber]

The only successful preventive use I can recall at the moment was the continuous 4 LPM via canula (NOT MASK!!!) while sleeping at night, as used by one of our real O2 expert CH'er pals.

 

Bev, an unfortunately very high percentage of CH'ers find O2 ceasing to work for them because it hasn't been prescribed effectively. O2 can suddenly become very effective again with a non-rebreather mask (100% O2), and a high enough liter flow.