Weather Bust On Edge of New Cycle Looking to Hang On

[sous139]

For us in Ohio the weather this weekend was in the 60's.

 

Work up later on Sunday (2 hours later then normal) and started getting mugged with shadows and stabbings but not a full blow one.

 

Have had not had a headche but my eye (cluster eye) is swollen about four times it's normal size and lots of shadow's.

 

I am on the D3 regime and using Verspamil along with chasing down Enegy Drinks. i am taking at melatonin at night

 

Any short term advice to get me through this ? My headbangers usually come between 9:30 and 10:00 at night and

 

I am almost getting crushed in the morning , but hanging on by a thread.

 

I am arguing with my doctor for O2, he does not seem to believe in it .

 

Should i up the Versapmil ? I can't take the shrooms as i worry about getting drug tested.

 

i drive a lot for work and just want to see if I am missing something to prevent these.

[CHfather]

Of course, step one with a doctor "who doesn't believe in" O2 is to try to educate him.  You could print this out and show it to him -- http://jamanetwork.com/journals/jama/fullarticle/185035-- or you could tell him to look in any damn medical book.  But real quick, I would jump to step 2, and fire any so-called "doctor" that "doesn't believe in" O2 for CH.  There's a list here of recommended doctors, which might help: https://clusterbusters.org/cluster-resources/     And of course you can do what many do and set up your own O2 system using welding oxygen.  It's completely crazy for you not to have it.  It's a game changer (though it won't prevent a cycle).

 

Yes, you might up your verap.  You don't say how much you are taking. Some people have to get up in the 900 mgs in cycle for it to be fully effective. Similarly, you don't say how much melatonin at night.  Some people get into the upper 20 mgs before it takes effect for them.

 

When you say you're on the D3 regimen, are you following it completely?  Have you been on it long enough for it to take effect?  Have you done any "loading" to get your D level up faster?

[spiny]

Only one thing to add here. Sleeping in can adversely affect your CH. It can be set off if you change your sleeping schedule.

Many find that sticking to a regular sleep schedule helps a lot.

 

This weather is hard on many, with the falling barometric pressure of a weather front moving in setting off a lot of heads!!! Not much we can do about that one.

 

The amount of Verap. you can tolerate is at least partially determined by your normal blood pressure since it lowers your BP.

 

Personally, I have found the D3 Regimen to be a huge help.

 

Are you seeing a Neurologist or Family doctor? A good Neuro would be your best bet in the medical field. Especially one who is a Headache Specialist.

 

Well.That turned out to be more than one addition!

[Pebblesthecorgi]

it's not a matter of believe.  It's actually fact and well established in the medical literature.  Ask him to look up cluster headache treatment in up-to-date. Up-to-date is a credible medical reference that many physicians use to keep apprised of the latest and most evidence based treatments. The use of oxygen to treat cluster headaches is a first-line treatment recommendation in pretty much every correctable source. Printing off the information and bringing it to him to discuss may also be influential. Be sure to approach him or her in and even handed manner and not as a know it all.  Unfortunately many physicians will to new out and not be interested in helping if they perceive attitude. It's not right but that's the way it is.  You are on solid ground requesting oxygen.

[sous139]

Thanks all for the good advice

CHFather- I also brought the doc the D3 Regime that I have been taking earlier this month and I did make him read it, as he glanced at it and gave it right back.

After reading, he encouraged me to keep taking it.

I am going to the Welding Supply store to take care of the O2 Tank.

Have been on D3 regime since October. Will Load up tomorrow. The only thing I haven't taken is the boron and I will keep looking for it.

Thanks again