jh Posted April 4, 2019 Posted April 4, 2019 I wonder what this means: I am in my 6th week of a cycle and have used O2 every day multiple times a day and night. The last 2 days and through the nights all I have had is a fairly constant shadow. Maybe a 3-4 kip. No need to take O2. But it persists. I have had clusters for over 40 years and never have I experienced this shadow thing Has anyone experienced this? JH. Quote
FunTimes Posted April 4, 2019 Posted April 4, 2019 I do get this at times. I can sometimes make that feeling go away with stong coffee, 5 hr energy drink, any type of energy drink like monster or redbull. I have also has success with strong ginger tea for days like that. 1 Quote
Into Light Posted April 4, 2019 Posted April 4, 2019 I live with Episodic attacks in Spring and Fall, and then nearly constant ‘“mild CH” and shadows for the rest of the year. what fun we have! (JK) jonathan Quote
xBoss Posted April 4, 2019 Posted April 4, 2019 Usually the two months before my cycle I get some shadowy symptoms. Tension headaches, sore muscles. I feel great right after the cycle ends. Quote
Siegfried Posted April 4, 2019 Posted April 4, 2019 Hi jh, All the time. I get up with shadows, go to sleep with shadows... they are always there. The real attacks, I am having only between 5 and 20 of them per month. But no episodic break, my pattern is chronic. So yes, as Into Light says: We all having a great time Shadows are so bad and permanent I thought I was having Hemicrania Continua but the indomethacin test was negative and the specialist I am seeing says the kind of pain I feel is typical for CH and does not fit with HC Best Regards ! siegfried Quote
Boatman Posted April 4, 2019 Posted April 4, 2019 My shadow feels like a super light ch, something you can still function and work will although very annoying pain.. caffeine won't work and neither will oxygen.. I hate to say it but sometimes I wish it would just go into a cluster for 15 to 20 mins so I can fight it with 02 and move on with my day.. by dinner time Im hurting pretty good.. I try ginger but it don't work for me.. sometimes I'll try a couple moltrin Quote
jh Posted April 5, 2019 Author Posted April 5, 2019 Thanks everyone for your responses. I am hoping the shadows mean that my cycle is perhaps coming to an end. Would be nice. JH Quote
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