Jump to content
ClusterBusters
Sign in to follow this  
bwunk

New Member -20 years of this- Pittsburgh

Recommended Posts

Hello

I am new to this site.  I didnt know a community like this existed. I have been suffering cluster headaches since i was 19 years old ( i am 39). Although I didnt know that until about 4 years ago. I was just told they were migraines.  My current Dr was the first one to call them cluster headaches and gave me a prescription for Sumatriptan (100mg).  These do EVENTUALLY take the pain from the headache i am feeling at the time away but dont prevent the next one.  The next one could come anywhere between 2-24 hours later, depending where I am in my cycle.  My headaches tend to start slow and far between then ramp up to very sevre and happen 4-5 times in a 24 hour period.  So sometimes i take a pill and then i get another attack before its safe to take another.  I am currently on the "backend" of a now 6 week cycle and hoping i am almost done.  

 

I am very interested in trying to bust this pattern.  I may want to try doing it after this cycle is gone.  What amount of mushrooms by weight is recomended?

 

anyone else in the western pa area on here?

Share this post


Link to post
Share on other sites

Welcome to the party! Kind of sucks that you need to be here but it is a nice place. You will find all sorts of tricks and techniques to fight this cluster battle we are all in. As fat as busting goes you will want to look at the closed sections of the site (Share Your Busting Stories and Theory & Implementation) for members only. That will only be viewable to members of the site and more people will respond to your questions on busting. you should click on the blue banner on the top of this page for New Users. this will give you a overview of the basic information you will find here on busting. 

The biggest game changer in the Cluster world is Oxygen! you will want to read up on that, It can be a pain to get but well worth the effort. The D3 regimen is something you can start now and was developed by a long time member on this site who now goes by the screen name of XXX but is better know as Batch. you can read about it here https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people

I am from the other side of PA, the better half :) just out side of Philly but I know we do have members from your area. 

Poke around and ask questions. we are all here to help each other. 

  • Like 1

Share this post


Link to post
Share on other sites

Thanks!  My wife wants me to ask my dr about oxygen.  I am going to to do that and see if he will prescribe it for me 

Share this post


Link to post
Share on other sites

If you can get the oxygen script from you doc and find a company to deliver it to you they will most likely not have the mask and regulator you will want to use. Just take what they give you and then go out and get your own supplies. 

You will want to ask for more then one tank and more then one size. M and M60 tanks are larger tanks that are good to keep at your home and hold a larger amount of O2, E tanks are smaller and good to keep in your can to take to and from work or just a day out on the road. You will want a regulator that has a flow rate up to 25 LPM and a cluster mask that has a large reservoir bag on it so you can get a deep lung full of only O2 and no outside air. I will attach links here so you can have a better idea of what people get. 

This regulator will work on E tanks

https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1

This one will work on the M and M60 tanks

https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-protector/dp/B00BXRBJG8/ref=sr_1_fkmrnull_3_sspa?keywords=540+CGA+oxygen+regulator+0-25lpm&qid=1554376819&s=gateway&sr=8-3-fkmrnull-spons&psc=1
~OR~
wtfarley.com/Oxygen-Standard-Body-Click-Regulator-CGA-540

The mask can be found here

http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit

 

  • Like 1

Share this post


Link to post
Share on other sites

Thank you so much!  I am going to research headache specialists in my area too. There are two on the list from this site. One is not with that practice anymore and the other is upmc which I cannot go to with my insurance 

Share this post


Link to post
Share on other sites

Also, if you are ok with sumatriptan, you may want to look at the nasal spray if not the injector, they work far faster than a pill. It was a wonder for me, only thing that really touched them.

Share this post


Link to post
Share on other sites

Year 23 here. You are in good hands! Welcome to the bust club.

Share this post


Link to post
Share on other sites
1 hour ago, devonrex said:

Also, if you are ok with sumatriptan, you may want to look at the nasal spray if not the injector, they work far faster than a pill. It was a wonder for me, only thing that really touched them.

same here.  it is the only thing i have ever tried that even touched them.  but again if i take one and then have 2-3 more attacks that day i am screwed. I have definitely "overused" the pills and hurt my digestive system before.  

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×