Symptoms of Remission Ending?

[Mr.Jaques]

Hello all.
I had an episode in 2017 from Dec-Feb. During that episode I had 5-7 a day that lasted between 20-45 minutes. After an ER trip and multiple/various doctor office visits, I was diagnosed with cluster headaches. They stopped on their own in February of 2017(about the time a doctor gave me that diagnosis, the episode stopped on its own). 
However, over the course of the last 3 days, once or twice a day I’ve gotten what feels like a much milder version of what happened in 2017. My eye will water and the pain radiates around my eye and down my temple and gums, just like it did in 2017, but instead of being unbearable, it’s just painful. 
I was wondering if anyone who is episodic has had the experience of headaches being mild early on in an episode? I’ve been so thankful that I haven’t had these in 4 years and I’m very scared that they may be returning in full force. Thanks for any feedback in advance.
 

[BoscoPiko]

Hi Mr. Jaques,

A lot of people with CH get what is referred to on here as shadows (mild but bothersome pain/headache) prior to an onset and some like myself shadow on a daily basis. Also is the headache on the same side that you had your last CH? It's hard to say if your remission is ending or if you just have some odd headache. Just incase you are going back in you might want to consider loading up on the D3 and co-factors if you do not take them on a normal basis you can find the loading instructions and list of supplements by poking around this forum.   When you were diagnosed, did your PCP put you on any preventative meds or have you just been lucky and had the CH take a hike for four years? I hope you just have a strange headache!

[jon019]

....for me when episodic they all started that way...i suppose it's better than BAM... and you are in a cycle.

...get yur ducks in a row.

 

...OXYGEN? energy drinks? if used: prevent scripts updated? triptan scripts? busting supplies? headache specialist appt/call in? D3 regimen?

Edited January 31, 2022 by jon019

[Bejeeber]

I must agree with the esteemed previous responders. My cycles do ramp up starting with more shadow level "warning shots across the brow" (a term I believe I am guilty of coining, although it doesn't exactly fit in my particular case, since I feel it behind the eye).

So yeah I'd be moving right now on getting all those ducks in a row, and even backup ducks in a row. The stuff @BoscoPiko and @jon019 mentioned. Plus you've probably noticed a whole lotta headbangers have successfully prevented cycles with busting, as seen at the blue "New Users - Please Read Here First" banner/link at the top of this page.

[jon019]

4 hours ago, Bejeeber said:

"warning shots across the brow"

CH warning shot.....

[Cpt. Krispy]

Yeah, I’m episodic and mine always start off sort of low key. They usually ramp up in frequency and amplitude until I’m going full tilt, 4-6 hits a night at peak.  Although I’m not as clockwork regular as some. I’ve even had a few low level hits and then not gone into cycle. Like a miss or something. But usually when I start feeling pain on my right side, I get my stuff ready to rock. Better safe than sorry. I got caught out of oxygen once when a cycle started going, thinking maybe I’d miss, and I paid the Piper. One time of that was enough, I’m not doing a repeat of that debacle. So I concur with the seasoned veterans above. Time to get your stuff sorted. Better safe than sorry, and all that.