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I neglected to mention that, guzzling the kool-aid and buying into the positive Amazon reviews, I have used the EXACT SAME THERAWORX AS @CHfather, and I was also shocked at how reliably and consistently it worked for relief of intense leg cramps - for me, it has routinely worked to relieve full blown cramps in progress, and I still religiously keep it at the bedside in case. This is iron clad proof that the world's greatest minds think in an identical fashion , although I'll admit I hadn't thought to try it right before bed as a possible preventative. I'm also now starting to consider the greatest mind @FunTimes comment about too much caffeine as a possible culprit.

I have been very, very surprised that a product called Theraworx actually seems to help to quickly relieve my intense leg cramps. It's not preventive -- it's a cream or roll-on that you apply when the cramp begins (though sometimes I use it when I'm getting into bed at night as a possible preventive). It's just magnesium. Since it's topical and not consumed, maybe it wouldn't affect you as you have described. Amazon.com: Theraworx Relief for Muscle Cramps Foam Fast-Acting Muscle Spasm, Leg Soreness with Magnesium Sulfate - 7.1 oz - 1 Count : Health & Household I also concur with Jeebs that if you can find a form of magnesium pill that doesn't have negative effects, it would be good. I would say that oral magnesium has helped me more than potassium.

I very much like, and vigorously salute, the @FunTimes reply, and will just add my experiences as an adult life-long nocturnal cramps experience-er, whose wake up calls have been largely in remission for going on a year now: They can be a moving target, just like our 'ol CH buddy. Magnesium citrate worked for me for keeping them at bay for like a couple years at one stretch, then failed. Magnesium gluconate seemed to help at one point also, but individuals apparently can have different reactions to different forms - citrate worsens cramps for one family member, but gluconate doesn't Yep, the potassium-rich foods bananas, avocados, potatoes and sweet potatoes can potentially help significantly (at least until the target may shift) I didn't realize the sudden wake up cramps could be anything other than a ridiculously huge emergency-feeling level of painful until more recently when I had a couple that were a strange and thoroughly unfamiliar kind of 'moderate' I'm known to do occasional 'walking lunge' type leg exercises. Not sure what, if anything they're doing for me in the cramp department, but my current remission has coincided with the addition of this 'Advanced Electrolytes' supplement, one pill with dinner. I might question whether especially high doses of potassium are really required, but of course am fully acquainted with the desperate times/desperate measures mindset many of us here have been known to adopt courtesy of the CH!

I will sometimes have leg cramps but I think the cause is to much caffeine. What helps me is Bananas (potassium) drinking lots of water and stretching on the floor (fake yoga). Not sure if this will help you with the pred cramps but it does help me.

Good day guys, I hope all are managing. I have been taking 50mg of Prednisone daily for the past few weeks, in an attempt to assist with the loading dosages of my D3. It is helping, however I am having excruciating leg cramps mainly at night. Now it is also cramping on the muscle surrounding both my hip replacements. Get them some times when I'm driving also So, I do know that Prednisone actually depletes Potassium levels. Magnesium, for some reason, is just makes the cramps worse. I tried other anti cramp meds out there and its not working. Just wanted to find out if it is safe to take high dosages of Potassium for now and if it will aggravate the Clusters or will it be safe. Thanks

Stijn, I appreciate your non-defensive responses to questions! Language like this "The reason your CH cycle started..." kind of triggers me (in contrast to maybe something more like, "My hypothesis for the reason your CH cycle started...."). But, like I say, I admire your openness in interactions, and I admire the effort you are making to learn whether your theories hold true.

Yes, the Sun changes sidereal signs pretty much every year on the same day. I don't have all the answers to your questions, as I'm only at the beginning of this research. I'm still looking into what causes or prevents the larger cycles, why one year yes, and the other no, but I hardly made any progress there. However, I found that many peaks occur when the Sun changes signs. Also, often cycles start then. Another way to convince yourself is keeping a detailed record of peaks and then comparing it to solar ingresses by using an ephemeris. If you wish to know more, best take a look the pdf attached, as it includes my findings up till now. For your convenience, I've listed the solar ingresses for the rest of the year.

So, he is talking about cycles in 2018, 2020, and 2022. Does the sun change signs every year on August 17? If so, while that might "explain" those past cycles (or at least the 2020 and 2022 ones, since he doesn't say the 2018 cycle started on that day, and he probably would have mentioned that), what "explains" not having cycles at all in 2019 and 2021?

The reason your CH cycle started on August 17 is because on that date, the Sun changes signs (sidereal Cancer to Leo) . (Don't know why it stops on September 1 though.) Check the "Medical Almanac" I prepared for July-December 2025 - pdf attached. Medical Almanac 2025 solar disorders.pdf

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In the tradition of the old “Almanac” makers, I thought it might be nice to create a “Medical Almanac” that looks at the sensitive times for (cluster)headaches. As a first publication, it starts modestly, and covers only the second half of 2025 (July-December). It shares the research and the theory behind it and marks the collective dates when one may - or may not - experience peaks in intensity. If you’re interested, whether to check if there’s any corresondence with your own CH peaks, or just curious to see what the hell this is all about, get in touch by pm and I’ll send you a pdf copy (free).

Triptans can send you down the rabbit hole of hit after hit. For me using nasel sprays 10 mg Zomig works great to stop an attack but it will cause rebound hits. I found that the 2.5 mg ZMT work fairly well and unless I use them for more than 2 days I am good. It seems like the higher dose along with the faster absorption of the nasel sprays causes problems.

Well, that wasn't too fun. He had difficulty getting into the joints due to the underlying arthritis so I got extra needles and it took longer. I think all that added up to irritating things A LOT. After the systemic effect of the steroids wore off (about 4 days), then I had a severe nerve pain on the side/back of my neck that just wouldn't quit. I tried everything. Finally topical lidocaine (which usually doesn't do anything for any pain I have) worked well.They told me all of this is not unexpected.....thanks a lot. Anyway, about 10 days after the injections I had a couple days of CH. That was only 2 days but the migraine continues to be worse than before the injections. The nerve pain is much less now also. All-in-all, I won't be having any more needles in my neck anytime soon......

June is Migraine and Headache Awareness Month Our patient conferences are so important - there's no other place where you will see over 100 people gathered in a room who are affected by cluster headache. This is vital to those who experience cluster attacks but also to the Care Partners as well. There are clinicians who not only come to share their knowledge, but it's a time for them to sit with our community and learn as well. We have it all in Grapevine, TX September 11-14th. Whether this is your first conference or your 20th, we want to welcome you! More information and register here: https://cbdallas2025.planningpod.com/. IF you aren't sure - comment, message, email us and we can chat about it. It can be difficult to walk into a place and not know anyone, especially when you experience a disease that has you running to hide. We have a ClusterBuddies program and one way that program can help is we can pair you up with a longtime attendee so that you already know someone before you arrive. Clinicians, we will be offering CME/CEUs! We are excited to have you with us as well. We want to get to know you and be able to help you feel better equipped to help your patients with cluster headache. Pain free wishes to all From the Board of Clusterbusters and our Founder/Executive Director Bob Wold

Thanks to all who have responded! I thought that it only had dilative effect, but apparently some research suggests that it's more complicated. I'll copy a few lines from a NIH link, and share the link. Oh and I am not looking to use it for CH, I'm wondering if there are strains less likely to add to my overall headache burden, so I can consider it's use for arthritis-related issues. Experimental studies specifically targeting cannabinoids' effects on the cerebral vasculature are rare. There is evidence for transient vasoconstrictive effects of cannabinoids in the peripheral and cerebral vasculature in a complex interplay of vasodilation and vasoconstriction. https://pmc.ncbi.nlm.nih.gov/articles/PMC5986896/#:~:text=Experimental studies specifically targeting cannabinoids,interplay of vasodilation and vasoconstriction.

Many apologies for the late notice! Jefferson Cluster Center Symposium: https://Jefferson.zoom.us/webinar/register/WN_pF0E7o9oQUqHJ-E5QnzJzg We will be starting at 8PM on June 24 (Tuesday) at 8PM. Dr. Michael Marmura will lead the discussion. This will be recorded- register to get updates on the recording.