All Activity

Joe Stone tells his moving story.

Joe Stone tells his moving story.

Joe Stone tells his moving story.

Dr Emmanuelle Schindler sends us a pre-recorded update on DMT.

Day 2 ..... Dr. Christopher Gottschalk spoke and I managed to mess up the photo.... Next, Anna Kim gives a excellent supporters viewpoint.

I really hope to make it over to US for conference 1year, would be great to meet all the US Clusterheads in person that talk to on here, hope you all have a great conference

The BOD shares updates....

Craig Stewart D3 guru...

Dr. Brian McGeeney

Rev. Dr. Tammy Isaac, CAGCS speaks on coping with grief.

Our founder, Bob Wold speaks to the gathering.

Part 2....tissues needed.

Patient stories....

Micheal Oshinsky, from the NIH/NINDS

BOD introductions...

About to start registration and presidents reception!! Supposed to be around 80 first time attendees!!

I’ve been managing both for years now, and the overlap can get really rough, especially during high stress or mood swings. What helped me was keeping a detailed log of my mood and headache patterns to spot triggers. Also, during tough stretches, I leaned on support resources like a ptsd hotline — they’re not just for trauma, but helped me feel seen when things got overwhelming.

I'm a native Texan but Minnesota is home now. If you're looking for things to see in Texas, head to the Hill Country. The smaller towns and cities are the best parts, but Austin and San Antonio are full of cool stuff. By Texas standards that's a short trip from DFW. If that's too far for you, don't bother going far from the hotel. Fort Worth is generally more chill than Dallas, but both have a lot to see and do. After the those places, you gotta go for a good road trip to see much worthwhile: Lubbock, Big Bend, El Paso, Corpus Christi. I don't recommend anywhere remotely close to Houston, Abilene, Midland, Odessa. These are all places you should only be if you're being paid to be there. You can see areas similar to most of Northeast Texas minutes east of Dallas. A few minutes west of Fort Worth will give you a good idea about the inhabited parts of West Texas. Things get scrubby and sparce pretty fast out that way. Big bonus points: there's a high concentration of South Indian people north of Dallas, relatively near the airport. If you aren't familiar with South Indian food, go seek it out. It's different from the North Indian food available in most US Indian restaurants. Aside from that, you want to eat Tex Mex (not real Mexican food), any small town local BBQ place, and a decent chicken fried steak (they aren't all equal). I generally recommend local restaurants, but if you're looking for chains: The best meal at Whataburger is breakfast, but it's gone downhill in the last 20 years. Not usually bad now, but not what it used not be. Braums has better burgers and better breakfast (fight me) if you get a good store. They are hit or miss though. People say Dairy Queen is a Texas Stop sign, but I think Sonic feels more "Texan."

See you all in a few days. Should be another good time with the rest of the headbangers from all over the world.

The following is information from our valued sponsors: Lobe Sciences and Cynaptec Pharmaceuticals are developing a form of psilocybin as a medical treatment for Chronic Cluster Headache. Join us at this year’s conference to hear about the drug development plan and their passion for bringing a new treatment to market to help people with cluster headache. https://www.lobesciences.com/ (OTCQB:LOBEF CSE:LOBE) https://ca.linkedin.com/company/lobe-sciences https://www.linkedin.com/in/frederick-d-sancilio-42585316

I’ve had similar questions, and what helped me was tracking symptoms closely while also getting input from others dealing with both. I started using Migraine Buddy to log attacks and patterns—it’s not made just for clusters, but it still gives good insights. If you're curious, check out more details. It’s been useful for figuring out triggers I might’ve missed.

Our conference starts one week from today! We are quickly getting all the loose ends tied up and cannot wait to welcome everyone. We'd like to give a quick shout out to our sponsors- without them, this conference would not be possible. Registration is still open! Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: https://cbdallas2025.planningpod.com/

I went through something similar and ended up talking to people who really got the mental health side of things. Cluster headaches completely wreck me emotionally sometimes, and sorting out what’s from that and what’s more like bipolar isn’t easy. If you're hitting a wall or just want someone to talk to now, mentalhealthhotline.org has folks who actually listen and know their stuff. Helped me not feel so stuck.

First I have read of this and very good to know!