Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 01/17/2016 in all areas

  1. What Tony says. Oxygen will change your life, and make other steps manageable. If your doctor won't give it to you, you can do what lots of people do and create a system using welding oxygen. If you want to consider that, we can advise you. Would you mind looking at the labels on your preventives and telling us what they are? Maybe that information will not be useful -- but maybe it will. Also, have you started the D3 regimen, and are you trying melatonin, and what about energy drinks?
    1 point
  2. Don't wait another hour to get the oxygen, don't wait for the next doctor's visit. Get it know, asap, every triptan (imitrex) used to abort is too much in your situation and will either keep it bad or make it worse. When you start aborting hits with oxygen you can take your next step. It may take a while for oxygen to build up efficiency, in other words when your body keeps on detoxing from triptans, oxygen will work better and better. Oxybar might be fun but won't help in clusters. CH attack also has little to nothing to do with saturation how oxybar's sell their idea. To treat an attack you need high-flow oxygen like CHfather advised. Meaning a lot fo oxygen delivered into your body, fast. It's measured as litres per minute (lpm). Usually in clusters we need 15 lpm or more. Sufficient oxygen treatment at home will change your life.
    1 point
  3. Welders oxygen or any kind of DIY O2 is not possible here so this is huge. So far if you are not able to get a prescription for it it has meant no O2.
    1 point
  4. I think I would give anything to really meet someone who "Lives " with this affliction....... I have only met someone so dibilitated by it that he did not live- I could not relate because I have to live......
    1 point
×
×
  • Create New...