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As Denny and CHfather have said, your PCP is very misinformed. This is why so many people go so many years going from one bad diagnosis to another. 02 is the safest thing your PCP could have prescribed and Baclofen will not differentiate between TN and CH. Bob .

'debs, I'm willing to bet that we have had at least 50 people here who have said that oxygen didn't work for them. In at least 90% of those cases, having the right oxygen setup and using it right changed everything. I would really strongly suggest that you read the file I linked you to before -- this one: https://clusterbusters.org/oxygen-information/-- to be sure you had the right setup and were using it right. You can dramatically change your relationship to CH when O2 works for you. I suggested some other things to you in my post above -- D3, energy shots . . . -- and I'd strongly urge you to try them. If you're at the start of a potentially long cycle like your last one, the D3 can help you a lot. I'm hoping the steroid taper will help. A week is a pretty short time for a CH taper. 10 days to three weeks is more common. If that doesn't resolve your CH, verapamil is the most commonly prescribed preventive.

Guys and gals, I just passed 48 hours with no headaches. Starting day 3 of my vitamin d3 regimen.

I remember going in for an MRI and I told my mom I hope they find a tumor, my mom started crying. no one that does not have these can understand what we go through.