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hello all,my storey is 2 yrs ago i started getting a pain in my right eye and the side of my face after drinking alcohol and only when i had a drink this would happen didnt know what was happening to me went to docs and he said i had a sinus infection and put me on antiboitics which didnt help.then i started getting the pain more and more with out drinking alcohol i was getting 3 attacks a day all at the same time,so went to docs again who booked me in for mri scan and to see a neurology team,where i was told i had cluster head aches.i am allso a recovering addict and was on methodone for this and allso was on anti depressents citalipan i was told that these head aches was maybe caused by long term methodone use and maybe its a good idea to get off the methodone,i was perscribed verpmil 80 mg twice a day and sumartripan in jections,the verpmil seemed to clear them for about 2 weeks then i was back to having 3 a day again so i started using sumartipan injections what used to work but the pain used get worse,i would take the injection and have 15 mins of screaming pain and the pain would suddenly stop,but i would have a horrible migran after a hr of having the injection and because you can only have 2 injections in 24 hrs i was having to ride 1 of my clusters allso the injections gave me horrible side affects after a year of having these attacks and using the sumartripan injections and having these clusters everyday and allso trying to detox on the methodone,i was in despair and became very depressed i ended up using drugs again relasping but the herion didnt seem to help after a while,so i got back on methodne and the clusters got worse i was having 6 attacks a day,i wanted to end my days on this planet i was on the floor with these attacks started in my right eye and then it was like someone was hitting with a hammer on my head i was in tears with these,this went on for a 18 months i had 3 five day breaks in 18 months they had got worse and worse.anyway a friend of mine was looking on the internet and sent me a link about using majic mushrooms for clusterhead aches,thats where i found clusterbusters and found the info on the majic mushrooms,i have used lsd and majic mushrooms before when i was younger so new a bit about them and where to find them,so in october i found a feild full of them and picked a load i was still on a low dose of methodone and was still using ssi antidepressants and new that these drugs didnt play well together so i kept the mushrooms untill i detoxed,this took me up to april 2016 i had come off the ssi and was on a very low dose of methdone but i was still gettin attacks everyday and went back to the neurology team where they put me on steriods and gave me oxygen the oxygen used to work a bit but not well,but the steriods seemed to work for 3 weeks the head became less and not as painfull,so in this time i decided to come off the methodone and stop using the sumartripan,so i could use the mm and try the busting,after 3 weeks of total detox i noticed the head aches where not as bad and the oxygen seemed to work better the headaches seemed to ease,so i decided to take the first dose of mushrooms which was six weeks ago i took 1.5 grams for which i did trip i think the mushrooms in england are stronger than in the states because i was off me head,but i noticed a tingling feeling where my clusters were while on mm,the next few days after they head aches had eased and were not as painfull,so 5 days later i took another dose of half a gram which i didnt trip and after that dose they eased even more,then in five days again i took another dose and they are much much better i havent had to use the oxygen as i just every now and then i get a slight pain in the right eye but it go,s,some times i get a slight head ache but it is handleble allso ive noticed my depression has eased from when i took mushrooms,i am now totally clean from all drugs for the first time in 20 yrs and cluster free.all those migrane drugs they had me on i think made them worse.i just want to say thank you to this site you have saved my life.thanks bob.it wasnt the docs that helped me it was clusterbusters.

Welcome to the community Harry! Shit the bed Loretta!! I love me some posts like this right here! Hot Damn!! Dallas Denny

Thanks for the post Leonhart. I'm struggling with all the issues you've mentioned. I have multiple sclerosis and ch. I have a lot of fatigue with the ms already and when I'm in a ch cycle, I'm barely moving. It's like my life just has to be put on hold. Currently, im exactly 60 days into a cycle. My husband is incredibly supportive but I can feel his sadness wanting his playmate back. I'm on an antidepressant and before this cycle started, a regular at the gym. Working out helps with ms symptoms. However, now, working out is a huge ch trigger. I also take tecfidera for my ms so I'm not a candidate for busting. As far as social isolation, I used to completely with draw from friends but now I let them know what I'm going through and that I will be back as soon as I can. All my good friend totally get it and they just check in with a call or text once a week which is all I really want when I feel this way. It's been important mentally for me to just let those I care about know what's up. I think before when I just disappeared, they thought it had something to do with them and not me. Now, they know I love them and wish I could be more social but I just have some shit to do, but I'll be back. I feel less isolated and more excited to be done with this cycle so I can get caught up on their lives. Jobs are a real struggle. In my thirties, I was a self employed artist. I had a decorative finish and mural business along with an art gallery. I was busy as hell but when I went into a cycle I could tone down my work load. I also seemed to only get ch at night so I was just tired all day but could keep going. The recession in 2008 clobbered my businesses so I went back to school to get my degree in psychology with the hopes of becoming an art therapist. My Junior year I came down with ms and was diagnosed officially just after graduation. Classic, life happens while your making other plans. I'm grateful for my degree because it's actually kept and keeps me relatively sane even if I not able to use it. Anyway, just wanted you to know that I feel your pain. It's helpful to hear that others struggle and we're not alone out there. The only advice I can give is to be honest and share with your friends. Let them know you're not looking for a pity party, you just might not be able to join them as much as you would like, but to keep you in the loop. Good wishes

I'm sitting here with my mouth hanging open at your story of amazing courage and resilience, harry'. Wow. We've had one or two folks here get on methadone for the CH pain and never be able to get off of it. So happy you have relief now! Thank you for letting us share the happiness for your success!

Thanks for the good news. Hopefully you will continue to have good results with the mm.

Thanks guys, back at my family doc today to ask for more meds until my appointment with headache institute of San Antonio in a few weeks