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Showing content with the highest reputation on 08/17/2016 in all areas

  1. You're absolutely right, I should know that triggers aren't obvious. Some of yours are even surprising to me, and I tend to keep up pretty well on this stuff. For many years I had serious attacks of pancreatitis (a very painful SOB), but no doctor could diagnose the reason. They all decided that it was "idiopathic" -- no known cause. Then one day after getting attacks after eating Chinese food, it dawned on me that MSG must be causing the attacks. I was right, and have only had them since when MSG was in some food where I wouldn't have expected. You have convinced me that maybe we should create a list of possible triggers in the CB Files section, and that we should refer people to that list in the same way that we refer them to treatment things such as the D3 regimen. As you say, that could make a big difference for some people. I feel like at some point there was a thread about triggers, which also include some smells (perfume, gasoline). I'll look for that later, and maybe start a new thread to see what gets added. I still think my general point to pro2see is valid: that managing diet, sleep, and stress will only get you so far, and pro2see really should be looking at other treatments, too.
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  2. Hi Darcy...welcome! 61 here too!...it's good number...yes? Can't answer re the psychoactives (this site can help)... BUT...for the O2 are you using a non-rebreather mask at 15 lpm or higher at FIRST sign of a hit?...tis a beaut...........breath HARD and FAST...til you're dizzy really... I'm NOT impressed with your GP...the specialist sounds better but what else does he/she say besides "go there and psychoactives (which is enlightened) "? Pills are worthless for a hit abort...it's too slow therefore too late. Can you get injections of Imitrex or Zomig nasal spray (my last resort savior). Drop the Amitriptyline...tis an OLD migraine med with POOR success for CH....and depressing side effects... Prednisone should be used for a 1-2 week taper (high to low daily doses) ONLY...while a prevent (like verapamil) takes effect....it's long term effects are NASTY! 240 mg of Verapamil WAY too low...most find the sweet spot at 480 or higher....I used 960-1020 mg/dy... Search the Vitamin D3 regimen here and at clusterheadaches.com...great success...minimal side effects...inexpensive.. Best Jon
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