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I tend to be preachy about verapamil, it's a drug that creates lot of heart problems. Anyone who is on it, needs a checkup (heartfilm) every time dose changes by 80mg or more. This is the official guideline but many doctors skip it. 240mg is a normal dose for someone with heart issues. Since we do not, 240mg is a bit high. But clusterheads have survived from 1000mg daily or more, myself included, with a heart failure though. I personally would recommend to try alternative safer things first, not simultaneously with verapamil, but that's just me. Did you read this article already ? https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people - there's a chart (labeled Update Jan 2017) that should be more simple. Some people who start vitamin D as en emergency only take Vitamin D (for an examply 10,000IU per day) and Vitamin K-2. Then they will do complete regimen when they have blood work done. It's important to check the Vitamin D levels with a blood test. The Psilocybin and LSD page I linked really covers the mushroom and seeds part. It's good to read completely over time, since you must not "just" take these substances but also learn what you are doing. Psilocybin mushroom is the kind we need or seeds that contain LSA (often called Rivea Corymbosa or RC seeds or ololiuqui seeds). Mushrooms is more of a "trip", seeds is more of a nausea. Here in Finland it depends a lot of the doctor what they think about Vitamin D although it should not really be a matter of opinion. Some recommend it, some forbid it. Doctors are unable to recommend psilocybin and I think many do not know about the subject at all unless they are linked to patient communities. There may be judgemental views too. I think the decisions made in the beginning will have a huge impact on the forecast what cluster headache will be later in life. Too few find all the options available to be able to make the best decisions. I wish you all the best and pain free life for your wife as soon as possible.

Just an update, we have arrived home. Wife is feeling a lot better. We were given the nasal spray to try, the injection helped for now...the spray is for when it wears off. Importantly we have an appointment with a nurolgist on the 6th Dec and from this they can set up a treatment plan, including the oxygen. It's usually an 18 month wait on the NHS but they were able to fit us in which is great. During this appointment I will listen to the advice and I will raise the issues of vit D and verapamil. They will probably not give advice on mushrooms etc. I will update this thread as we go, a huge take away and encouragement is that so many people can survive this and live a quality life.

I’m sorry you have to deal with this but your wife is lucky to have you! As far as treatment options go. Verapamil which is a blood pressure med is first line therapy with oxygen. As tony stated for some it’s a matter of high flow and the right technique. The verapamil is started at a low dose 80mg 2 times a day and is increased every 7-10 days w BP and ekg checks inbetween up to a dose of 1000mg daily divided into 3 or more doses. I’m on 640mg a day and I have to divide it into 4 doses. I get blurry vision if I take more than 160mg at once. I am chronic as well and have had great results busting and preventing with mushrooms. I haven’t tried RC seeds yet. But in the uk you could get a ready to go mushroom grow kit from the NL. I know they ship to the uk. There is a way to beat this for most and you can stay relatively pain free. Stay strong be reselliant. Brian

Thank you for clarifying. I wasn’t aware of the interactions until now. I have been on and off opiates since I was burned when I was 14. I’m 40 now and have put myself in withdrawal several times. It sucks for 3-5 days but then it gets better. It’s worth detoxing to give the mm a chance. Suffering with the CH and being addicted sucks. I take invega which is also a relative contraindication. I take it for bipolar disorder and can’t detox. So what happens is I don’t have a trip, but my eyes dialate and I get a body high. I have taken doses up to 10grams dry. That’s the only time my core temp went up. But nothing too high 100.1 I have managed to keep my chronic CCH at bay if I dose once a month and usually take 5 grams. If you took a low dose on the tramadol I doubt you’d have much of a risk of seratonin syndrome. And you could still benifit from the mm. I still would detox, a it’s safer and b you kick the habbbit that isn’t really helping you any more.