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ClusterBusters

Freud

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Everything posted by Freud

  1. @ThatHurtsMyHead glad you decided to go, looking forward to meeting you as well. @spinyit’s still open!!! Daquirs To Go, 543 S Riverfront Blvd, Dallas, TX 75207 pribably 25 min from the hotel, but i do plan on getting fuel city tacos one night. It’s a must. We could go here as well. It’s just down the road.
  2. Hey fellow clusterheads and supporters. After several people have strongly encouraged me to go to the CB conference, my parents decided to send me this year. I’m a little apprehensive bc I’m going through a M tank a day right now and my CH is at its all time worst. However, it will get me out of the house and submerged in a community of fellow sufferers. Bostonheadachedoc feels that it is important for me to meet other chronics. Most of the CH people I have become friends with and/or have met in person are episodic. I’m not sure it makes a difference we all suffer the same excruciating pain. But none the less I am now booked and looking forward to meeting many of you. So I figured I’d make this post to see who’s going to make sure I at least get to shake your hands. Pain free wishes! Brian
  3. There was a place like that in Dallas as well. Run by some Jamaicans. It’s by fuel city.
  4. Freud

    This helped me- hopefully will help others

    I personally could care less legal, illegal. If it works, it has no to minimal adverse reactions/ is safe then I’m all for it. But drastic lifestyle modifications may work for some, but not me. Food, sex, and sleep are some of life’s simplest pleasures. I’m not willing to give up all three. CH has robbed me of 2/3. I’m glad it works for you and I hope it continues to.
  5. Freud

    This helped me- hopefully will help others

    You’ve been a member here since 2013? Newbie?
  6. Freud

    This helped me- hopefully will help others

    @SHG I have a carried response to oxygen. Sometimes it works and others it does not. I’ve tried all different breathing techniques and such but the only thing that made a difference was getting 25LPM regulators. My response to psychedelics is varried bc if a med that I was on that is a strong blocker and has a 16.5 month elimination time. My last dose was oct 2018 so I’ve got some time until I can really say they work or don’t work for me. Lately I have gotten a much needed reduction of my nocturnal attacks but I’m dosing every 5-7 days again. Other than not responding to the caffeine/ energy stuff. I’m pretty normal on my responses.
  7. Freud

    This helped me- hopefully will help others

    For sure, many have come here making the same claims about keto diets, but like you said. Some things work for some people some times. Then wala, their “cure” doesn’t work any more. I’ll stop spamming this thread and the other cure thread. It just erks me when people come here touting cures and don’t even know what busting is or have never tried it. For the life of me I don’t understand why they aren’t willing to try it. No drastic life style modifications, just a few doses and wala, most episodics can abort a cycle....
  8. Freud

    This helped me- hopefully will help others

    I’ve tried drinking just one cup in the am, then just when I get hit for months and no change...
  9. Freud

    This helped me- hopefully will help others

    No energy product, drinks or shots has done a thing for me @SHG I do love to drink good coffee so I never stop trying. Lol
  10. You’re too funny @spiny! If we do venture out we promise not to loose you. I’d be happy to grab pizzas from Eatzi’s. It’s kikw no other pizza I’ve had. I remember my favorite was a margarita pie, then there was a goat cheese pie that I remember being real good, and one w meat. I think that was it. You’re on your own with the alcohol, I haven’t touched the stuff since the CHs started. Although I’ve often thought of just having a beer while I’m getting hit already but I never do. I haven’t flew since I started getting CH so this should be interesting. I plan on bringing many injections for this purpose. I think I have a 3 hr flight so a few injections should cover it. My oxygen supplier wanted to Y two concentrator together thinking that would give me 10LPM +10LPM=20LPM. I told them it wouldn’t work like that. You would still get 10LPM.... I suppose it’s worth a shot, a couple of people have said it works for them. I need high flows 25LPM aborts the best for me. 15LPM and I have a 25-50% abort rate.... 75% or better w 25LPM... ill snag some coffee too, but I never see a difference between my caffeine consumption and my CH though. I just happen to love coffee. There are a few great coffee places in Dallas as well if they are still open.
  11. Freud

    This helped me- hopefully will help others

    Telling most people here to give up caffeine isn’t an option. They rely on energy drinks and shots to help abort a CH. it doesn’t work for me but helps a lot of people here.
  12. Freud

    Simple Technique to Abort Headaches Right at Onset!

    @SHG do share how do you abort most of your hits in 2-5min other than oxygen or triptans? I’m very curious.
  13. Freud

    Simple Technique to Abort Headaches Right at Onset!

    “And we can actually focus on the technique rather than getting lost in semantics.” Not for nothing but, saying you found a “cure” for CH isn’t “semantics” when you haven’t cured yourself or others. Unfortunately I reread your edit and the whole thread, may be you would have a better reception at http://Clusterheadachs.com Do you even know what busting is or tried it? Back to your thread, what exactly does pushing on your arm pit do? With a fist, a finger, there is a lot of territory under there. How long do we hold pressure for. Does tickling help too? Edit: let’s be clear tickling the arm pit.
  14. Oh and I can’t say enough about the others recommendations about getting high flow oxygen set up. It should be prescribed at 15-25LPM via a nonrebreather mask or the cluster opti mask. If you don’t have oxygen. Do some reading here. It would also be a good idea to click on the blue button at the top of the page and read as much as you can. If you have questions about oxygen or busting ask away...
  15. Just a hunch but the errections are probably nothing. Being in medicine all be it far away from reproductive sex/ urology ( I’m a heart and lung surgery PA) I have never heard of an errection being a sign/ symptom of something bad going on. On the topic of busting/ using mushrooms. It is important to do at least 3 doses 5 days apart when trying to abort a cycle. It usually doesn’t completely abort a cycle w one dose. How much did he take. Is he using sumatriptan? It must be stopped for 5 days prior as it can block the mushrooms from working. Sometimes it takes more than 3 doses. Everyone is different and every cycle can react different as explained in Moxi’s rule about CH. hope this helps and you guys find relief soon brian
  16. Freud

    Simple Technique to Abort Headaches Right at Onset!

    It wasn’t my masterbation project. Reading is fundamental. It was @Elliott‘s project. But I’ll let you protect your thread. And I’ll file your cure with the rest of the “bullshit” as @Potter put it. You really come off as a caring helpful and most of all open minded guy. Looking forward to seeing more of you.
  17. Freud

    This helped me- hopefully will help others

    @jon019 I couldn’t have said it better myself! For some reason even with the blue button this place is being treated like ch.com and not cluster “busters”. Even after you educate people what this place is all about they still want to reinvent the wheel. I get that some people won’t do anything illegal, and even resort to brain surgery. But as cluster survivor states in his YouTube video he regrets his decision and old logic bc busting changed his life...
  18. Freud

    This helped me- hopefully will help others

    Opiates is not outside the box, it’s outside of standards of Pratice. Any decent headache specialist should know that or neuro or any doctor that takes the time to look up how to help their pt w a rare condition.
  19. @Racer1_NC we can decide when we get there if we just want to get pies from Eatzi’s, or venture out to Dallas and go to Enos. Both are equally good! A few of us going out to pick up pies may be easier than the whole lot of us going to Enos. Just a thought...I guess it would all depend on if there was a place to gather and bring the pizza to at the hotel... I would be happy to have some photos from the conference. I wouldn’t want to be snapping off a million photos, plus I value and respect your thoughts on privacy. After all mm and busting is still illegal. Not that I worry or anything. I wonder if anyone will be dosing while there. I’m on a every 5 days schedule right now. I know others are on some what similar schedules. This could get interesting. Looking forward to to meeting y’all. Brian
  20. Freud

    Simple Technique to Abort Headaches Right at Onset!

    @potter was dead on as usual...
  21. Freud

    Simple Technique to Abort Headaches Right at Onset!

    Well thanks for finally changing the title. I still strongly suggest you read the 27 pages of “Cure”s in the search field before you make another post like this again. Elliot’s posts are a good place to start. You never know. He may still be looking for volunteers for his masterbation study.
  22. Freud

    This helped me- hopefully will help others

    This is not outside the box thinking it’s just damn wrong. As Bostonheadachedoc will tell you opiates have no role in CH. Cambia a NSAID is a pain killer of sorts but a potent anti inflammatory has stopped a few of my CH but other NSAIDs do not and opiates don’t do shit. It is not standard of care. And any headache doc I’ve seen, even the poor local one knows opiates have no role in any of the TACs.
  23. Freud

    Simple Technique to Abort Headaches Right at Onset!

    @manishkpratap wow a little protective of your thread. Things tend to go in what ever direction they may here. And I find her experience less hokey than your “cure”. And the “rest of us folks” think your “cure” is just as if not more weird than hers. Judgmental rude people usually don’t do well on public forms. But thanks for letting us see your true colors.
  24. Freud

    Newbie here from Iowa

    Since you’re asking make sure you insist the script has the following: 1diagnosis w/ code 2 “oxygen @15-25LPM via NON-REBREATHER mask PRN (as needed) CH 3. Please supply Pt w/ M tanks and E tanks i put in the tank sizes bc some places require that others automatically give M tanks to CH patients and you need a second script for the smaller portable E tanks. You will probably have to buy your own regulators to get above 15LPM but a few places have the higher flow regs. Hope this helps, I suggest Apria healthcare. They have been great to me. All CH patients are in an “on call” delivery setup. So you call when you need. I try and give them a day but it has happened that they have come same day. The drivers say the policy is 3M tanks per pt. But I currently have 9. Lol. Every time I called I asked them to put in the notes 4 tanks, then one day they say as usual when hanging up “is there anything else I can do?” I said yes, could I get 5 tanks? They put it in the notes and wala I got 5. I call when I get down to 3-4 tanks and reorder 4-5 tanks. If I have half filled tanks or still have a full tank when they come my delivery guys just leave what ever I have left and bring all the new tanks in too. Last week the yard was low on tanks and he only brought 3. Then randomly the door bell rang last night around 7:30pm. It was one of my oxygen guys. He was on call got called out kinda close to my area so he threw 5 more tanks in the truck and brought them over and surprised me! I’ve had nothing but good things to say about Apria...
  25. Lmao DD, that’s amazing about the veteran board members coming for the first time! Well we just may have to plan an outing to the Bishops Arts Distrect DD. If you’ve never had the “pigley wiggley” @ Enos and a revolver beer (or any of the high alcohol TX brews) It’s almost a must. However, I do plan on getting pizza from Eatzis on Friday night and bringing it back to the hotel. So may be it will be an either or. I also have strict orders from Mom, Sis, and my best friend NOT to come home with out a white chocolate apricot bread for each of them from Eatzi’s. That in the toaster is heavenly... I’ll turn you into a foodie yet DD . I’m no hoity toyte foodie. I just love to eat tasty things. From $1.50 gas station tacos to 10 course meals, I don’t descriminate. It was a much better hobbie when I could consume 4-6k calories a day and not gain weight. Hmmm, have you ever eaten fuel city Tacos DD? Do you have your own favorite gas station tacos?
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