Freud
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Posts
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Everything posted by Freud
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Still fighting the good fight with a compounded formulation, working out the tweaks. Be careful if using ket w lidocaine over 10%. I was having bigeminy and other arrhythmias. I switched to a schedule 1 additive. medical grade under our protected Status thanks to all you BRAVE souls for MARChing on the HILL $LL 7h3se Year5....
mHal000oooo
~nAmâsté~
Me
Best way to catch me is phone
central NJ (&#@) YIN YANG ^*)-Snake eyes Yan yang 96
TXT first w name/Handle....
Congrats Bob,
Lets TaLK
USXXX, CH F, Moxie , SAS if the Lori offer Still Stands im ready.... Call me please if you're able Toolkit. . Mr Long horn. Reach out if you're still suffering...I;m on a time crunch RN, Who ever I didn't mention I hope your still W uS, My C spine is not doing so hot today. Thank you my Guardian angel, Id like to send you a MSG via olD contact. AnD too the woman that sheD her
light on Me when I needed you most, words cannot describe how grateful...
NaMaste....for now. Sorry its been so long But Life happenS....
Freud AKA
Me
AKA ACEsNooper
that's it...
To the Deltas, Smoke jumpers,
and Such
Home is where My Heart is,
Home Is where My Feet Are.
Home is when I give myself Grace,
Life is what happens Between Hits,
And for those that Channel our inner Spirit animals or such frame you take to get through the pain, I think we can teach y'all a few tricks. The Singapore vagal maneuvers do work for some CH, I have identified at least 7-11 causes of CH. Don't remember them all due to recent coo counter coo rapid deceleration injury, but I remember enough.
Boston McMD, PLEASE send me an email or I will try and log into portal to send you a MSG. Is it Merc Man That I need? or Bertram Gardens? I would guess Mushroom Topiary?
w out a Chaperone please
I may be on a time CrunCH
Late to Check in to an Ashram...
Check out Tegar and Chief Abbott MinGur RinPonChe on YouTube
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Oops see that was mentioned lol. Reading is fundamental
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Sleep paralysis is a sign of narcolepsy. Do you have any other symptoms?
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Hi all sorry for the long delay in updates. It appears that the infusions did help or my CH just naturally cycles a little. I finally found a doc willing to work w me using ketamine at home and I am using intra nasal and troches. They also do infusions so I am going to schedule one this week. Since I got back on at home Ketamine my CH has quieted down a bunch but I still get hit. I am using a fair amount of K per month (600-800mg total). But I have built some tolerance since I have been using it a year and a half now. Most docs won’t give you that much per day bc they aren’t used to working w it. You do have to be mindful and not over use it as you can get gall bladder inflammation and gu side effects.
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I spoke w someone in CO that was successful, no word yet for myself…
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Bring your 25LPM regulator. But I’m guessing you miss may want E tanks too. Don’t know the cost of those
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25$/ M tank. I got my first oxygen bill! Hopefully it goes back to zero w my new health insurance
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Apria, Apria, Apria.... call the local office make an account and rent a car and pick up oxygen... they are a national company....
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@Sue mcdonald
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What part of the country are you in?
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Was a fluke. Had 2 horrible days, but may be when I get some more infusions it will happen again... still worlds better having k in my Arsenal. Had 2 Attacks that didn’t respond to the K until I used more than usual. These were amongst the worst attacks I’ve had.... CH is always changing even when you’re chronic...
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Had 2 nights w no CH this week!!! Got slammed last night but I’m grateful fir the nights w no hits!!! Going to see if a few more infusions help after the new year. I’ll keep y’all posted.
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A week back on the ket and already my CH is much better!!! Decreased frequency and intensity for some hits. Slept through the night last night...
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Hey folks sorry for the delay it’s been a bit of a clusterfuck lately w the move/transition But I’ve finally found a doc that is comfortable w ketamine and CH. we started w nasal spray and troches, and they do infusions which I’m going to try and work in per their recommendation . They don’t advertise that they do infusions like all the money hungry places here. They recommended I do infusions to kick back the beast so it responds more to the at home ketamine. ... they are more affordable as well. Found a pharmacy that charges 1/4 the $ as I was paying before... I can breathe again wooo hooo!!!
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Please put something in your stomach if you take the nsaids!!! You can get an ulcer in 3 days if you’re taking 800mg around the clock. Seen it happen to a surgeon I worked w,..
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Ketamine is a Controled substance and it is schedule 3, refills can be written (although most docs won’t). It’s addiction potential is lower than most painkillers. It is the class of anesthetic drugs called dissociatives. At lower doses it blunts your awareness to your pain. At higher doses it can abort CHs in the intranasal form or oral troches. Usually used in an operative room or procedure suit in the IV or IM form. In the out pt setting it is becoming a very trendy thing at ketamine infusion centers. They are claiming it’s a miracle drug for depression, PTSD, migraines, CH, chronic pain Pts. It has to be made at a compounding pharmacy and can get pretty expensive depending on the state you’re in and local prices. When I was in NJ the average price for the spray and the troches (when I was getting both) was about $550/month!!!! Down here in FL I got quoted a price of 1/4 of what I was spending in NJ. The problem is it’s hard to find a Dr that is comfortable working w it and prescribing it. It’s recommended to take a drug holiday for 3-7 days a month depending on your Drs recommendation to prevent your body from building a tolerance. Some docs don’t say it though. You might only need half the script I was getting. I have a high tolerance to most drugs. I was exposed to K in high doses when I was burned for regular dressing changes... Id take trex in the plain of you don’t think you could grin and bear it. Use it in the plane, may be in the trip. And pay for the consequences after. For me once I stop using it my CH returns to its normal shittyness. Lol.
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It is a dose dependent thing how much dissociation and that few beeer feeling. The oral is much less noticeable. If you take the dose of nasal I was on it can give you a drunk like feeling for 30-40min. All in all unless I’m having a 9/10 that won’t break w one oral then I use my nasal spray 5-10pumps (so 50-100mg). I have never felt anything like the infusions when using my at home ketamine. I’d say you’re pretty functional. In the beginning when I got much weaker nasal spray it wouldn’t abort my CHs but I used enough so you feel a little spacey and you just get through the pain easier. You have the CH, you know it’s there but you can ignore the pain a fair amount. My ideal situation is to have some intranasal at 100mg/ml and 100mg troches. Save the spray for the ones that don’t break. Or a 10.... hope this babble is helpful, I’m at kipp 7 and climbing atm...
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For us chronics, at least me. I know the hits are coming numerous times a day. Often kipp 9-10s, so I see it like this. Plane, train, home all good same sht. There is no stopping them some times. But anything except the dentist while they are doing oral surgery. That was the worst. Take some trex and hope for the best. In the last 5 years I flew 5 times. Only once did I get a CH and I took a trex (that was when I relied on them). Now I don’t fly with anything except ketamine if I have it. That would be a great abort on the plane. People it’s not reported much but oral and nasal ketamine will abort CHs!!! If you get fewer attacks your less likely to build a tolerance. If you are worried about disorientation or other side effects the oral (troches) are much less intoxicating when you are a newbie. Takes a bit longer to kick in but what a life saver for me in the past. Having both is my goal.
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Easiest thing to do is bring a regulator and go to the welding supply store or Freight and Harbor” and get a welding tank. Otherwise you need a script sent to one of the larger companies like Apria or Lincare I’m not sure how you could get that done as they won’t have a US medical license
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The day continued w big hit warnings like when I first got CH. so I didn’t hold out on the Oxygen. So far I’d have to say I see some changes that are a good sign. No luck finding a doc, even reached out to an anesthesiologist in Orlando I used to work w. Unfortunately he didn’t know of any one... I have an appointment fit the first w a headache and pain guy that did me a favor/ professional curtesy and let me make an appointment without insurance. Don’t have high expectations but who knows. Office staff did tell him about the ketamine... at this point I’m not sure if I should fly somewhere to see a doc that does work w ketamine and hope they will do refills or telemedicine in between in person visits. Which my former pain doc won’t do. It would only work if they would. Fingers crossed a few more infusions do the trick. The CRNA did tell me at my first infusion that the chronic pain protocol is 3 days of 3hr infusions. I’m going to talk to her at/ before the next infusion and see what she thinks. Have to talk to my guardian angel as well...
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How about cowboy cheer leaders. Lol last night I only had 2 strange CH attacks while sleeping. Strange in the sense that they were like extended warnings of a big hit coming but I used oxygen to abort... going to call Apria today and see if they will swap out tanks.... fingers crossed they don’t give me a hard time... best wishes to all happy turkey day!!!
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2 hits on the overnight and one this am. Not as bad as my normal attacks. Hopefully it continues.
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Second infusion done, two hit so far since the infusion. Hopefully I get some sleep tonight. Still no luck finding a doc that uses ketamine here in FL other than infusion centers or psychiatrists. Exploring docs in north central FL now...
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I have the opposite I get CHs all the time and once a month to several days in a week I’ll get a 24-48hr migraine. I’ve always known my migraine triggers and try and manage 2/3 and fend them off. Eating enough extra food for brain fuel while being sleep deprived is my main preventative. The other trigger is smoking too much.... but it only happens 1-2x a quarter... thank god. Both suck but I eventually fall asleep w the migraine and am woken by a cluster.
