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Everything posted by Freud

  1. My prayers and thoughts are with you! I pray you find a good surgeon and are alleviated of this problem all together. My heart goes out to you @Dallas Denny
  2. Thank you all, I reached my destination today. South East FL... it was a rough trip on me and my pup but we made it...
  3. Hey @FunTimesim traveling cross country for the next couple of days. Call me when ever. Seems like we have similar patterns. I successfully got the house ready for closing. By bye north east. Hello Cough cough Florida. On the road w my pouch. Any one want to catch up the phone lines are open. You get all the venting you want absolutely free. Act now. If you don’t have my number but want to talk send me a msg.
  4. There is an upside, no guessing when you’re going to get hit.
  5. How are y’all getting the YouTube to show up in the post and not a link like mine?
  6. Id replace the “ 25 of “to “15-25LPM.” Otherwise you need a diagnostic code on it and you’re golden. Please don’t forget the code they will refuse to pay. It’s called a ICD 10 code.
  7. I know a Female CHer from here who doesn’t post much but turned chronic last year and has the constant shadows but no major hits.
  8. PS 7LPM is way to low. We recommend at least 15 lpm w a nonrebreather mask but 25 lpm is most effective for most of us.
  9. Lactation safe! I know @xxx has several grand kids whose mommas were on his regime or a variation there of...
  10. And best part is there is no side effects except for may be drying you out. Although I fell asleep in my long post hit phase last night, and got a little dry. It’s the exception for me. Unless you have severe COPD and you live at a saturation in the 80s there is no such thing as over use.
  11. I give up, I can’t find it. It was a country song about CH. a Neuro played it fir me at my first CH visit. He was just tickled pink to find it on his phone and played it for me. It was on iTunes but I can’t find it. I’ll call the worthless doc or stop in and see if he can tell me what it is.
  12. Also interesting rid bit found when searching: https://www.rollingstone.com/music/music-news/bad-brains-h-r-raising-money-to-combat-rare-headache-disorder-182309/
  13. Nor music but amusing and found on YouTube when searching for this country song about CH. https://youtu.be/7GadfaskoH0
  14. PS, please look into Oxygen. I put it off for the first year I had CH and even though I have some stubborn CHs that it doesn’t always work for it’s truly a godsend. If you want to see if it works for you go to the ER during a hit aka attack and see if it helps. It has to be high flow, at least 15liters per min. Preferably 25LPM, but most ERs don’t have a regulator that goes that high. With a nonrebreather mask. sorry if I sound like a broken record...
  15. Busting isn’t part of most peoples abortive agent. There are some that try the SPUT (Small piece under tongue) and have reportedly gotten relief, but that’s not been true for most that have tried it. When we say busting aborts CH we mean aborts the cycle or gives you CH free time for chronic CH sufferers. I highly recommend connecting w @xxxand try the D protocol.
  16. Aside from the Vitamin D protocol which has a similar success rate to busting, oxygen will be your best friend. It’s worth the money! Are you sure insurance won’t cover it? CMS approved it and insurance cos usually follow suit. Unless you’ve tried to get it in the last 6 months I’d try again. There is a trusted Dr list in the general board. May be one is close to you and you will get real help. Where are you located? My heart goes out to you. I couldn’t imagine how hard this is on you.
  17. @eeeHave you tried anything else from this site like busting? Or the vitamin D protocol? They are more of a Jesus shot if you aske me than some doc who won’t disclose what he’s using.
  18. Thank you @Rod H I’m fighting the good fight. Did manage to get a little nasal spray for my trip and to bridge to a new doc. However one ketamine clinic I spoke w told me at home ketamine nasal spray is illegal in Florida. I’m not sure if that’s just for Esketamine for depression or all ketamine. I’m going to be devastated if they were right about the law. I really need the oral troches and then the spray if the troches and oxygen don’t abort. Less than a week till we move and I’m shitting bricks about not having oxygen if Apria won’t fill my tanks while I’m “on vacation “ until my health insurance gets switched. Thank god CMS approved oxygen this year. Thanks to all that pushed for it all these years.
  19. Not sure if it should be tried w triptan reaction but may be worth looking into. Never heard of it aborting a cycle but attacks yea. Or a DHE infusion and inpatient setting to get a rest I’ve heard others do. @BostonHeadacheDocany advice?
  20. And you’re using a regulator that goes to 25LPM? My CHs can be resistant to O2 or rebound when I come off but it still helps sometimes. But not less than 25LPM and if I’m in the last quarter of an M tank it doesn’t work as well.
  21. I noticed as others did that exercise, mainly in the form the form of sex either triggers a CH 50% of the time or does nothing. Otherwise I don’t consider fast pacing exercise (for me) the same as running or doing push ups like others have reported doing. I noticed that the runners on here over the years sometimes report aborting w running or burpees but do get hit in the cool down phase sometimes. as far as other pain during an attack, I’ve slammed my knee into a table by accident and hardly felt it or stubbed a toe. But it has no effect on my CH hits. Several compadre here have reported slamming head into things or punching things only to not get relief and end up w injuries. Thankfully I’ve never gotten that frustrated.
  22. I’ve been admitted for psych evaluation and the first thing they do is test you for drugs. I’ve dosed the day before , less than 24 h told them I took it and they have told me “that’s not tested for”. Unless it’s a government organization FBI, CIA, NSA type job it’s not tested for. There have been several CB members that work w the department of corrections that bust. One kept it a secret, the other I know personally and his boss was supportive as he has witnessed said CB member get hit w a kipp 10 and ran to the welding tank to hit the O2... Another person who has YouTube videos went so far as to have Stim implants in his brain that didn’t work bc he didn’t want to do something illegal but finally tried busting after a police friend told him he was being crazy.
  23. @Icantdance mm and L are hardly ever tested for and clear your body very quickly. Unless they do hair samples you’re fine. Please feel free to contact me for growing help. I have made several helpful posts over the years. Err just got another hit. Bbl
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