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Showing content with the highest reputation on 02/20/2020 in all areas

  1. It appears they are slowly going away, I am having what I think is called shadow pains but no full on attacks now. Last night I was not woken up at all in pain. I am also on the last day of the antibiotics. I have not needed imitrex since Tuesday night. As for the emgality I have not had a migraine since the day after I took the emgality and my normal (for me) cluster register at a 10 + in painlevel but none reached beyond a 5 this time around also I normally have 4 or 5 per 24 hour period this time I never had more then 2. SO I may be a bit quick on the good for the emgality but so far so good. I still have slight constant pressure type pain daily but I have had thet for many years. My neurologist told me I should be the poster child for headaches. He is a great doctor for us with headaches of any kind. He even gave me his private email to send him things from research I find on headaches. Again thank you all very much for the help. If there is a way to donate to the site please let me know.
    2 points
  2. I did lithium for several years - went from 2 episodes a year down to one, and the episode was shorter and less intense. This was several years ago, and after I found out I was allergic to verapamil. There were very few alternatives at the time, so I went with it, but I also believe that it harmed my kidneys long term - my eGFR hovers around 60 to this day - at some point I tapered off to do a bust, and never went back. I no longer use triptans either - just some Stacker B12 energy shot (cheaper than 5 hr energy, available at WalMart) and oxygen, where I invested in a demand valve regulator, which I think works better, but is several hundred dollars (I use a welding regulator to go to 50 lpm, and the demand valve takes it to 40 lpm: http://www.porterinstrument.com/product/dental/Porter-O-Two I don't use the quick connect, but have it screwed into a welding regulator. I have also been enjoying Reishi mushroom tea after my oxygen, with a little stevia, as the oxygen is very drying. Reishi is not a psychedelic, but I find it relaxing. I've also had multiple occipital nerve blocks, temporal nerve blocks, botox - none of it ever really helped long term. The only nerve block I haven't tried is sphenopalatine, which creeps me out a bit, but I may get there eventually. I'm currently messing around with Aimovig and Ubrelvy. The beast broke thru the Aimovig 70mg which had me headache free for a year and a half, so I'm going to take the Ubrelvy at night for 10 nights straight to see if it breaks my episode, and follow that with the 140 mg dose of Aimovig. Had tried 240 of Emgality, after a dexamethasone taper, but it did nothing, and the HAs continued.
    1 point
  3. Thank you both for the information, that's the kind of thing I was struggling to find online in terms of understanding why one can be safe and the other not. I have edited my opening post to direct readers to the replies highlighting the risks. I read in one of Peter Goadsby's papers that CH are very resistant to placebo effect, so I don't think my recovery so far has been down to that. It may be that, for whatever reason, the psilocybin took longer to reset me this time and that is the true reason for my bout reducing to mere shadows. That is one of the biggest problems with finding these 'home remedies', they're very prone to unforeseen interference. Or it may be that TENS can provide the same results as GammaCore but with much higher risk. Pebblesthecorgi, I am sorry GammaCore did not work out for you. I understand Kings College London finished a preliminary psilocybin trial in 2019 that suggested the drug was well-tolerated by patients, implying that further trials would be easier to authorize. Out of all the treatments over the years I still believe that psilocybin in some form will provide the universal and relatively risk-free relief we all seek.
    1 point
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