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Showing content with the highest reputation on 03/04/2022 in Posts

  1. What other medications are you taking? How else do you manage your clusters? You want to look into getting oxygen now it will change and save your life. You can abort a cluster in as little as 5 minutes with the correct setup
    3 points
  2. Long story short. I have been more or less PF for 10 years using psychedelics and Batch regimen (Vitamin D anti-inflammatory regimen). I was severe chronic before this so for me this was a working combination. In 2020 I became a father. I work as an Expert by Experience in my country, this means I speak publicly about how I got better including treatments I use. Due to psychedelics being illegal in my country there was a child welfare notification made. I agreed to go by the laws and rules and not to use psychedelics in the same house with my son. So I had to rely on Batch regimen alone. I was scared. Eventually Horton (cluster) woke up from the long forced remission and I adjusted Batch regimen dosing accordingly. At some point my neurologist had to consult an endocrinologist due to my S-D-25 (Vitamin D 25(OH)D) being so high. Endocrinologist freaked and told me and the neurologist that I have to stop using Vitamin D immediately. I was diagnosed with hypervitaminosis D and additional blood tests were ordered to see if there is toxicity or organ damage. I stopped and was more scared due to shadowing already present after stopping Vitamin M/L. Then all hell broke loose. You know what that is. I had to use oxygen again and triptans in emergencies - they started to increase frequency right away. Daily Horton robbed me from my ability to function and live life, I had to cancel whole week of work. After 10 years I started being self destructive again. I called the neurology department. Arguing with the staff and the nurses. I had to tell them I can't do this. Really can't. I feel sorry for my neurologist, an excellent doctor and great human being. I am on Batch regimen again - currently PF after loading doses. My S-D-25 (Vitamin D 25(OH)D) is very high but other blood tests came back normal. But I am doing things I am advised not to do. Next step is choosing psychedelics - again and moving away from my son to my own apartment because the law says so. As treatment I was microdosing but it's not possible to explain it to any one of the officials - how this treatment may or may not affect my fathering capabilities. I certainly could shed some light on it, being an alcoholic now sober for 8th year. But is is what it is. I'm scared but I will survive. I always have, we always have and we will. You guys are heroes living and surviving with this. You got this ! PF WISHES
    1 point
  3. You should also look into the D3 regimen it really has helped me (has not stopped them but tampered down the intensity big time). There are more options than the triptans which in the past have drawn my cycle out longer than normal. You may also want to have a peak at the blue ribbon at the top of the forum ("new users read here") as that is an option that works well for many I am told.
    1 point
  4. OXYGEN. Read all about it here and get it as soon as you can.
    1 point
  5. Annett, triptans are both a blessing and a curse, they work great but cause rebound headaches. I would suggest trying to figure out something else to controll the headaches and only use triptans for emergencies. I know this is easier said than done, I have been suffering with these for the last 40 plus years.
    1 point
  6. Some people find that when the O2 level in a tank is low, the O2 is less effective, or even doesn't seem to work at all. It's true for my daughter and for at least a couple of others here. Since you've been using O2 for a long time, maybe that's not the case for you, but it did come upon my daughter suddenly after many years of not being an issue. An e tank can of course get low pretty fast. One person has said that if you can increase your flow rate it will work even at low levels.
    1 point
  7. Congratulations. While most would never approve, I just take a few to several 50mg Tramadol per day in conjunction with 100mg of Toprimate. When shit hits the fan, I bump it to 200mg. I add a Beta Blocker such as Propanol at 10mg, up to three times per day, if I am going ape shit. Coincidentally, the more panic attacks, the worse the headaches. It all is interconnected. Then, I added 100mg of Naltrexone. Somehow, it all works. The 100mg of Lamotrigine and 900mg of Lithium inadvertently help as well. As do that 50 mg Hydroxyzine that I pop like Candy-sometimes 4 per day. What? I get flipping panic attacks. Drugs are an easier solution. Psychoanalysis takes several years: I am only 2 in. Anyways, all of it helps. You do you. If those expensive drugs help, great. My bill never exceeds $20 per month, for 6 different scripts. And, some have 180 counts. I quit the 210 counts of Fioricet, 60 injections of Ketorolac per month, and 60 DHE injections per month. That crap caused massive rebounds. I found the right cocktail and now have zero abortives. You tell me. I am happy for you. Good luck. Honestly, I am not comfortable or so sure of the science behind any of the CGRP. That is me, however. Lithium, or Lamictal, is a hell of a drug! Lithium works miracles, tames the madness in the head. And sleeping sober? Are you fucking nuts? That is when the circus begins. The copious amounts of knocking me out drugs are essential.
    1 point
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