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Showing content with the highest reputation on 06/17/2022 in Posts

  1. Currently. 1:28pm, there are 75 users online. One member - ME!! Those are the Bots that troll for information and then roll off with it. Also why we try to keep some topics on the Members Only boards. We do get some times when the board goes pretty quiet for a few weeks then gets really busy again. I take the calm as people are doing better and enjoying the day. Happy Friday Bosco!!
    3 points
  2. Back at ya Spiny!
    2 points
  3. Good to know. I suppose there may be a lot of folks that are just sifting looking for answers prior to asking questions which is a good thing. I sift on here a lot even on really old threads and still find interesting info.
    2 points
  4. I had been cluster free for three years since being on the D3 regimen (only shadows that were easily knocked out by sumatriptan). Huge thanks to Batch and this forum for gathering the data and creating this wonderful regimen. Recently had blood work completed and my D (25) was approx 120, so my PCP wanted me to cut my D3 intake in half to 5Kiu. Shortly after dropping it down to 5k (approx 1-2 weeks) I started getting walloped again with my first cluster in years. The initial cut to 5k was approx 1 month ago, so the last 2 weeks have been unpleasant to say the least. After doing more reading and checking my calcium (which was 9.7) I realized I never needed to cut the D in the first place. For the past week I’ve been taking 50kiu daily with the rest of the regimen to get my D back up and still getting beat up pretty bad. My plan is to continue at 50k for one more week and get blood work done at some point late next week. I was curious about the forum and/or Batch’s thoughts on this plan. Thanks in advance!
    1 point
  5. Odd to see this forum be so quiet. I sure hope that's a sign of happy noggins and that all you fellow cluster heads are getting a well deserved break!!!
    1 point
  6. Hey TTF, This is the first year that I have avoided the sun at all costs. And it has put me in the position that you are now. I have never had a cycle in summer. but now here I am. Glare...... One hit the first night, then made 4 for the second night. O2 is working great, but I am tired of it already, so I definitely feel the pain and all that mess. My D3 is now upped too! This cycle has been going for over a week now. Soon, I will be P.F. I hope and you too!!!! Hang in there and we will get better in short order!!
    1 point
  7. At the home page, there's a tab (upper left) called "Users Online." It says that right now there are 94 users online. I don't know how that number is arrived at, and I suspect it's not anywhere close to an actual reflection of how many people are actually making use of the site (as opposed to search engines finding it, or maybe multiple entries that reflect each time one person does a different thing), but maybe it does suggest that the information is being used, even if there are not many active discussions. (There's also an "activity" tab where you can see that there are people joining.)
    1 point
  8. That's so awesome that you went three years on the D regimen without a CH. I never could justify in my mind why physicians with some knowledge of CH wouldn't suggest the D protocol and or why they would think so archaicley that they would back us off something that was improving our quality of life. Seems that your calcium levels should have been checked alongside the D and a few other things that seem to give cause for concern when on higher levels of D3 prior to telling you to back off. I'm not anti doctor or anything like that and see my regular PCP often as well as my neurologist. Overall my neurologist is a good guy but even after all this time an numerous emails back and forth I have yet to receive a response on my D3 questions. Idk it just makes me sad that natural approaches are not widely tought in medical schooling. I hope your levels get back to that of repreave soon!
    1 point
  9. ....appears like you done figured it out.....sounds like the burn down Batch occasionally describes as a "self test".
    1 point
  10. ...summer bug out...but that CH monkey is a bitch....
    1 point
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