Leaderboard

Thanks for the info Bosco! Happy that you found a solution.

So for the last few months (ever since upping my D game to the full Monte). My nose has been so dry that it is cracked and bleeding and hurts to wiggle... (Really sucks if you need to bewitch someone).. Anyhoo I was reading that antihistamines can cause the nasal passage to dry out to this extent. I had been using neosporin but it didn't help. I switched to Vaseline and it has done wonders! I also read that it traps allergens so that's a plus. I most certainly feel like I owe a ton to this regimen as my last attack was on the third of July.. a one off I hope! I have been due for a cycle for a month and some change but nope nada. I suppose what I'm getting at is that if your gonna go full Monte you may benefit from Vaseline to the nostrils...

Congrats on the restored wiggly nose Bewitching capabilities! And the fact that you're still keeping the cluster bunny at arms length like that isn't half shabby either(!!!!).

Yes, the cycle is definitely coming to an end, this one just seems to be sticking around longer (which as I mentioned I think is a result of taking so many immitrex injections). But at least I'm down to one attack a day and generally they are becoming shorter and less severe. Although today I had a particularly bad one. I think I will ask my doctor for the 5-6 days of prednisone and as far as sleeping, I've been trying Benadryl and melatonin to see what works best for me, but still am struggling with getting more than a few hours at a time. I'm hopeful though that I'll one of these days I'll go to sleep and wake up 7-8 hours later. Maybe tomorrow for my birthday, fingers crossed!

Thank you! No headaches today! What a great birthday! And I used facebooks fundraising to raise $65 for cluster headaches research so far!

Happy Birthday @Titan32, and best wishes for a 7-8 hours of straight solid sleep night, as unusual as that might be for a typical clusterhead, whether in or out of cycle!

Introduction This forum is a dedicated space for open discussion about New Daily Persistent Headache (NDPH). This forum is moderated by NDPHaware, a new organization and website sharing information and organizing advocates around NDPH. NDPHaware.org is starting as a project under Clusterbusters. The primary objective of NDPHaware is to find and promote treatments that will help people to effectively manage their condition. The NDPH community will work collaboratively with the broader headache disease community to support research, education and advocacy initiatives. By working and advocating together, we will be stronger and more effective in reaching our shared goals. There is some anecdotal evidence that psychedelics (Psilocybin, LSD, and others) can help with NDPH. NDPHaware supports further research into psychedelics as potential treatments for NDPH and other pain conditions. The "NDPH Psychedelic Discussion" Board is a log-in required space for open discussions about psychedelics as treatments for NDPH.

...spiny is entirely right that O2 suppliers must follow the script, BUT, it's important to note that YOU don't have to. get the script (hardest part) then crank that regulator (you bought your own on amazon to save on leasing, right?) to whatever works....key being reservoir bag full enough for full breath each time. for many that's 15-25+ lpm...some even higher. no one knows or cares what that is, find the flow that works for you. some find that starting high then lowering as the hit subsides an effective strategy and saves O2..... ...one of the saddest phrases in clusterville is "oxygen doesn't work for me"...when, in fact, it doesn't work at that pathetic flow....turn that baby up!! and experiment with various breathing techniques too. hyperventilation most frequently reported successful, but also slow breathe and breathe and hold...or a combo of all, can be the bliss.....