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I'll be there. Excited to see my Cluster family!

Been a very long time since I regularly posted here. 2005 maybe. We all used to get way off subject and have a good laugh too. Still get news updates etc. I don't check many though, prefer to forget I ever went through this. Tempts fate kind of thing. I had them 18-40 classic case, they just went away in 2006 when I turned 41. Used to get them for around 6 weeks either triggered in Autumn or Spring, abrupt pressure chages in weather. I live in Scotland so no luck there as weather can be all over the place even at the best of times. Only got them back for one season in 2012 but was going through a hell of lot of stress then and hence a lack of sleep, never had them back since. Anyway reason for post is this: I have never known one person in the flesh in all my years (57 now) that has suffered from clusters so I can't test this out. Luckily my 2 sons ( 22 and 27) don't get them. One has twinges the other nothing at all. No other extended family members either. The one that does I just tell him to get on Oxygen and he has never went full blown..yet. Fingers crossed. I still have two 15ltr flow rate bottles on NHS just in case. All I get now are long severe sneezing fits on really bad weather days I'd normally be going into an attack and insomnia on blustery nights. It never develops into the usual signs of onset though. So maybe worth a try to induce sneezing and see if it helps stave one off. Sniff a little pepper or something. Sounds a bit silly I know but..nothing ventured etc. Sorry for the long mail just don't want to anybody to think I was a troll or some kind of idiot. Great to see the site is still helping folks. Wish you all the best. Jason.

Hey Abyss, My bird dog alerts me when posts or PMs are made to me or about vitamin D3 here at Clusterbusters so I've read your post and assays for 25(OH)D3. Off hand I'd say you're headed in the right direction given you were clearly vitamin D3 deficient. The following chart from the study of CHers taking vitamin D3 and cofactors to control and prevent their CH tells the story. I've been running this study continuously since December of 2011. As you can see, you were clearly under the black baseline normal distribution curve on the left. Just be careful with the loading dose of 100,000 IU/day of Bio-Tech D3-50 and 0.5 mL (40,000 IU/day) of the micro D3 taken sublingual (under the tongue) for 5 days. My dear friend Henry Lahore who runs the VitaminDWiki.com web site calls this a "Cluster Balm" as it totals 700,000 IU of vitamin D3. In military parlance, this is a MOAB (Mother Of All Bombs) when taken as total loading dose. Accordingly, you need to use the Shoot - Look - Shoot -Look doctrine when loading with the Cluster Balm as it is very important to assess the effects of a loading dose like this before loading any further. In short you load for five days using the Cluster Balm then drop back to a maintenance dose of 50,000 IU to 100,000 IU per week, while waiting for a week to 10 days for your 25(OH)D3 to equalize, then see your PCP for lab assays of your serum 25(OH)D3, calcium and PTH to assess the situation and its effects on your calcium homeostasis. If your 25(OH)D3 is still low < 80 ng/mL and serum calcium is still within its normal reference range, load again then test. See your PCP for these assays and have her specify the following from Quest Diagnostics in her lab orders: 25(OH)D3 - She should order the Quest Diagnostic assay method called the QuestAssureD™ 25-Hydroxyvitamin D (D2, D3). Test Code 92888, CPT Code: 82306. This LC-MS/MS assay method can measure serum 25(OH)D2 and 25(OH)D3 up to 512 ng/mL https://testdirectory.questdiagnostics.com/test/test-detail/92888/questassured-25-hydroxyvitamin-d-d2-d3?cc=MASTER The lab order must specify this assay by Name and Test Code as Quest has other assays for 25(OH)D3. She should also specify the Quest Diagnostics serum calcium and PTH (Parathyroid Hormone) assays as: Parathyroid Hormone (PTH) Intact and Total Calcium, Test Code: 8837, CPT Codes: 83970, 82310. https://testdirectory.questdiagnostics.com/test/test-detail/8837/pth-intact-and-calcium?cc=MASTER These three assays taken in concert, provide a very good assessment of your calcium homeostasis in action. Regarding the warning on your lab results that reads: "Values > 80 ng/mL may be associated with toxicity" Don't believe it. This is BS and a clear case of Big Pharma propaganda to discourage people from taking higher doses of vitamin D3. I'm a 1944 model and I've run my 25(OH)D3 more than three times this high up to 273 ng/mL yet I'm still here in good working order and good health with no hypercalcemia, a.k.a., Vitamin D Intoxication/Toxicity as indicated in the following 5-year chart of my assays for serum 25(OH)D3, calcium and PTH. Regarding your doctors scoffing at vitamin D3 therapy. This is understandable and not her fault. She was short sheeted in medical school with a curiculum devoid of nutritional medicine. As Big Pharma and their paid political hacks in Big Government fund most medical schools with lavish grants (using our tax dollars), they're taught there's a pill for every ill. In general, 9 out of 10 pharmaceutical treatments address only the symptoms, not the cause of a disorder. And when these treatments have side effects, Big Pharma has another pharmaceutical to treat the side effects. It's no wonder that most people over 50 are actually suffering from polypharmacy - Simultaneous use of too many pharmaceuticals. That said, I'm not a doctor. I don't diagnose, prescribe or treat people. I'm just are retired old Navy fighter pilot. What I do is provide information outreach with the best available information on the benefits of good health and a strong immune system made possible by taking optimum doses of vitamin D3 and its cofactors. What CHers and Migraineurs do with this information is up to them and their PCP. Take care and please keep us posted. V/R, Batch

One of my warning signs is opposite side pain. The pain varies from spike like pain that mimics my cluster pain to a burning sensation that makes my skin crawl. I've never had a full on switch of sides but definitely opposite side cluster related pain. I'm a rt sided banger but i suppose it’s my diplomatic side wanting to be fair...

@Tony Only Wow! Thank you for this. It's *very* encouraging. That makes me want to come off the indo all the way. I'm down to 50 mg daily from 225 mg, but I think I can go all the way. I too am doing the Vitamin D protocol (very high dose in my case, as I seem to have multiple conditions and they all seem refractory, e.g. 100,000 IU daily, with a whole bunch of cofactors, under @xxx / Batch's watchful care), and busting, with help and guidance from the generous @Jteira. Here's to complete healing!

@Cast Iron, you could read this book about the Coimbra protocol to get an idea of side effects of really high-dose Vitamin D. I'm finding it helpful and informative: https://smile.amazon.com/gp/product/1983353248