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trjonas

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Everything posted by trjonas

  1. @razorPP Thank you for posting about this! I just ordered some B1. I hope it has started becoming effective for you again!
  2. @alikhanI have this too. (I'm female) It's a known type of headache that's responsive to indomethacin. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5586787/
  3. This article is great! Notwithstanding the naysayers in the comment section (my criteria for a treatment is: "Does it work?" If it does, well then.), I'm encouraged, because not only is Vit M busting helping with my HC / clusters (the jury is still a little out on whether I have both), I can rest easier knowing that it's good for something else that runs in my family long term: vascular dementia. I appreciate the posting of this link!
  4. This so well written! Wow. I especially love this part: But the whole thing is really awesome!
  5. This article is excellent!
  6. @MaxHead I love Asheville! Thank you for letting me know - that's only about a 4 1/2 hour drive from me. I was actually hoping, as part of knowing who is near me, to petition South Carolina's legislators to make psilocybin and LSD legal for medical use, as Oregon has done with psilocybin. Anyone who lives in South Carolina could join me to make our cause more effective. That is, if I can get rid of my current cycle!
  7. @Tony Only I'm very glad you found it helpful! I also greatly hope this will be helpful for many. I so want to help anyone (including me!) with HC, clusters, and anything like them. They are so hellish and disabling. One note / update: on another forum it was mentioned that Gliacin is taking an extra long time to arrive due to COVID. These folks (they have HC) said to expect this and if it works for you, to make sure to order your next bottle(s) far ahead of time. They didn't give a time frame but I have the impression from the way they wrote it that it was a matter of extra weeks, not j
  8. I'm curious to know too!
  9. Jessica @Jteira, you are the best! Thank you for this. I have some Zofran so I'm all set on that front. And you've set my mind at ease about slapbacks. SO appreciated!
  10. @JteiraA few last questions for you, if you can stand it! - I'd love to friend you on Facebook but couldn't find you. What's your FB handle? (If you don't mind, that is) - Chris Moore, on this forum, recommended taking an anti-nausea OTC pill before busting with seeds. Does the same thing apply to busting with MM, do you know? - Since you have HC... did you get slapbacks with MM busting or is that something unique to people with cluster headaches? I'm trialing the indo but it's early days, so I can't say anything definitive on that front yet. Thank you for your patien
  11. Hi @Tony Only, Also, I just came across this today: Oral glutamine attenuates indomethacin-induced small intestinal damage https://pubmed.ncbi.nlm.nih.gov/15128285/ This study was done on rats, not humans, but it still might be worth a try. Here's an L-glutamine supplement from a brand I like (generally less fillers than others) on Amazon: https://smile.amazon.com/Pure-Encapsulations-l-Glutamine-Hypoallergenic-Gastrointestinal/dp/B000VYZG0O
  12. Hi @Jteira! It's great to meet you, Jessica. I wasn't one of the ones to contact you on FB, and I'm so glad you answered me here. I read on another forum that someone else with HC had not responded that well to indo, and also ended her(?) headache with large doses of psilocybin. I would like to do that, but have no access to vitamin M and am too incapacitated right now to be able to grow any. I've been RC busting as a result. If I can get past this headache, then I'll be able to. I'm also trialing indo right now but am only on the second day at a low dose. I also read a medical study whe
  13. Hi @Siegfried, I'm sorry for cross-posting this, but from my response to another person with HC taking indo on another thread, in case it helps you too... * I too thought I had cluster headaches but other kind and knowledgeable people on this forum suggested I might have HC, so who knows... yet. I'm trialing indo now, but I wasn't actually sure if I'd be able to get it, so I looked up alternatives. I found a really good alternative that medical studies have shown could be as effective as indo, but without the side effects, though it takes longer to take effect. It's boswell
  14. P.S. I also wrote this in response to @Dipper, in case it helps your friend: Also in the meantime via Amazon... you may be able to alleviate some of indo's side effects by using herb / spice extracts. I know that might sound silly but I'm taking indo now and ginger has actually done the trick, at least at low doses. Turmerin is another I'm going to try, and I'm waiting for Marshmallow Root (coats and soothes the GI tract, guards against heartburn), plantago major / Greater Plaintain (counters irritation and inflammation in the stomach and bowels, combats gastritis, #3 :O, and
  15. Hi, I know I'm late to this thread but if it helps I just wrote an answer to a post by @Dipperabout Gliacin, a specialized extract of boswellia serrata. I believe they will ship it internationally from the US. It is an alternative to indo that does much the same thing as indo, but takes a bit longer to work, and most importantly has FAR fewer side effects. Here's my post: I found a really good alternative that medical studies have shown could be as effective as indo, but without the side effects, though it takes longer to take effect. It's boswellia serrata and there's a doctor in
  16. I have also seen this in the medical studies - same as with migraine / HC (hemicrania continua). I think that for how long migraines and headaches have been around, medical science is dismayingly WAY behind the 8 ball. I say this not to be negative but to say not to take what doctors say as gospel, because plainly medical science itself is still uncertain of classifications and many doctors are not aware of all the treatment options there are. Not just busting, but other options beyond the usual pharmaceuticals that don't work very well.
  17. @Dipper Also in the meantime via Amazon... you may be able to alleviate some of indo's side effects by using herb / spice extracts. I know that might sound silly but I'm taking indo now and ginger has actually done the trick, at least at low doses. Turmerin is another I'm going to try, and I'm waiting for Marshmallow Root (coats and soothes the GI tract, guards against heartburn), plantago major / Greater Plaintain (counters irritation and inflammation in the stomach and bowels, combats gastritis, #3 :O, and can repair damaged mucosal tissue like the gut wall - I purchased a kind not made
  18. Hello @Dipper from another newbie... I too thought I had cluster headaches but other kind and knowledgeable people on this forum suggested I might have HC, so who knows... yet. I'm trialing indo now, but I wasn't actually sure if I'd be able to get it, so I looked up alternatives. I found a really good alternative that medical studies have shown could be as effective as indo, but without the side effects, though it takes longer to take effect. It's boswellia serrata and there's a doctor in Arizona who specializes in HC and who now produces a specific Boswellia serrata extract, Gliacin, th
  19. You guys are seriously great! You're such an encouragement to me, with all your help and your support. I feel like @Chris Moore said he felt after he had found you and this forum. I really, really appreciate you. Thank you @CHfather @spiny@Bejeeber @Chris Moore @jon019, and a thousand blessings to you for treating me so kindly and taking a newbie under your wings!
  20. Jteira, you have HC?? Thank you for letting me know about this. I'm so sorry about the indo, but so glad to hear you were able to get to pain free, I'm thinking due to the busting. And that's great for me to know too. I figured it might take a number of busts to get there, but I'm relieved to know that get there you did! With HC. Seriously, this is encouraging. Thank you!
  21. @Bejeeber@spiny@Chris Moore@jon019A quick update... after working on it every day this week (since Sunday; today is Friday) to my surprise and delight I was able to talk my neurologist via MyChart into a prescription for indo! She didn't like the idea at first but I kept asking and today she agreed to let me try it. I am so happy!! I wrote on another thread that either it will be effective (which would be WONDERFUL WONDERFUL) or at least I'll know I don't have HC or any of the other indo-responsive headaches. I understand from @CHfatherthat a person can actually take a while to respond t
  22. Newbie here... I hope this is okay to ask! I noticed that some of you seem to know the cities where each other lives, and wanted to see if any Clusterheads are in my area.
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