Leaderboard

Hey Kat!!! Great news to read! Flying: Carry energy shots or caffeine pills with you. Shots are tiny and you are able to board with them. Some will tote a few SPUT's in a convenient place to stick one under the tongue before takeoff. Others take ginger candy with them! The TSA's mean it when they say 'We're only looking for explosives' - they are NOT doing any drug checking from what has been seen, so no worries there really. I know some herbs were on that flight too. Many will do a preventative bust shortly before their flight day. Maybe 2-3 days? If you get your O2 renewed, you can call the O2 server at the other end and have O2 waiting. It does require a script though. Take your regulator and mask with you! I flew for the first time in over a decade to the Dallas Conference. I was terrified! But, it all went smoothly. I had shadows on the other end, but they were easily handled. Best of luck and Happy Holidays!!

Hey CH family, just wanted to check in. I am still managing my headaches pretty well. I haven’t had to bust in a while. I also haven’t had to use my O2 tank in over a year…YES I am serious. It’s been forever. I haven’t even renewed my script for it because my insurance doesn’t kick in til January…oh well. I dare to say I might even take a flight soon…I have been terrified to fly since my diagnosis in 2019. Also I have really bad anxiety when it comes to flying. Any advice on flying and Ch? I’ve asked this before, and I’ve read almost every post on it. Just wondering if anyone has any new advice or suggestions. anyway, I hope everyone has a safe holiday month coming up. Things are crazy out there. Still eternally grateful for you all and this site. Cheers kat

...hi Snowflake....good to hear from you but sorry it's because the beast is screwing with you... ...i don't know how common this is with CH, but have seen it mentioned several times, mostly as a side note in research and medical articles/papers....and on occasion in discussion by clusterheads.....you aint any more cracked than the rest of us! it's a thing, but apparently moreso with migraineurs. not reported to be harmful beyond annoyance in anything i've read... ...i made my living with my nose so it was more intriguing than alarming for me...tho i must admit it pissed me off and i used to hunt down the source until i finally figured out "And no one else can smell it. It feels like it is coming from within myself even exhaling through the nose senses it." thankfully transient, so never interfered with the job. multiple variations but burnt plastic, manure, and sewage were the most common and yuckiest. it IS the weirdest damn thing..... ...never could associate with any particular med and not recalling at what point in cycle it was prevalent...or even when ECH, if only during cycle...

That sounds similar to what we call shadows. Very common for Clusterheads. Switching sides is known to occur also, but I don't recall hearing of another instance where it switched following the very first attack. That's a really good thing. Not everyone manages that, so good on you @NickMirk!

So, is it 2 down and 48 to go now?