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Showing content with the highest reputation on 01/14/2023 in Posts

  1. Any summary of top remedies you've discovered could be met with some real interest, thanks @fulltime! We do still try to keep open minds for new approaches. Meantime there are folks here, some of whom such as @spiny , @CHfather and @jon019, who have continually reviewed reports (for over 20 years in some cases) from probably thousands of CH'ers , and who are known to recommend what have been identified as the cream of the crop, most likely to be effective, abortive and (this is a biggie) prevention strategies. Then of course there are relatively newer, prized members, who have quickly gotten up to speed and have been kindly advising the same. Heck I figure I've reviewed near a thousand reports (and discussions) of success with busting alone from CH'ers over the past couple decades, and have benefitted greatly from that approach myself, knocking out entire cycles, which is a purty nice thing to be able to do. If you haven't checked it out yet, I'd recommend that blue "New Users - Please Read Here First" banner up top of page ^^^^^^^^^^^
    3 points
  2. Cluster Headaches has no triggers. They attack in regular intervals. Certain foods and alcoholic drinks will make the attack periods last longer and the headaches much more intense. A headache that last 10 to 15 minutes with a beer in your system might last a few hours. Alcohol and chocolate for me can trigger an attack while in a cluster period - not while I am in remission. Alcohol is the worst. Avoid it at all cost while going through a cluster period. All kinds. Alcohol will only make things worst. Eats dry soups and teas often. Stay hydrated. Responsibly consume caffeine such as hot coffee. It helps; each individual might have to figure out how to use coffee for their own selves. A warm shower during an attack can help. Relaxation is also needed. Stress does not cause clusters; stress causes the attacks to last longer and makes it take longer for us to return to remission. If you are an anxious person pre- and post cluster periods you may be subject to panicky feelings; panic attacks. This is part it this disease. The pain is intense and during periods you have to take time to deal with your feelings so that you can expedite a return to remission. You have to remain active and have a regular sleep pattern and wind down after activities slowly - never to fast. I had not had an attack since Oct. 2021 until a little before Christmas Day 2022. I am about three weeks into a cluster period now. Sometimes I get about 8 - 10 attacks a day mainly at night and some early in morning around 9:00 am. Most lasting about 30 minutes and some lasting longer up to 3 hours. I have had these a long time, about 20 years and can share remedies that might helpful to people. Thanks for listening and have a wonderful day.
    2 points
  3. ...hi ft...welcome! very interesting post...thanks, herein my comments... Cluster Headaches has no triggers. ...gonna have to disagree....aint no absolutes with CH except the pain. lotsa triggers for me...., but, like you say...when IN cycle They attack in regular intervals. ....definition of CH....then it changes... Certain foods and alcoholic drinks will make the attack periods last longer and the headaches much more intense. .....naw, not for me.... 35 yrs....a hit was a hit no matter the cause... A headache that last 10 to 15 minutes with a beer in your system might last a few hours. ...if my hits hits were 10-15 mins i wouldn't even be posting....90 mins every damn time....tho several cycles the hits were 0-10-0 in 2-3 mins, i was very willing to accept that over unaborted 90 mins.... Alcohol and chocolate for me can trigger an attack while in a cluster period - i got ralnot while I am in remission. Alcohol is the worst. Avoid it at all cost while going through a cluster period. All kinds. Alcohol will only make things worst. YUP! Eats dry soups and teas often. Stay hydrated. ...absolutely but watch them dry soup mixes.....lots with msg (massive trigger for many) in various hidden forms. hydration is critical for CH and many other issues.... Responsibly consume caffeine such as hot coffee. It helps; each individual might have to figure out how to use coffee for their own selves. ....caffeine at the wrong time for me was a trigger.....as an abort ONLY, in the form of 2 oz energy drink, vital. folks really do need to figure this.... A warm shower during an attack can help.LY, i ...hottest setting i could stand on hit spot helped as long as i could stand....hit was back full force when stopped... Relaxation is also needed. ....a trigger for me....20 yrs of hits 20 mins AFTER work stress stopped nearly every day. relaxation in the form of deep/slow breathing of oxygen at first sign of hit, enhanced with energy drink was my salvation... Stress does not cause clusters; stress causes the attacks to last longer and makes it take longer for us to return to remission. ...different strokes for different folks...stress was ALWAYS a prevent for me.....cortisol/adrenaline? dunno. my longest remission was while caring for Ma her last days...and will executor. days after that 5-6 months....BLAM! hits were back to "normal" If you are an anxious person pre- and post cluster periods you may be subject to panicky feelings; panic attacks. This is part it this disease. The pain is intense and during periods you had then will executorve to take time to deal with your feelings so that you can expedite a return to remission. ...the mental aspects of dealing with CH are incredibly important. i considered maintaining sanity thru this nightmare as a lifetime achievement.... You have to remain active and have a regular sleep pattern and wind down after activities slowly - never to fast. ...ok...i walked 5-16 mi/dy on the job, which felt great, but not any effect on CH. maintaining a consistent sleep routine, actually any routine, was very important for me.... I had not had an attack since Oct. 2021 until a little before Christmas Day 2022. I am about three weeks into a cluster period now. Sometimes I get about 8 - 10 attacks a day imainly at night and some early in morning around 9:00 am. Most lasting about 30 minutes and some lasting longer up to 3 hours. I have had these a long time, about 20 years and can share remedies that might helpful to people. Thanks for listening and have a wonderful day. ....do you use oxygen? life changing abortive for me. please do share, we depend on it... best jon
    2 points
  4. Follow up. I have been on Nurtec going on 6 months 1 every other day as a preventative. Migraines are about 1/2 as before the Nurtec and only had 1 bout with Clusters. So far I am happy with the results.
    2 points
  5. Wow Allison, so sorry to hear you're being slammed like that! Will be eager to learn of your results with nurtec. Fingers crossed big time here too for it to do the trick for you. Hit us up for discussion of additional (often very effective) non pharmaceutical options to complement your nicely non pharmaceutical O2 if needed, and please continue to stay safe - avoiding prolonged prednisone use.
    1 point
  6. @BoscoPikoSo sorry to here about 1 of your babies being struck down , but don't worry to much bosco I'm sure she will be fine with you and your hubby looking after her . Get some ginger down you for the shadows (You already know that) shame you haven't got some vit L .could take you out of reality for a bit and the cluster bunny would hate it
    1 point
  7. @BoscoPiko so sorry to hear about that! My corgi, Norman, is my entire life. So I can sympathize with you. It’s no fun when our pets are down and out. Dogs pick up on our emotions so try to stay positive as best you can! I’ll share a picture of my Norman to cheer you up. do you have any strong ginger pills for the shadows?? Glad to hear the seeds have helped
    1 point
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